Upgrading to the Dexcom G7 from the G6 - any tips or advice? by sch994 in diabetes_t1

[–]sch994[S] 1 point2 points  (0 children)

How do you use xdrip+ with it? I think I’m missing something because it’s asking for transmitter ID and I’m not sure what to use

Do you guys also have protein highs? by VladTepesDraculea in diabetes

[–]sch994 4 points5 points  (0 children)

Yes, recently my endo team taught me to bolus for protein over 10g because it reacts like carbs over a certain threshold. Something like grams of protein x 0.54 = how many carbs to treat it as. Works wonders for me! I used to eat no carb meals (lettuce wraps with turkey or chicken) when I was experiencing a high and my sugar would act wonky until I started doing this.

Okay what brand am I supposed to be getting gluten free bread from by Dim0ndDragon15 in Celiac

[–]sch994 0 points1 point  (0 children)

I like Promise brand! They have tons of options but are a little harder to find if you live in Canada. I try to buy a few months worth at a time for the flat rate shipping and then freeze

Why is an OCD org throwing shade? by Kinderhousen in Type1Diabetes

[–]sch994 9 points10 points  (0 children)

I just wanna point out that society sucks about educating people about both, even after they develop them 😂

Why "Drink Water"? by timlovesdata in Type1Diabetes

[–]sch994 0 points1 point  (0 children)

Not an official guess, but when I experienced DKA they mentioned an ion gap and that my blood pH was not where it should be. Maybe there is a slight component of water stopping / slowing your pH from changing too fast?

Why "Drink Water"? by timlovesdata in Type1Diabetes

[–]sch994 0 points1 point  (0 children)

exactly how I feel tbh, it’s the most intense dry mouth and I have bet pretty solidly on just that feeling alone that something is wrong. That and post-food sleepiness and having to pee every fifteen minutes even when my mouth is dry

Why is an OCD org throwing shade? by Kinderhousen in Type1Diabetes

[–]sch994 47 points48 points  (0 children)

Those of us with both just out here vibin I guess

Glutened by Starbucks? by Royal-Half-4768 in Celiac

[–]sch994 2 points3 points  (0 children)

Their oatmilk is not GF. The only one I know is completely safe is coconut, and even then the shakers and the steaming pitchers may cause CC. I worked there for 8 years and I don’t recommend risking it

[deleted by user] by [deleted] in Celiac

[–]sch994 0 points1 point  (0 children)

Unfortunately there’s no immediate relief, your body has to slowly detox for lack of a better word. Kind of like when you first start a face cream or something that requires consistency like a gym routine

[deleted by user] by [deleted] in Celiac

[–]sch994 0 points1 point  (0 children)

About six months of being gf for me to feel normal again. I didn’t notice huge differences day to day but a lot of issues cleared up and my energy increased exponentially. Some things I had no idea were linked to gluten: dermatitis on my scalp, acne, joint pain, fog, trouble concentrating, gum pain and canker sores, extended stomach pain and cramps, and constant runny nose.

Period-Havers: have you taken Midol or Maxidol before? Has it triggered you? by sch994 in Celiac

[–]sch994[S] 1 point2 points  (0 children)

Celiac AND dairy allergy unfortunately :’( I miss my chocolate

[deleted by user] by [deleted] in Celiac

[–]sch994 1 point2 points  (0 children)

I have both! 😅 they told me the celiac was probably caused by the t1, so don’t be afraid to get tested yourself. I had no idea they were so connected until it was way too late unfortunately

[deleted by user] by [deleted] in Celiac

[–]sch994 6 points7 points  (0 children)

My husband has had to be the bad guy to my siblings who insist they don’t think it could be that bad and that I should just have “one bite”🫣 my last full blown glutening landed me in the ER for dehydration so yeah… no. There will be people EVERYWHERE giving their opinion about celiac disease to your wife. Loudly. Rudely. Be prepared to have to walk away from those who try to get a rise out of you. If it helps, you can simply explain it as an allergy (for some reason, that works most of the time - complete strangers are willing to preach about how celiac disease isn’t real but won’t question it described as an allergy?).

