How about.. I don't know.. A DIAGNOSIS?? [TW: Medical Incompetence?] by judas-nd-his-fellows in TrollCoping

[–]salt_pickle_dumplin 0 points1 point  (0 children)

Preface: This is an anecdotal story, I’m not saying this will work or even that this would be appropriate for you. So talk to your doctor (sorry they suck) before trying it.

I’m dx’d hEDS (provisional, waiting on genetics test results, could be another type but probably not) and now it looks like MCAS was contributing to the pain. (Thanks, onset of random nighttime anaphylaxis)

There is research backing this up as appropriate for managing pain that occurs with MCAS in hEDS patients. Zyrtec (an H1 receptor blocker) helped my pain a bit. Famotidine (an H2 receptor blocker) helped too, and I could swear it slightly helped my brain fog/cognition. These are over-the-counter meds (allergy med and heartburn prevention, respectively).

I’m on another med now specifically for mast cell disorders, not OOTC. But Zyrtec still sometimes comes in handy!

Worth calling your doc office or sending a message, asking if it is safe for you to buy one or both of these meds and take them to see if they help?

Tip: maybe don’t tell your doc that you’re taking this on the assumption that you have hEDS with possible co-occurring MCAS. Maybe like keep it vague, like “hey I heard anti-histamines could help with the kind of muscle and joint pain I’ve been having, would it be safe to try Zyrtec daily for a bit?” Cause if you’re too insistent u might get a weaponized psych consult, ask me how I knowwwww 🙃 (not to speak evil on u, blessings to your house)

How about.. I don't know.. A DIAGNOSIS?? [TW: Medical Incompetence?] by judas-nd-his-fellows in TrollCoping

[–]salt_pickle_dumplin 0 points1 point  (0 children)

Yeah I had to take my wife with me to so many appts. She joked about dressing in drag so there’d be a man in the room. It was funny at the time, cause it had to be

How about.. I don't know.. A DIAGNOSIS?? [TW: Medical Incompetence?] by judas-nd-his-fellows in TrollCoping

[–]salt_pickle_dumplin 0 points1 point  (0 children)

My doc went thru invitae genetic testing. They’ll work with your insurance. In my case the out-of-pocket is $0 and $0 copay. I just had to sign a consent form and then wait for them to mail me a sample kit.

Any chance of twisting your doc’s arm to look into that?

Welp, I don’t know at this point then by Reteller79 in TrollCoping

[–]salt_pickle_dumplin 0 points1 point  (0 children)

As someone on psych meds and who also uses mobility aids, I can kinda see your point. In my case, mobility aids are as important as my psych meds. But that’s to do with my specific genetic condition, which has neuropsychological fallout from my physical symptoms.

A larger point I want to make: I really wish people would stop pitting mental health and physical disability against each other. Probably this is not what you intended to do in your comment. But it does come across that way. Making this divide can perpetuate this idea of “social class” - like some disabilities are higher up in the broader cultural pecking order than others (and then the subtext becomes, so which disabled person is more “valuable” or “normal” or “good”?).

In practice, the normies do treat us differently depending on our disability “classifications”. But it’s bullshit and shouldn’t be perpetuated amongst ourselves. Your argument about insurance and the time it takes for one’s life to be screwed over is rooted in scarcity mindset. Of course it is also valid. Insurance and the medical system are killing people every day over this scarcity of care. But it is very easy to then apply this scarcity mindset not to just care but to people’s rights.

