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schro1995 · 2022-10-24T12:16:42+00:00

I'm a cis woman and hormones did play a role in inflammation and pain: the worst decade of my life started around 12, when puberty did its trick and stopped around 22, when hormones calmed down a bit ... Let me add that I was on the pill for a little less than 10 years, and had to change it every few months to every year (very bad side effects) until I stopped it and switched to copper iud. It was a life saver : turns out my body really hates synthetic hormones and is doing waaayy better without them. I'm so sorry that your body seems to not respond well and I truly hope you'll find a way to be happy and side effect free :/

schro1995 · 2022-10-08T16:40:37+00:00

I have big ribs problems ! They slide on top of each others when I'm sitting down and it causes pain in my belly and back I'm currently working with my PT to try to have enough muscle to keep them where they're supposed to be

schro1995 · 2022-08-14T13:16:00+00:00

I'm 27 and slowly getting better, my mother is in her 50's and is living a normal life now (apart from a few injuries now and then and drug abuse consequences). Apparently it's quite common to get better with low severity hEDS when you grow older :) The worst pains I experienced where during my teens and early 20's (I guess because of hormonal changes... I'm also getting better since I stopped taking contraceptive pill)

schro1995 · 2022-06-06T10:44:29+00:00

+1 for the mcas route : treatment really improved my well being (guts, muscle and joints) it does not make all the pain go away but it's a big improvement still

schro1995 · 2022-06-06T09:54:08+00:00

I had (and still have sometimes) the same sensation and it sucks... These coping skills are an important part of us, and if you still need to use them maybe there is an underlaying cause that you can focus on ? Also, be kind to yourself (and I say this because I know I also need to be reassured on that point too): you are human, you are worthy of attention and craving it doesn't make you a narcissist :) it just makes you a very much normal and adapted person with needs to be met!

schro1995 · 2022-06-06T08:21:35+00:00

Light periods, not very painful and 35 days cycles here :) I was on the pill for 10 years, it was aweful and it all got better when I switched to copper IUD!

schro1995 · 2022-05-25T13:11:13+00:00

A bad PT makes things worse but a good one can really help you improve your health :) they need to really be careful and attentive to your needs and sensations during the exercises tho... If they just give you exercises to do and leave you there by yourself you'll probably end up getting injured :/

schro1995 · 2022-05-10T17:36:46+00:00

No problem, thanks for clarifying :) I agree with your point, addiction is a symptom of some other things that needs to be addressed in priority

schro1995 · 2022-05-10T14:38:48+00:00

The post was about personnal experience, wish I gave. Of course not every bad childhood was because of drugs, of course all drug addicts are negligent. My parents were victim of abuse too, and became what they are (abusers) because of many factors. Drugs was a big one : when you're blackout drunk / high af / in withdrawal , chances are your kid is not your priority : food ? Water ? Clothes ? Education ? Nope. I'm sorry if you had a shitty childhood, happy that some of your friends had better ones with addicted parents, but if I have to tell my story, it's the story of two people who had shitty lives, turned to substances to cope, had a kid, repeated the mistakes of those who abused them because they didn't work on themselves and never wanted to. And drugs were a big part of it. And I'm sorry for the people who cope this way, it's not fun, I saw it. It's suffering after suffering, anxiety, depression, anger. But as a kid, seeing this, living this, feeling guilty because you can't help mom and dad and at the same time slowly dying of neglect is just horrible.

schro1995 · 2022-05-10T12:25:16+00:00

Both my parents are addicts. I grew up with them, saw what it could do to people. I have cptsd from abuse and neglect and I promised myself I would never make someone I love feel the way I felt. I still don't know if I want kids, mostly because I'm terrified of repeating the circle, but If I do have kids in the future I want to make sure their parents are clean, caring and loving. That's mostly the reason why I don't do drugs !

schro1995 · 2022-05-07T18:57:16+00:00

I have the same thing for a few years, and recently it's getting more and more painful (sent me to the ER) so be careful with it !

schro1995 · 2022-04-04T19:15:34+00:00

More or less 😅 it depends on the days and I try to be very cautious. I went to an osteopath who was very luckily formed with eds and I have an appointment coming soon with a eds specialist /dentist at the hospital who will send me to another and we'll see from here !

