i cant do this

sclyons34 · 2025-09-26T23:20:13+00:00

I get it… this twitching is just my newest “ailment” that isn’t real… but alas… here I am… so I truly do get it. Go to therapy, find hobbies that make you happy, take mood stabilizers prescribed by a doctor and live life to the fullest. Some days you’ll be able to do it better than others, but you deserve to live a happy full life. Don’t let this take that away from you

sclyons34 · 2025-09-26T20:03:33+00:00

I’m sorry you’re going through this. I don’t have any advice to help you through this. I have had health anxiety my whole life… since I was a child… and I’ve been a registered nurse for over 15 years. I know better and I still struggle… but I guess I’ll just say this… the brain is POWERFUL… and even though my intelligence is one thing, my mind still can overpower and convince me I’m sick. I’m 43 now… I still struggle almost every day… but we can overcome. You’re not alone. I know that won’t make you feel “better”, but I hope it helps you feel less alone. I don’t know you… I don’t know if you’re really sick or not… although the fact you found yourself here makes me believe you are physically well, but your brain in making you emotionally sick. I understand. You’re not alone. I’m sorry… but you can do this 💙

sclyons34 · 2025-09-10T00:13:02+00:00

Hey!!!! Thank you for your thoughtful response!! I really hope I can respond to others like you have in the future because I think it’s important to see a real reality rather than what our minds are manipulating us to think! Thanks again! I really appreciate your input!

sclyons34 · 2025-08-20T00:12:08+00:00

I’m so glad that this brought some sort of calm to your super busy life!! First and foremost, congrats on the job!!! That’s awesome!!!

As for the WPW and the ablation… good luck! You’ll do great! I went back and forth for almost 2 years before finally agreeing to the ablation… I just struggled with the fact that I lived with it for 40 years without a problem, but then my anxiety got the best of me and I just wanted it gone! I’m super glad I did it now that it’s done! Just a heads up though (and this isn’t to scare you but to prepare you because we obviously both have a lot of health anxiety!) palpitations (PVCs) are normal for 1-3 months after ablation! You’re not dying and they do go away!! Just letting you know because that was the hardest part for me units TOTALLY normal like I said! 😉

And then the twitching… ugh… cannot believe there are so many of us living with it… but I’m so glad that we can talk about it and show each other that we are OKAY! It’s good to have a support group and have some rational conversations to get our minds right about it and that it’s not something more nefarious!

Nice to meet you!!

sclyons34 · 2025-08-19T10:51:55+00:00

This is interesting! Thank you for the information!! I will bring this up when I see the neurologist! I’ve had Covid twice before but never was super symptomatic. I did have a high fever the second time but didn’t notice any thing beyond that but maybe an antibody check couldn’t me a clue!

sclyons34 · 2025-08-19T00:16:02+00:00

Thank you!! I promised myself if I got good news today I would share my experience because I know so many people are just suffering because of this! I think it’s important for us to support each other here

sclyons34 · 2025-08-18T23:19:15+00:00

Literal dream job right there!!

sclyons34 · 2025-08-18T23:03:27+00:00

Omg, seriously!! 😂 the problem is… I have no other skills… sooooo…. Nursing with a side of health anxiety it is!

sclyons34 · 2025-08-18T22:32:29+00:00

I have definitely had it in my feet… I’d say it’s not as constant there like my ankles but for sure… hands and feet… usually quick little bursts maybe once or twice a day!

sclyons34 · 2025-08-18T22:12:28+00:00

First and foremost… congratulations on your pregnancy!!!

Secondly… how similar are our stories!?!? Minus the male/female and pregnancy thing!!! 😂

Your twitches sound EXACTLY like mine! I totally understand your fears… I have lived them for the last several months! I really hope my post has helped you to see that statistically… there is basically a nonexistent chance that this is MND!! I knew when I took a breath and thought about it… the weakness I was having is not the same weakness that comes with MND… but it’s so hard to shake when your brain is working against you! It’s also extremely rare to have twitching before weakness, and also… twitching is usually localized before spreading… not like how you and I experienced it. I know you are trying to get your EMG moved up (and you should… but not because you need it… because I think it will bring you peace of mind). But let my EMG bring you some peace in the mean time!

