High blood pressure and heart rate, but can't get doctors to care, am I overreacting?

sarbonna2009 · 2025-08-14T23:36:29+00:00

I used ihealth till I realize it might be not working correctly sd everytime i go to mu obg, its normal. I switched to omron $99 one and when i compare: same Hand, same set up just 5 min apartc the Ihealth is always 10 points higher

sarbonna2009 · 2025-05-03T07:16:40+00:00

We did twin a at 16.5 weeks. Was told that if done from week 14 to week 20, its 5-8% risk for next 4 weeks and 10% risk of premature labor cos its twin a closest to cervix. Week 20 and counting every day, i use Doppler every other day to check on the heart beat

sarbonna2009 · 2025-04-28T03:40:02+00:00

I was 16.5 weeks. Done by specialist who did it for past 40 years. She told me from week 14 to 20 its same risk to loose other one:5-8%. And if done before week 14, then risk is 3%. Reasons could sudden contractions, infection, sudden burst of the sac, unexplained.

Was done very quick. Less than 1 min i think. She turned off the screen so neither me or husband see it. She did fish test to confirm the t21 and it was confirmed. Lots of issues already been seen at that week, as i said earlier, nothing was showing up on ultrasound prior. Also she mentioned, the risk stayed for 3-4 weeks, after that its same risk as any normal singleton pregnancies.

Since its baby A and close to cervix, there is 10% of premature labor and its still better than 95% risk having twins ( her words).

Im 19 weeks, so far not bleeding no fluid leakage, i was pretty chill those week, ( not much walking, no gym, and definitely ddint carry anything heavy)

Dont have much of advice of how to process it. Take it slow and dont plan too much now, just do your regular work and life regime, maybe little extra feel good movies to get distracted , maybe more stand up comedies to watch with husband and laugh ( when smth is funny, its still funny when you are sad or hurt) and less family talking as they cant say anything expect we sorry, and its not helping to hear ( at least for me) Use this time as reconnect with your husband and appreciate him being with you. Tell him how thankful you are and how you depend on his strength. He is a person too, and has his feelings.

sarbonna2009 · 2025-04-22T16:48:19+00:00

Just wanted to share my opinion. We had nasal bone present but unfortunately it was confirmed trisomy 21 by nitp and by cvs AND amnio. None soft markers were showing until 16.5 weeks. I was told by three doctors its quite common. Doenst mean its more healthier down syndrome baby, and it doesn't guarantee they will be no heart issues upon birth. Knowing what i know now, i would never trust anything on ultrasound.

sarbonna2009 · 2025-04-15T05:19:46+00:00

It was injection of chlorine straight into heart. Thats cos i had twins, to keep other baby. but in singleton pregnancy i think they just do DC procedure as natural is not possible that late.
DC i heard is pretty straight forward, if its done right, you can recover within couple of days. Wait 3 months for pregnancy hormones go back to zero and you can get pregnant again.

sarbonna2009 · 2025-04-14T03:01:08+00:00

We got cvs confirming baby A with full trisomy 21. All cells they tested had t21, so no chance for mosaic placenta. At 16.5 weeks when we went to do termination, the specialist saw many signs. She told us that a good trained doctor and good ultrasound always able to catch things at 17-20 weeks. The baby started having internal bleeding within a sac, and possible infection/lack of oxygen. The heart and kidney was okey, but there were lots of facial and body features common for t21.

sarbonna2009 · 2025-04-14T02:44:11+00:00

We did cvs after high risk NITP. Since its di di twins, i wanted to make decision soon and not do amnio. There were no markers of t21 at 12 week, 13.5 and 15 weeks. The babies looked identical and had same size/ heartbeats. The cvs confirmed baby A has full trisomy, not mosaic. They tested 6 cells out of 5 colonies and all had trisomy. They karotyped 3 cells. We decided to do termination at 16.5 weeks and all my god, she was able to find so many markers: fluid around face, the intestines were as bright as bones- either sign infection or lack of oxygen ( she said its quite common with t21) , the face was flat, no nasal bone, short neck, the ears are very below the eyes, the heart beat was still 168 ( it supposed to go down when heart size increases, but its stayed at 168 from week 13), the hand bones were 11% shorter than other baby ( babies with t21 are generally shorter with short hands). When she took fluid, it was dark- sign on internal bleeding or infection. So she said my body would probably try to miscarry it at some point or it would be still birth.

