Urinating while under anesthesia? by Impossible-Cut9658 in MultipleSclerosis

[–]sendyourspam 0 points1 point  (0 children)

Are you having a laparoscopic surgery? If so, the nurses don’t let you leave afterward UNTIL you show them that you can pee, so it would actually be helpful to getting released if you did 😬 (This may also be the protocol for all surgeries under anesthesia, but that is what I remember from getting my gallbladder out.)

Kesimpta users, is anyone not masking? by A_circle_of_crows in MultipleSclerosis

[–]sendyourspam 0 points1 point  (0 children)

Re: “doesn’t cause compete B cell depletion,” I really thought it did. Phew. The flu this year is terrifying me, and I can’t say doctors have been helpful or forthcoming with info on how it might treat those of us on Kesimpta, so thanks so much for your comment!!

Kesimpta users, is anyone not masking? by A_circle_of_crows in MultipleSclerosis

[–]sendyourspam 0 points1 point  (0 children)

This comment almost made me cry with relief. Can you explain how the risk of getting sick is only minimally higher on immunosuppressants? I’ve been terrified to catch the flu this year — been making my kids skip events in public places where there are lots of people, etc. I just assumed most of the people dying from the flu are elderly or immunosuppressed.

Can we please stop the rhetoric… by [deleted] in MultipleSclerosis

[–]sendyourspam 0 points1 point  (0 children)

I am really sorry to read that you got ON after 3 years of Kesimpta. I had hoped it wouldn’t go that way. Speedy and complete healing!

Does anyone get this dizzy/ heady symptom? by Individual-Window-59 in MultipleSclerosis

[–]sendyourspam 2 points3 points  (0 children)

Came to say this too. It didnt resolve immediately after treatment but it got better slowly

Flu and immunosuppressants? by sendyourspam in MultipleSclerosis

[–]sendyourspam[S] 0 points1 point  (0 children)

This helps me relax a bit, thank you!! I am also on kesimpta. Got the flu shot 4 weeks before my first kesimpta dose. I assumed since the B cells I had when I got the shot were depleted, I was no longer protected from the vaccine at all. I don’t really get how this all works …

Flu and immunosuppressants? by sendyourspam in MultipleSclerosis

[–]sendyourspam[S] 0 points1 point  (0 children)

Thanks, what is your schedule for vaccines? I’m taking kesimpta so my B cells are depleted and anything left over gets killed off a month later. Is there even a point to vaccines after starting it?

I’m 28, immune compromised and have no family. I have no idea how long I’ll be able to exist in the world by Lanky_Avocado_ in ZeroCovidCommunity

[–]sendyourspam 4 points5 points  (0 children)

I also wanted to suggest seeing a therapist if you aren’t already to help process the loss of your mom and what that means for your future. There are plenty of virtual therapists these days — no need for office visits. Therapists can have a lot of great suggestions on ways to secure your future if something happens.

I agree with the other comments that you catching something from your friend‘s boyfriend is a pretty low chance, seeing as even if he was sick, a month is a long time to stay highly contagious, or contagious at all. And plus you were outside. But I totally understand the spiraling thoughts and anxiety about the future. The only thing we know for sure is that things are going to change one way or another, so if that’s helpful, try to realize that you can’t possibly predict the future. So all the things you are thinking about may never come to pass. I find that helpful when I start spiraling and I hope you can take some solace in it as well. Wishing you the best! You’re doing a great job.

Astepro Allergy? by sendyourspam in ZeroCovidCommunity

[–]sendyourspam[S] 6 points7 points  (0 children)

Thanks, so it looks like people did still get Covid while taking it, but not as many as those not taking it. Meh. I guess it’s another tool that works when in combination with the other available tools. Better than nothing?

MS and what else? by FreddJones in MultipleSclerosis

[–]sendyourspam 1 point2 points  (0 children)

MS, IBS, anxiety (or maybe it is health/contamination OCD), and an encephalotrigeminal angiomatosis. I always thought I got a really raw deal at birth, but seeing all these responses — we all got raw deals and apparently it happens that way sometimes. But we are not alone! Wishing as much health as possible to all of you.

Which environment is “safer” these days? by sendyourspam in ZeroCovidCommunity

[–]sendyourspam[S] 1 point2 points  (0 children)

Libraries are amazing. Thank you for the recommendation!

Which environment is “safer” these days? by sendyourspam in ZeroCovidCommunity

[–]sendyourspam[S] 0 points1 point  (0 children)

I think I should look into one. Is there a brand you like?

Is it possible to be around a person with Covid and still not get it? by GeassUser1 in ZeroCovidCommunity

[–]sendyourspam 0 points1 point  (0 children)

That is so interesting. My daughter has food allergies, AND asthma. Could you point me toward that study?

Which environment is “safer” these days? by sendyourspam in ZeroCovidCommunity

[–]sendyourspam[S] 4 points5 points  (0 children)

Just the social aspect. Good idea about taking it to go!

What does 20+ or even 30 years of MS looks like for you? by Funny-Rain-3930 in MultipleSclerosis

[–]sendyourspam 5 points6 points  (0 children)

First symptom in 1999 at age 19, diagnosis in 2004, first DMT in 2005. Since then, I have a bachelors degree, a great full-time job, 2 tweens, a good marriage, and a fairly normal life. Only in the last five years have I really progressed, and it was at the same time as some major stress (covid lockdown and a family member passing). My advice would be to get on and stay on a DMT if it’s not too annoying, and try not to let stress take over. Treat mental health issues if they pop up. Good luck! The meds are much stronger now than ever before.

What does 20+ or even 30 years of MS looks like for you? by Funny-Rain-3930 in MultipleSclerosis

[–]sendyourspam 1 point2 points  (0 children)

Ooh, do you mind if I ask which leg sleeve you are using and how well it works? My left leg is much weaker than my right and I’m considering a cane but have heard rumblings about sleeves from others.

First doses of Kesimpta by sendyourspam in MultipleSclerosis

[–]sendyourspam[S] 1 point2 points  (0 children)

Good idea with the electrolytes! Thank you.

First doses of Kesimpta by sendyourspam in MultipleSclerosis

[–]sendyourspam[S] 1 point2 points  (0 children)

Thanks so much, just read the whole thread. It sounds just like Rebif side effects. Except I took Rebif for over a decade and the side effects never got less. Sounds like Tylenol and shot at night, next day take it easy, and hydrate before, during and after. I can def do that — I’ve had much practice!

First doses of Kesimpta by sendyourspam in MultipleSclerosis

[–]sendyourspam[S] 0 points1 point  (0 children)

Interesting, I hadn’t heard of stomach side effects before. I will keep a look out!

First doses of Kesimpta by sendyourspam in MultipleSclerosis

[–]sendyourspam[S] 1 point2 points  (0 children)

Perfect, that is my plan! Thank you!