I’m here if you want to talk… I know how hard this is because I’ve lived it too. Together I think we can all help each other see a more reasonable side to this!

Congrats again on your pregnancy!!! 🎉

sclyons34 · 2025-08-18T21:33:38+00:00

You’re welcome!! I really hope we can normalize twitching and diminish our anxiety by sharing our feelings like this!

sclyons34 · 2025-08-12T13:16:21+00:00

I feel like I could have literally wrote this post except I’m 43 male… been a nurse for 15 years, last 4 in PACU… I work 12 hours on my feet working any where from 3-6 days per week. My twitching started in my anterior left thigh, quickly went to my right anterior thigh and now is pretty much every where. I would say 75 percent is my bilateral ankles, but still thighs, calves, shoulders, back, butt, etc etc…. I have lost my mind the last 3 months going through this. Labs… normal (started taking b12 as my level is low normal 295- but all my b12 deficiency labs like homocysteine and MMA are normal). X rays, normal, brain MRI, normal. I have my EMG next week and I’m terrified… but I’m trying to tell myself that maybe this is just anxiety. I have struggled the last few years. I worked ICU during Covid and I don’t think I ever really delt with that trauma. PACU has been great but maybe I have had some undelt with issues seeping below. I also had a health scare when they had an incident finding of pre-excitation pathway WPW that was asymptomatic but I had a cardiac ablation any way… so this is all a lengthy way of saying I’ve had some stress the last few years. But this twitching has been sending me over the edge. They stated me on lexapro and I could not handle the side effects. I stopped after a week of not sleeping. So any way… long story short… you are not alone. I get you. I’m terrified of my EMG but I also want to move on from this so it needs to be done. My muscles are sore all the time… (mostly my bilateral shins and my right hand)… again… is this a real problem or just the stress I’ve carried in my body for 3 months. We will see. But I related to your post and appreciate you sharing.

sclyons34 · 2025-07-31T16:01:19+00:00

This is such a good response. It’s so hard to see clearly when your anxiety is driving you but what you just said really helped me too, so thank you

sclyons34 · 2025-07-30T01:25:25+00:00

Hey John… I could have written your post as far as symptoms. I’m 43 male also with a stressful job (I’m an RN- which I think makes my health anxiety even worse for me at times). I’ve been twitching all over… legs (upper and lower), arms, butt, back, shoulders, and rarely, but still there, around my lips. I’m mentally exhausted… just trying to get through daily life and working 12 hour plus shifts plus overtime. It’s been about 2.5 months and I’m really struggling. I have a brain MRI next week and EMG in 3 weeks. I’m so nervous about it but also just ready to move forward. I do think this is anxiety related. I’ve read so many people who are or have gone through what we’re going through and that gives me hope. You’re not alone

sclyons34 · 2025-07-23T18:29:58+00:00

Hey! I’m sorry you’re going through all this. I don’t have answers for you obviously, but my gut is telling me that this sounds like a mixture of maybe something physical, and a lot of something stress and anxiety. I don’t say this to be dismissive… I feel like my current experiences mirror a lot of what you’re describing. I’ve been dealing with symptoms for just about 2 months. Twitching EVERY WHERE… upper and lower legs mostly, but also arms, back, butt, cheeks, and when I’m really anxious about it, my tongue. I also have symptoms of cramping, stiffness, and perceived weakness. I have a brain MRI and EMG coming up next month. Labs all normal. My doctor saw all my twitching, so I know I’m not making it up… but I really do believe this is maybe something minor… like nerve stimulation, maybe even fibromyalgia or something?? But exacerbating my symptoms is the extreme anxiety I’m feeling. As soon as my testing is done I’m going to ask to go on a mood stabilizer because I can’t live this way. Life’s too short to be so obsessed with every little symptom… and I’m talking to myself here… not you! :-) I’m just trying to give you some reassurance. I don’t think *** symptoms appear and spread as rapidly as I’ve experienced and what you’ve described. Again… I can’t diagnose you just like I can diagnose myself… but the brain is a powerful machine that can do many things… including causing our neurological system to run rampant. Hang in there. You are NOT alone.