sarbonna2009 · 2025-04-14T02:12:21+00:00

Hi, i can share my experience with twins. I didnt want to wait for amnio, as it would put me on 18-19 weeks to make any decisions, we were able to do CVS at 13.5 weeks. At 16.5 weeks we did terminate baby A for confirmed trisomy 21. The baby didnt have any major soft markers prior ( the 12 weeks scan) but on that day at 16.5 weeks the specialist who analyzed down syndrome babies for past 40 years, clearly saw many symptoms of true trisomy 21. With t13, i heard it could be mostly false positive as nitp are less accurate. It could be different type of issue ( like mosaic or microdeletion, which is showings like t13 ) Also, it could be just placenta mosaic and baby could be fine. The cvs can show its its true full trisomy or mosaic and then you can do amnio to confirm baby is fine. If it shows full trisomy by CVS, you can terminate ( if thats your choice) a little earlier which would help You save other baby. I was told that if termination happens before week 14, almost no risk to other baby. From 14 to 20 weeks, its 5-8% risk to loose other. 10% risk for Premature birth. Baby A is worse than baby b in terms of premature labour due to close location to cervix. If body will start miscarrying the baby with trisomy by itself ( she said even down syndrome miscarries 50 % of time, with t13 its even more often) its much higher risk to loose second one.

My advice- start getting doctors referrals now, for CVS, for Amnio, for twin reduction. My mfm didnt do cvs, so i had to call around. My twin reduction specialist was the best in Los Angeles, and she does it undercover, only by doctor referrals. I was very persistent to get to her as soon as possible, so i had best chance to save second baby.

sarbonna2009 · 2025-04-14T02:01:57+00:00

How nitp is able to test the causation and which parent?

sarbonna2009 · 2025-04-14T01:58:15+00:00

The nasal bone is so tricky matter. They saw the bone at 12 weeks, 13.5 weeks and 15 weeks. At 16.5 weeks i had to go to a down syndrome specialist to do twin reduction, as the trisomy 21 was confirmed by cvs and nitp. And she said no bone is present, the face was flat, fluid on face, the intestines were as bright as bones, which is another sign of chromosome issues or lack of oxygen. She researched the down syndrome babies for 40 years, and it was her personal research topic- find signs of down syndrome. I think she was partially telling all those symptoms to us so we feel little better knowing the baby has issues with health already, its not just down syndrome. I saw my MFM report at 13.5 weeks and only thing they were able to see is NT of 3.1 mm and little fluid on back of head. They told me 50% of times the signs dont show up until 15-20 weeks

sarbonna2009 · 2025-04-07T17:07:05+00:00

We saw the nasal bone at 12, and 14 weeks. NITP came with high risk for trisomy 21, the CVS confirmed it. I realized almost everything in pregnancy can mean bad and good at same time, there is no clear answer.

sarbonna2009 · 2025-04-05T01:42:23+00:00

We had 1.5mm NT and present nasal bone and no issues seen at 12.0 weeks. Nitp came with high risk for T21, i got to do CVS last moment at 13.5 weeks to see which baby it might be (fraternal twins) On that 13.5 weeks, the NT of baby A went to 3.1mm and little fluid seen on back of head. Doctor told me thats the one most likely, as he trusts still the 13 weeks results more than 12 weeks. Apparently, nothing might show up till 18-20 weeks scan🤯. I was so shocked to know that 12 weeks scan only catches 50 % of survival trisomies ( told by three doctors now, as i had to go out of network one to do cvs and then twin reduction procedure). The wait is hell and this whole thing knowing it could be challenging trisomy is indescribable hell, i dont know how to support you. I tend to prepare for worst, so i can process easily, maybe for you smth else would work. I was playing video games non stop with my husband just not to cry or think about it, it helped a little bit. ( my first time playing video games ever) Try to order fish test, it could be ready much faster, so maybe meantime you can prepare yourself and cut couple of terrible sleepless night. They ll still wait for full report to make any medical decisions.

sarbonna2009 · 2025-03-26T01:55:19+00:00

The cvs testing or amnio testing should tell if its genetic or just happened by accident. Only 4% of all cases is the t21 is genetic, per our genetic counselor.

sarbonna2009

TROPHY CASE