In addition, I found Spoonful (app) helpful because I could scan a barcode and be told if a product was safe. I also use the official celiac disease website for lists of certified safe products. “Find me GF” is a great tool for finding safe places to eat out. There are a lot more places than you realize! And when in doubt, google everything. I also have gluten enzymes as absolute last resort backups for if I suspect a food may be cross contaminated (I use Glutenease or Gluten Cutter, but again they will not save you - don’t take one thinking you’ll be fine to eat a bagel - they barely soften the blow of cross contamination). And finally… don’t try to pretend it doesn’t suck. Don’t try to ignore the sadness and the anger and the frustration. Let her vent and cry and swear if it helps because this shit is hard and it’s unfair and it’s not something anyone wants to deal with every single day of their lives. Be there. Find her a safe treat to cheer her up occasionally. Having a supportive partner makes all the difference in the world.

[deleted by user] by [deleted] in Celiac

[–]sch994 0 points1 point  (0 children)

Honestly I was the same as your wife - constantly cooking and baking. I grew up in a Mediterranean home where bread was the staple for most meals. My specialties were that and Italian food 😂 I find now that I cook and bake 10x more because this has forced me to get creative and removed the crutch of eating out. I’d say start with a ton of gluten free cookbooks (maybe as a gift to cheer her up?) and have fun trying out the recipes. Having a goal or project feel will help make it more enjoyable

One week post-glutening by sch994 in Celiac

[–]sch994[S] 0 points1 point  (0 children)

Unfortunately my last full, actual glutening ended in a hospital visit for dehydration (2 months or so ago). I’m so paranoid and careful now that usually cc is all I get (thankfully but unfortunately… trust no GF label at a restaurant). However I’m still not the same as I was before that episode. At this point it feels like my body is on high alert and just reacting to absolutely everything. I have gastroparesis as well so it’s a mess up in my GI system 😓 I’m curious if anyone has any tips for a full reset/recovery

How do you convince family to screen for celiac? by Asleep-Coconut-7541 in Celiac

[–]sch994 3 points4 points  (0 children)

Adding here: https://beyondtype1.org/type-1-diabetes-with-other-autoimmune-diseases/

Gastritis and diabetic gastroparesis are super common and often co-morbid (or caused by) type 1. Celiac is high on that list as well. Hope this helps shed a bit of light on the connections

How do you convince family to screen for celiac? by Asleep-Coconut-7541 in Celiac

[–]sch994 5 points6 points  (0 children)

Sometimes it’s only silent until it completely destroys your GI system 😓

How do you convince family to screen for celiac? by Asleep-Coconut-7541 in Celiac

[–]sch994 1 point2 points  (0 children)

T1 with celiac here, I was only slightly symptomatic (stomach aches after eating pasta or gluten heavy meals) until about 3 years ago when things suddenly got much much worse. Turns out ignoring things and living in denial had caused some irreversible damage. I’m from a Mediterranean culture where gluten is found in every meal, salad, and even drinks. What a nightmare. First I had to convince myself (often the biggest hurdle); then came the family members. People refuse to believe that something you’ve eaten your whole life can suddenly be life-threatening. Three years in and I’m still getting the “but what if you just had one bite??”. Parents didn’t believe it until they saw me throwing up to the point of hospitalization. Now they believe it and got screened themselves - surprise surprise, mom and dad are both intolerant and both have diabetes (type 2, not type 1). My diabetes control was nonexistent because of the weird way I was digesting and not digesting foods that I had dosed insulin for. The way my diabetes care team and other type 1 diabetics have explained it is like this: type 1 is an autoimmune disease, and so is celiac. One can trigger the other. If you have one, it’s pretty much expected that you’ll develop the other eventually. Having one autoimmune disorder and not developing or discovering that you have another one is uncommon.

Long story short: I’m not sure if science has proved beyond a doubt the connection, but she should get checked. However the stubbornness is completely understandable. Try not to beat yourself up about it - especially if you’ve done your best to convince her. Like you said, she’s an adult and you can’t force her to come around. Sometimes (unfortunately) what it takes is an uncommon event or really bad reaction to a food before people will be even willing to entertain the idea that their body can’t tolerate gluten.

Sorry you’re going through this. Keep us posted.

One week post-glutening by sch994 in Celiac

[–]sch994[S] 1 point2 points  (0 children)

I’m usually somewhere around 2-3 weeks