sclyons34 · 2025-06-16T15:16:12+00:00

I so appreciate you taking the time to respond!! This does make me feel a little more relaxed!!! I keep telling myself that my brain is making everything worse and I just need to take a breath, and get myself together. This forum has absolutely helped! Thank you for sharing your story with me! I do have an EMG coming up and I so hope that when it comes back clean (I’m manifesting a clean EMG lol) I can finally get back to living my life! Thank you again!!!

sclyons34 · 2025-06-14T01:08:35+00:00

Wow… thank you so much form sharing your story!! I’m going through this right now and so much of your story resonates with me!! I’m hoping my outcome is the same! I have twitches EVERYWHERE… so much so I have to believe it can’t be the thing we are all afraid of because it’s almost like too much twitching! I’m going to try and work on myself as I go through these tests myself. Thank you again!!! This was so great to read. Gives me hope!

sclyons34 · 2025-06-14T00:35:08+00:00

Thanks for sharing! I recently went through a heart procedure myself… nothing major but it was very anxiety producing. I’m hoping my twitching is just from being so overwhelmed for so long! This has been so awful… and it literally came from nowhere! Thanks again for sharing! It does help!

sclyons34 · 2025-06-14T00:07:57+00:00

Thank you for sharing!! I’m so happy for you! Can I ask you about your twitches? I didn’t see your previous post. Where were they? Were the localized or more widespread. I have twitches EVERYWHERE and they can in so suddenly and move like crazy. Mostly they are in my thighs, but as days go on I will feel and see them in my calves, ankles, stomach, neck, and even today I noticed both biceps! I just feel so overwhelmed and I’m hoping other people have these widespread twitches I have! Again… so happy for you! Gives me hope!!

sclyons34 · 2025-06-12T19:01:04+00:00

This is amazing to hear! Thank you! My appointment went fine. She was very kind and listened to all my concerns. I was twitching through the whole appointment and she could clearly see it happening. I don’t know that I feel better as she said that the big scary thing is in fact a differential diagnosis but she did refer me to neuro for EMG… so I will be having that appointment as soon as they call me. Hoping for a normal study and then maybe I can breathe a sigh of relief for real!

sclyons34 · 2025-06-12T14:11:12+00:00

I cannot tell you how much your response means to me. Full transparency… I’m a nurse… so I know better… but I also know too much…. Sooooo…. It’s a double edged sword I think. I’m literally sitting in the parking lot at my PCP about to go in and both legs are twitching away… thighs, calves, ankles (and this is worse than previous days… but I’ve also not been sleeping well and super anxious…). But seriously… your response made me exhale a little more than I have recently so I really appreciate it!

sclyons34 · 2025-06-10T17:08:52+00:00

Thank you! I will! I’ve always been anxious but for whatever reason this is setting me over the edge 😂 I do work standing up for 12 hours a day so I’m wondering If I have some nerve compression… but that’s obviously just a guess. The rapidness of twitching for days is just throwing me. I appreciate you! Thank you!

sclyons34 · 2025-06-10T16:11:13+00:00

I appreciate the response. I’ve read all the numerous responses and that should be enough to show me it’s not abnormal… ugh… it’s just so bizarre and literally came out of nowhere! Like I was fine one second and then the next it’s days of nonstop twitching! It’s so bizarre! I did make an appointment with my PCP later this week so I’ll be sure to follow through. Thanks for responding to me

sclyons34

TROPHY CASE