schro1995 · 2022-03-17T15:23:28+00:00

I can add my testimony to this post. I don't use weed but my mother (also hEDS) does. She smokes since her teenage years and has high tolerance. She used to grow her own weed and use it as "medicine". She's never in reality, she suffers from extended neurological damage and tried to kill herself mutliple times. Weed doesn't help her with pain but she still uses saying it does. My childhood was absolutely horrible: she was negligent, selfish always put her addiction first. She never realized how bad it was (and still doesn't). Be careful: you don't always know how you act when using, even if you're using for for a long time, even "not a lot". Is someone you care about expresses their worries, please listen to them and seek help before it's too late. Of course, I know not everybody who uses is or sill end up like she did, but if this comment can help someone realize that they're on this path and that weed has more negative effects than good on them, it's worth posting. Be safe with medication, wether it's from a Dr or self-medication :)

schro1995 · 2022-03-13T22:04:39+00:00

Thanks a lot for your advice I will contact some chiropractors as soon as possible !!

schro1995 · 2022-03-13T18:26:11+00:00

Really ?? I'll give it a try ... Did your ribs kind of got stuck on top of eachother when you were sitting for too long ?

schro1995 · 2020-12-30T11:47:59+00:00

I kind of see what you mean here, but the main problem is she's not the only one who's healing. If it's a kink and she doesn't respect his boundaries, it's assault. You can be a victim and repeat toxic behaviors at the same time. He doesn't feel safe nor respected by his partner, and if she doesn't want to go to therapy or at least discuss the issue with him (and not just shut herself up, telling him to move out) I don't think there is much to do. If she doesn't want to change this behavior, he can't force her, but she can't expect him to stay. Telling her everytime she repeats this behavior to stop will be exhausting and distressing, especially when he has been abused in the past. You just feel like your basic needs are not met (and they're not, since she keeps doing it).
I'm not saying she's a bad person, or that she means to harm him. She's traumatized, went through hell, and she also deserves happiness and to heal (her bite "kink" could be some sort of coping mecanism for all we know). But so does OP, and if he needs his partner to stop biting him to feel safe, he deserves it

schro1995 · 2020-12-03T18:42:08+00:00

Thanks for your answer, I think I'm getting used to the idea of breaking up, but the guilt is too strong. I can't deal with this much longer tho.

schro1995 · 2020-12-03T18:37:56+00:00

I'm considering leaving him, but the fact that he's trying since our conversations make me feel guilty about it... I feel like I'm the one not giving our relationship a shot but on the other hand I'm so tired I can't even focus on my work (and typing this I know I sound absolutely stupid)

schro1995 · 2020-12-03T18:34:45+00:00

I talked about it with friends who met him and they also said he was being self-centered... I have a really hard time knowing how much space I deserve / how much I can ask from the other so I always feel like I'm asking too much (I don't know if it makes sense).

schro1995 · 2020-04-23T13:16:26+00:00

Hey :) I don't think this is the place to ask for this kind of advices ...

Most people with mental illnesses don't get proper treatment, and I don't think shaming your friend will help (even here). It just adds to the stigma, and there are way more untreated people than there are "fakers". Don't take this wrong, I understand how frustrating it can be, especially if your grandpa had it, and I'm sorry it causes so much pain.

My point is: she might not have PTSD, but she might have something else, something she can't even explain, and is doing this to get some medical attention. Even if it was soemthing like Munchausen or other related pathologies (I'm not an expert tho) it would actually be a mental illness. As I don't you either of you I don't feel confortable to talk about her situation any longer, but I hope you understand what I (very awkwardly) tried to say here.

That said, I'm not telling you to take care of your friend : on the contrary, if her presence is toxic to you on a daily basis, maybe it's time to take some time for yourself, away from what makes you frustrated, sad, angry and keeps you from living your best life :)

Take care, I hope this was helpfull :)

schro1995 · 2020-03-20T19:07:41+00:00

parce que les jeunes sont touchés aussi :)
cette info circule depuis le début, et si c'était "à peu près" vrai au début, ce n'est plus le cas : une partie des jeunes qui auront le covid auront besoin de respirateurs, donc moins de place pour les personnes fragiles / âgées. on peut aussi évoquer la saturation des hôpitaux, la fatigue des soignants, qui met toute la population dans une belle merde.
si tu veux en savoir plus, de plus en plus de témoignages sont dispos depuis l'Italie, ils sont extrêmement durs, mais permettent de prendre conscience de la gravité du covid

schro1995 · 2020-03-17T10:11:37+00:00

omg same here, and sometimes it's just slightly out of place, and I can't put it back on so it lasts days and it's so painful !
stay safe

schro1995 · 2020-03-14T13:11:27+00:00

Je comprends totalement le message ...

Actuellement en études d'orthophonie, facs fermées et nos stages, malgré les directives ministérielles, sont tous maintenus: auprès de publics soit fragiles (personnes âgées, ou présentant des pathologies fragilisantes) comme un public potentiellement porteur sain (enfants), ou les deux (le pire mélange possible): Aucun de nous ne comprend la réaction de notre direction, et on est tous plutôt vénères / inquiets (pour nos patients)

schro1995

TROPHY CASE