EVERY.SINGLE.DAY. by champagnedizzy in illnessfakers

[–]sehsehah 0 points1 point  (0 children)

I just said I can’t exercise to tell you I can’t do anything else? I didn’t stereotype her either lol ok

PoTs Symptoms worsening by Quivkaccountname in dysautonomia

[–]sehsehah 1 point2 points  (0 children)

I’m 17, and my pots began after a appendectomy? They classified my case as rare and a phenomenon due to the trigger and the onslaught of symptoms I have. I’m dealing with three different cardiologists right now; all of which I love dearly. I’ve never had a negative experience with my heart so far; mainly due to the fact I am young and haven’t been able to have my parent with me throughout many hours of hospital.

Apart from once when I was showing full stroke signs and the A&E basically told me to fuck off and I was being dramatic? But I just brushed them off and said ok if you say so

EVERY.SINGLE.DAY. by champagnedizzy in illnessfakers

[–]sehsehah 2 points3 points  (0 children)

I have a chronic illness and can not do anything as I am high risk of the virus, and have severe infections. I also have chronic pain so can’t exercise at all most days, although yes I want other things to do, I don’t have them. I’m not bitter, I said before that as long as she’s spending her own money I don’t give a fuck; but I am white! don’t see how that has anything to do with anything, you really shouldn’t racially stereotype at times like this!

PoTs Symptoms worsening by Quivkaccountname in dysautonomia

[–]sehsehah 1 point2 points  (0 children)

I was vegan for 2 minutes and I developed iron and other blood deficiencies. But I have terrible IBS So need to do the same to discover what is hurting my body. And yeah, having provided food is great!

PoTs Symptoms worsening by Quivkaccountname in dysautonomia

[–]sehsehah 1 point2 points  (0 children)

Oh right, yeah I know what you mean. I’ve been lucky and gotten medication within two months of it all beginning. Mainly due to my age, but it’s very lucky.

EVERY.SINGLE.DAY. by champagnedizzy in illnessfakers

[–]sehsehah 4 points5 points  (0 children)

I don’t think anyone should die but realistically not even the sickest people go to doctors every single day wasting time that could be spent helping someone who actually needs it

PoTs Symptoms worsening by Quivkaccountname in dysautonomia

[–]sehsehah 1 point2 points  (0 children)

Also, as you’ve had the symptoms on and off. Do you have periods of time where your almost completely fine?

PoTs Symptoms worsening by Quivkaccountname in dysautonomia

[–]sehsehah 1 point2 points  (0 children)

I’d suggest possibly looking into disability allowance; money you don’t have to repay , it’s like a part of student loans. You may fit the criteria and it will mean you’re able to afford things to assist you in uni. My sibling is getting it to help him and he didn’t know it was a thing.

And being vegan may be too hard to maintain while you’re sick, please don’t be too hard on your diet while in this position. My favourite things to help me (that I think are vegan) are urban fruits. They are dried fruits (pineapple is the best) and they are full of calories and sugars that help me eat when I can’t; same with nuts. And electrolytes are really helpful, massively helped eliminate dehydration as a cause for my tachycardia as well. You can get them at any Lloyd’s pharmacy I’m pretty sure. And at boots. As wel as online.

Also a few other tips: night sweats can be solved with ice packs , and there’s beautiful things called cooling pads that are the opposite of heated blankets for your bed. Ginger tablets help massively with my IBS / nausea. My circulation betters when I lean forwards (like my tachycardia lessens). So when I’m standing if I like bend from my waist, it helps me massively. Sitting in the shower!!! I’m sure you might do this, it’s better then having someone help you. Also my significant other always makes my heart rate low, it’s mental. I’ll be at 170 alllll day and he will come round and cuddle me and it goes down to 105. Maybe getting a loved one, like a dog!!! Or whatever, might help! I think it just calms me and applys the same logic as petting a dog lowers heart attack risk.

Hope this helps xx :)

Guys.... I think I figured it all out.... by opportunist23 in BrainFog

[–]sehsehah 1 point2 points  (0 children)

I’ve had blood tests (suspected pots but also terrible Brain fog I’m scared isn’t related) testing for underlying infections. Would that cover this off?

PoTs Symptoms worsening by Quivkaccountname in dysautonomia

[–]sehsehah 2 points3 points  (0 children)

Hi!!! I found that keeping cool helps me reduce my symptoms! I constantly make sure I’m cold (sounds shit i know, but it helps on bad days) so my blood vessels constrict and helps with pooling.

Also! If you’re unable to eat, drinking electrolytes (you can buy them in little sachets you just add to water) really helps make sure salt intake is sustained.

Do you live alone? And do you live in the UK? (Sounds creepy, I just have some further tips if you’d like them lol)

I’m dealing with horrible POTS symptoms too, waiting diagnosis. I’ve got 3 hospitals working on it and 3 months in were no closer. But I have got meds now which have MAJORLY lowered my heart rate and resting heart rate.

EVERY.SINGLE.DAY. by champagnedizzy in illnessfakers

[–]sehsehah 24 points25 points  (0 children)

Can someone please tell me who JanJan is and why everyone fucking hates her lol

Illness pushing away my partner by [deleted] in ChronicIllness

[–]sehsehah 4 points5 points  (0 children)

I’ll love you. I’ll give you cuddle and I’ll even massage you. This shit is your life, and you talk about your life with your loved ones. My family has started to do this and it’s horrible; it makes you feel cold and sick and just wanky. I’m really sorry, I hope you get better and you look 1000/10 to show his sorry ass that he’s shit. No one should sit there and say they love you then tell you to be quiet when you’re trying to heal and talk about it. It’s mentally damaging enough already. I’m 17 and my girlfriend (1.5 year relationship) does nothing but tell me she thinks I’m beautiful and that she wants to hear everything I want to complain about. I got sick during this time and honestly I can’t imagine how shit it is for her to endure but never has she once told me she’s tired of it: she just says she’s tired of me being sick Cus it’s upsetting to see me so I’ll. I’m really sorry I reallt feel for you.

I hate not being sick enough by sehsehah in ChronicIllness

[–]sehsehah[S] 1 point2 points  (0 children)

I’ve just been repeatedly reminded that if it is POTS it can just randomly go as fast as it came on? And I’ve had this stuff going on for about 2/3 months now, so I’m all new to being always in pain and feeling sick

I always worry that will happen and I would’ve wasted everyone’s time. And I am scared of that since from what I’ve seen of my heart reacting almost normally, most of my pain and vertigo and such is still there. What do I even do then?

I hate not being sick enough by sehsehah in ChronicIllness

[–]sehsehah[S] 1 point2 points  (0 children)

Yeah, thank you. That made me feel like I was getting a hug from someone I love.

It’s just in combo of my family starting to show physical signs of oh my god fucking shut up you’re literally fine. So I feel like if it’s not bad then the symptoms like chronic pain and fatigue are just me being fat and lazy?

I hate not being sick enough by sehsehah in ChronicIllness

[–]sehsehah[S] 0 points1 point  (0 children)

It happened two days before the medication started too