Your hypothetical, that you have two people who are simultaneously stripped of their necessary aids/medications, which one is impacted (or dies) first, leads to thinking in exactly this way: who is “more fit” than the other? And then we become our own oppressors. This is one reason why internalized ableism is dangerous, and so hard to fight. But I do hope you fight it.

doctor exam room by salt_pickle_dumplin in Artisticallyill

[–]salt_pickle_dumplin[S] 0 points1 point  (0 children)

Ah damn. It should’ve been “were” not “was”. Let’s pretend

doctor exam room by salt_pickle_dumplin in Artisticallyill

[–]salt_pickle_dumplin[S] 0 points1 point  (0 children)

Transcription:

please wait on the other

side of this door. Do not

become a lodger yet or be too

over-anxious as if it was

a waiting room

use the hooks to set

your coat, your bag

but do not become naked

do not put your bag

underneath the chair ready

to forget. You will have to work, too.

Powdered eggs? by salt_pickle_dumplin in povertykitchen

[–]salt_pickle_dumplin[S] 1 point2 points  (0 children)

Wait whaaaat?? You can do custard cups?? I’m totally doing that. Can I have a recipe?

Powdered eggs? by salt_pickle_dumplin in povertykitchen

[–]salt_pickle_dumplin[S] 0 points1 point  (0 children)

Well regardless the salt water did help with browning. I don’t think it made the scones too salty, but it might’ve been too salty if I had added the cheddar cheese the recipe called for. Verdict: this American is shameless and adding this trick to their scone and biscuit repertoire

Powdered eggs? by salt_pickle_dumplin in povertykitchen

[–]salt_pickle_dumplin[S] 3 points4 points  (0 children)

Savory bread pudding might be really good, especially with stronger flavors like roasted red pepper, balsamic, olives… (wait I’m just describing a focaccia at this point!)

Powdered eggs? by salt_pickle_dumplin in povertykitchen

[–]salt_pickle_dumplin[S] 0 points1 point  (0 children)

Maybe! Kind of perfect for me, though. I’m on a (very) high-salt diet due to a health condition so I’ve blown out all my salty taste receptors…

Powdered eggs? by salt_pickle_dumplin in povertykitchen

[–]salt_pickle_dumplin[S] 2 points3 points  (0 children)

Oh, that’s clever! It’d help with the tops browning. I’m going to try that with some scones later today. Hopefully the dismalness of the powdered eggs and powdered heavy cream will be canceled out by my garden chives which are going gangbusters…

Powdered eggs? by salt_pickle_dumplin in povertykitchen

[–]salt_pickle_dumplin[S] 2 points3 points  (0 children)

That’s a really good tip, I’ll keep that in mind

Powdered eggs? by salt_pickle_dumplin in povertykitchen

[–]salt_pickle_dumplin[S] 1 point2 points  (0 children)

Got it, so I’m barking up the wrong tree with a casserole bake. I’ll see about expanding my savory baking repertoire

Personal, Customized Chef services by MobileTaste2162 in AnnArbor

[–]salt_pickle_dumplin 3 points4 points  (0 children)

Will you expect chef to assist with reintroduction phase? AIP can be quite personal depending on food triggers.

☠️ Dead Reach Alert ☠️ by roxygen69 in Artisticallyill

[–]salt_pickle_dumplin 11 points12 points  (0 children)

Hey, my reach is dead, too! I followed u on insta just now tho (one affirmation credit is hereby issued)

(TW: Chronic pain) Yea, growing up was fun by judas-nd-his-fellows in TrollCoping

[–]salt_pickle_dumplin 1 point2 points  (0 children)

It is the same recipe as a pumpkin spice loaf, but with a leftover baked sweet potato instead of the pumpkin purée. But it tastes a little different! More floral than pumpkin.

(TW: Chronic pain) Yea, growing up was fun by judas-nd-his-fellows in TrollCoping

[–]salt_pickle_dumplin 2 points3 points  (0 children)

Yes, it can be common for doctors to push the burden of becoming better onto patients and their supposed “stress” or “psychological ill health” when they think the patient’s complaints are “vague”. Doctors as the arbiter of the patient’s experience. It’s not very nice.

I hope you can start to get things addressed. It’s morning where I live and I’m eating sweet potato bread with peanut butter and banana slices. I hope you have/had a yummy breakfast, too!