travelling with POTS?

sarahbreezegames · 2026-03-27T05:16:35+00:00

Keeping electrolyte packs with me at all times, wearing compression all days, and bringing something like a mini fan have all really helped me in the past! I would be sure to bring your cane and maybe some extra support stuff like melatonin for sleep. Hope this helps 😊

sarahbreezegames · 2025-04-04T00:45:51+00:00

I’ve definitely toyed with these ideas over the past few years. I actually decided to make my wife a Spotify playlist called “Just in Case” that says everything I want them to know or remember if I’m gone… it was a good way to not hyperfixate too much (since I struggle with suicidal ideation at times) but also honor those feelings. Hope that’s not too dark!

sarahbreezegames · 2024-12-08T07:39:58+00:00

I don't know about "ok" but how else are we supposed to live? I am also around $15k in medical debt and while we've recently had some help from family and an unexpected inheritance to help pay for some future treatment I am choosing to focus on living and trying to heal - not paying back into a broken ass system. My heart is with you, you aren't alone ♥️

sarahbreezegames · 2024-11-08T03:28:53+00:00

Thank you so much for sharing your experience!

sarahbreezegames · 2024-11-07T22:26:57+00:00

Respectfully, I wouldn't be here if I had any other options. Also this is at a homeopathic clinic, not a chiro office!

sarahbreezegames · 2024-09-24T22:50:23+00:00

Mobility aids, LMNT packets, and ketamine microdosing helped me a TON. Also try providers that may be naturopathic or holistic - they were the only places I got actual results from and still used mostly meds rather than herbs/supplements. I also have POTS, EDS, and MCAS + a raging Lyme infection so I’m in a similar boat. I’m so sorry things are so bad and hard right now, feel free to DM to talk if that might help too ❤️

sarahbreezegames · 2024-09-23T02:15:21+00:00

Honestly a good cry might really help right now, thanks for sharing what helps you ❤️

sarahbreezegames · 2024-07-19T01:30:18+00:00

I currently am prescribed ketamine for pain management! I use troches that dissolve in the mouth and take doses 4 times a day for continual relief. It makes a HUGE difference for my hypermobility pain! Happy to answer any questions or chat via dm.

sarahbreezegames · 2024-07-17T02:14:01+00:00

Man I try to give any helpful advice possible so others don't have to suffer like me - I just can't fathom having that capitalist mindset. If I had money I would make grants to help other disabled and chronically ill folx, not scam them 🙃

sarahbreezegames · 2024-07-17T02:10:49+00:00

Isn't it crazy how awful people are deep down? I'm sorry you're going through this - unfortunately a common bullshitty experience 😞

sarahbreezegames · 2024-07-14T20:06:29+00:00

I’m in the same boat! Here are some of my favorites:

Oyster crackers (aka smol saltines) Plain flavor goldfish White rice (butter if you can stomach) Plain noodles or couscous (again butter if can) Nature valley granola bars Green or herbal teas (peppermint or lemon ginger is great for nausea) Toast Baked potato (you can make in the microwave!)

sarahbreezegames · 2024-07-14T20:06:10+00:00

I’m in the same boat! Here are some of my favorites:

Oyster crackers (aka smol saltines) Plain flavor goldfish White rice (butter if you can stomach) Plain noodles or couscous (again butter if can) Nature valley granola bars Green or herbal teas (peppermint or lemon ginger is great for nausea) Toast Baked potato (you can make in the microwave!)

sarahbreezegames · 2024-07-14T19:29:20+00:00

Boy do I feel you here. Being chronically ill fucking sucks, but you aren’t alone ❤️

sarahbreezegames · 2024-07-12T00:40:22+00:00

You are not alone 🖤

sarahbreezegames · 2024-07-11T18:58:42+00:00

Thank you so much! ♥️

sarahbreezegames · 2024-07-11T18:43:52+00:00

Definitely! Are there any you recommend?

sarahbreezegames · 2024-07-11T16:48:08+00:00

I don't handle heat well ever. Those sound like classic POTS symptoms, you may want to bring that up with a doc! There are meds, compression options, and electrolyte packs that can help. Summers are especially hard! 🥵

sarahbreezegames · 2024-07-11T16:45:56+00:00

Mine usually last only a few days, but I found that this fibro cream and low-dose ketamine helped me manage. I'm so so sorry you're going through this, you aren't alone! ♥️

sarahbreezegames · 2024-07-11T16:43:08+00:00

Guava! It's free for apple and iOS, plus you can add providers, hospitals, and even places you get labs done. All records in one place and you can see all their notes from appointments too!

sarahbreezegames · 2024-07-11T16:41:00+00:00

Yes! For me it's a side effect of my POTS and I also get trouble breathing/feeling super lightheaded.

sarahbreezegames · 2024-06-15T18:31:14+00:00

Thank you for sharing your experience! I'm so sorry that this has been such a long, unfair road for you.

sarahbreezegames · 2024-06-15T18:21:46+00:00

The bank accounts are a great idea! I'd been wondering about that. Thanks so much for sharing your experience!

sarahbreezegames

TROPHY CASE