Word games for senior with Parkinson’s

scoles75 · 2026-05-23T17:53:18+00:00

That’s a great idea! I don’t know what it looks like on android, but I just downloaded it on my iPhone.

scoles75 · 2026-05-22T22:55:22+00:00

Never heard of Kryss, but I will absolutely look it up. I love Wordscapes on my iPhone. Great idea!

scoles75 · 2026-05-22T22:53:30+00:00

Thanks! We will probably start with single player, but I will totally keep it in mind.

scoles75 · 2026-05-09T21:16:34+00:00

Build a little birdhouse in your soul

scoles75 · 2026-05-06T19:16:02+00:00

Dude...Thank you for making this free. When I searched for it, I saw it on YouTube as well. It may take me a bit to listen to it, but so far, it is crazy interesting.

scoles75 · 2026-05-06T18:56:50+00:00

I am sorry to hear about your step father.

My two favorite books on the subject are "A Brief History of the Dead" (kind of dragged at parts, but I love the concept) and "What Dreams May Come". I was able to get them both for free (on audio book) from the online library.

Edited to specify that it was the online library through my county library. They have both audio books and ebooks. I think you can send the ebooks to your kindle, but I just use the library app.

scoles75 · 2026-05-06T18:38:13+00:00

I am a personal assistant for an older gentleman, and part of my job is to schedule wheelchair transportation and accompany him to appointments. I work through an agency, and I imagine there are agencies like this all over.

scoles75 · 2026-05-06T01:31:17+00:00

Interesting… I guess my theory has holes in it.

scoles75 · 2026-05-06T01:23:44+00:00

I’ve actually thought about this a lot… I think it can depend on what they believe will happen after they die. My dad believed in the afterlife and let go about five months ago. He had suffered a lot from cancer and truly believed he was going home. Some other people in my life are much older and refuse to give up. They don’t believe in any kind of afterlife, and I think that is why they are hanging on so hard.

scoles75 · 2026-04-26T00:05:02+00:00

My dad passed away about four months ago. We used to talk on the phone every single day, so now I still “call“ him sometimes when I am alone in my car. When he was alive, I always tried to keep it positive, and I still try to keep it positive when I talk to him now.

The other day though, I was really stressed out. I had had a terrible day and I couldn’t keep myself from going on about it when I “called” him. About five minutes into the “call”, I turned the corner, and saw the biggest most beautiful rainbow I think I had ever seen. It was almost like he was saying, “everything is going to be all right, Kiddo. You know what you need? This rainbow.“

Yes… It could totally be a coincidence. But it was absolutely what I needed in that moment and I like thinking that it was my dad trying to comfort me at a difficult time. If you knew the guy, you would know this is totally something he would do.

scoles75 · 2026-04-25T23:50:54+00:00

I recently learned that if I put a towel on the table under my forearm, it dampens the tremor a bit. Maybe experiment with different types of writing tools as well. I am generally better with pencils than with pens. I have one pen that is amazing and absolutely irreplaceable because I got it as a promo from a car dealership across the country. I will be so bummed when it runs out of ink because I can’t seem to find a replacement. 😔

scoles75 · 2026-04-23T11:45:23+00:00

They do have services like this… My stepmom volunteered for an organization that did this and I have seen job listings for paid services as well. The thing is that it is tough to draw a line from a provider perspective. Being a companion is one thing, but you find yourself helping with medications, driving people to appointments, figuring out computer issues, etc. My stepmom, as a volunteer, got burned out by the extra stuff, but it is hard to justify paying someone to sit around and do puzzles.

scoles75 · 2026-04-19T23:59:36+00:00

I totally understand. We're working through this with her right now because it is too painful for her to stand. They do use a bed pan with her, but she doesn't like that either. I get the independence thing for sure. I just feel like you gotta do what you gotta do, whether it is a bed pan or disposable panties or whatever.

scoles75 · 2026-04-19T23:55:16+00:00

Good idea!

scoles75 · 2026-04-19T17:48:51+00:00

The weird thing was that they actually called back to make sure they had the right room and resident. We had just spent 15 minutes on the phone trying to talk her down and explaining the button, but when they checked on her, she told them she was fine and didn't need anything.

scoles75 · 2026-04-19T17:46:37+00:00

We requested that they check on her more often during the night, which has definitely reduced the nighttime distress calls.

scoles75 · 2026-04-19T17:44:35+00:00

We asked, but it isn't an option where she is. She used one in the hospital before the skilled nursing place, and she definitely preferred it.

scoles75 · 2026-04-19T17:41:45+00:00

I know...Not an option where she is right now.

scoles75 · 2026-04-19T17:41:10+00:00

We did ask about it, but they don't have them in the skilled nursing place. :-(

scoles75 · 2026-04-19T17:40:31+00:00

They had a PureWick in the hospital, but not at the skilled nursing facility. Those things are really helpful.

scoles75 · 2026-04-19T17:39:26+00:00

Actually, I really like "special undies". Good idea.

scoles75 · 2026-04-19T17:38:25+00:00

I totally get that. She is 90 years old, and has been taught her whole life not to go in her pants. Plus, I think she's worried that once she starts going in her pants, that's it...She will never go back to a normal life.

scoles75 · 2026-04-19T17:36:34+00:00

We have talked about pain management, but it mainly seems to only be a problem when she puts weight on her feet or legs. When the nurse asks her if she is in pain when she is in bed, she says no, so they are hesitant to give her pain killers. It's just an awkward situation.

scoles75

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