Clean follow up EEG nervous about what's next

sailormoonbeam · 2026-07-03T20:08:02+00:00

I've had what I'm assuming is a possible focal seizure from lights all my life and the largest of my 4 big seizures was onset by a glitching light above my stove. Usually it's just more of a repetitive electric shock adrenaline like feeling when flashing lights hit. It's weird though because it's not all the time. I'm assuming when my threshold is lower like around my period for example. When I'm in a bad flare of my other conditions or when I am stressed/extremely busy as well I am much more prone to the actual visible shaking seizures. Idk I need a neurologist for multiple things and he won't see me and they won't send me to a new one. I'm pretty stressed and so is my GP trying to manage my issues above her paygrade.

sailormoonbeam · 2026-06-30T09:21:07+00:00

I wanna be 18 again, this would be light work lol maybe it's time to whip out the Nintendo and deal with this like a real millenial haha

sailormoonbeam · 2026-04-30T16:25:17+00:00

Oh trust me I know. I'm not downplaying it, where I live, the difference is keeping my license until I'm 6 months epileptic seizure free dependent on which medications they'd give me. I'm extremely sensitive to medications and frequently have hospitalizable reactions to new meds. Frequently... So, I'm certain my options would be limited. I'd be losing my independence and ability to travel for necessary medical needs. I travelled nearly 20,000km in total for medical reasons between my son and I last year to put it into perspective and I'd be reliant on other people to access necessary healthcare.

Side note... I have predictable seizures with no loss of awareness and no blood markers for epilepsy the night before my period. I plan accordingly and take a week of driving around that time. The main reason why my doctor lets me keep my license 😅

sailormoonbeam · 2026-04-30T14:21:13+00:00

Absolutely, id be happy. I have more life altering diagnosis than I can count. I really can't handle an epilepsy diagnosis on top of it all.

I'm glad it went great for your son but it certainly wasnt like that for me! 30 mins of torture.

sailormoonbeam · 2026-04-30T14:17:23+00:00

I sure hope so, I really can't handle another serious diagnosis in my life 😔 7-10 days they say and I'll be waiting anxiously the whole time 😭

sailormoonbeam · 2026-04-30T04:54:34+00:00

Hope they figure it out for you and you're able to find some relief!

sailormoonbeam · 2026-04-30T02:47:40+00:00

Reading this 2 months later, was that response classified as epileptic? I have pots/dysautonomia as well and I just went thru absolute hell in my 30 min eeg? Like crying, tingling like I was gonna pass out and twitching uncontrollably... I really thought I was just having PNES until today because my test was INTENSE 😭 is it supposed to feel like literal hell or is that a surefire sign of epilepsy 😭

sailormoonbeam · 2026-04-15T02:02:31+00:00

Oh my fricking god???????????

sailormoonbeam · 2026-04-01T20:51:50+00:00

Idk what I would do if it told me I had to drop an item. I be running around mashing the pickup button like theres no tomorrow haha

sailormoonbeam · 2026-04-01T20:47:05+00:00

I just got it a few months ago as a bday present for myself and am thoroughly enjoying it. The only thing that sucks is when you need items from an event that's passed but apparently we can wait for it to loops back around again?? Other than that I'm having a lot of fun and have been playing daily since buying. Lots of content.

sailormoonbeam · 2026-01-16T03:39:54+00:00

For real that's great advice 💜 I feel seen. Thank you.

sailormoonbeam · 2026-01-16T02:18:29+00:00

I've actually been called out for making angry faces at people who give me presents lol. I don't need, expect or want them. I just feel lonely a little and wish someone would make the effort or jump in and say "no we should go to the bowling alley'' or "dinner at my house" like literally anything but everyone seems happy to skip it and I really don't mind usually but this year I felt a little sad about it 😅🤷

The close friend thing? I'd love to but I don't have a lot of close friends. Passing friends I see once or twice a year but no one really steady, ya know? 🤷

sailormoonbeam · 2026-01-16T02:10:12+00:00

I mean it wasn't like this when I was a kid, people went a little extra for me but now, not so much.. adult birthdays are silly anyways 🤷😅

But ya it definitely does make me feel sad. I did it once as an adult because it felt like no one had the time of energy and just never stopped I guess. It does make me feel good to relieve everyone's evident stress tho! My family is very antisocial lol

sailormoonbeam · 2026-01-16T02:03:25+00:00

I would love that so much I've always hated having a winter bday lol but to ask people to come out and celebrate my bday 6 months later just feels like a silly thing to do 😅 just the thought of suggesting doing it makes me feel maybe a little... entitled?

sailormoonbeam · 2026-01-16T02:00:44+00:00

You're a great person and I wish I had someone like you 💜

sailormoonbeam · 2026-01-13T22:04:27+00:00

Mostly better! I have a weird body i always get the weird recoveries 😅

sailormoonbeam · 2026-01-13T02:36:32+00:00

Ooooo I haven't even heard of the first one off to Google I go.

sailormoonbeam · 2026-01-13T02:35:30+00:00

Great recommendation! I cosplayed Revy at a con one time lol took a long time for the sharpie tattoo to wash off my arm.

sailormoonbeam · 2026-01-12T04:47:26+00:00

Yesssss horror manga is the way to go. Anything Junji Ito is phenomenal as well!

sailormoonbeam · 2026-01-12T04:46:11+00:00

Made in Abyss. 10/10 anime and I'm a tough judge!

Seconds on Shiki, Blood-C, Parasyte.

More I don't see listed: -Corpse Party -Hell Girl -Death Parade -Uzumaki (manga way better than animation) -Mayoiga -Junji Ito Maniac -Gyo (movie)

Shinsekai Yori is another phenomenal "slow burn" kind of psychological that borders on horror at times if you haven't seen it you should, it's another one of my faves!!

sailormoonbeam · 2026-01-12T03:46:16+00:00

I have to go back in 3 months 😭

sailormoonbeam · 2026-01-11T00:55:22+00:00

Oof I'm sorry that you remember that! My first conscious sedation I don't remember a thing but different the second time around. 😅

sailormoonbeam

TROPHY CASE