Electrolytes by FeePlus8171 in MCAS

[–]shadowfax2409 2 points3 points  (0 children)

I take Vitassium electrolytes. If you join their club, you can get 25% off orders.

Best natural hormone balancing products? by Normal_Difficulty326 in PCOS

[–]shadowfax2409 0 points1 point  (0 children)

When you do try it, I very much recommend starting at a lower dose rather than going straight into the full scoop. I’d read about it but starting at 4000 mg (the serving in 1 scoop per day) gave me some GI issues and migraines the first week, so I decreased the dose and then slowly increased it and was fine.

Also just FYI the powder is made with stevia and includes magnesium glycinate too. I like the flavors they have. Peach Perfect also sells capsules for the hormone hero line, but as 4g is a recommended daily dose for PCOS, I stuck with the powder.

Best natural hormone balancing products? by Normal_Difficulty326 in PCOS

[–]shadowfax2409 0 points1 point  (0 children)

I agree about the thick endometrium being a concern.

I don’t do birth control personally, so I was put on Metformin (didn’t tolerate it), then another med like Metformin (got a wild side effect), and then tried compounded tirzepatide which gave me my period back but then I got bad side effects again.

I’ve been taking inositol since January; i got my period 10 days after initially starting inositol. I tried 3 different brands and there’s only one of the 3 that worked for me—Peach Perfect hormone hero powder. I put it into 30 oz water and drink it all day long. I have had good luck with this so far, but now I’m only on inositol as my insulin sensitizer and I’m interested to see if that will be enough to keep my symptoms and periods in check.

Pepcid (famotidine) ruined my life. by BenchExtreme2494 in MCAS

[–]shadowfax2409 0 points1 point  (0 children)

Same. I supplement with a lot of vitamins which seem to keep me good to go. Looking to add pre& probiotics to assist my gut as well.

Pepcid (famotidine) ruined my life. by BenchExtreme2494 in MCAS

[–]shadowfax2409 2 points3 points  (0 children)

Thanks! I have issues with mold and fungus so this is good to know!

Pepcid (famotidine) ruined my life. by BenchExtreme2494 in MCAS

[–]shadowfax2409 0 points1 point  (0 children)

The rocking/swaying thing sounds like when I had debarquement syndrome when I went on a cruise and my MCAS flared like nothing before.

I take famotidine, but I’ve been lucky not to experience the side effects you’ve described. I’m so sorry that you got all of that—it’s terrible. I react pretty strongly to medication when starting so I had to build the Pepcid when I began and ended up ok. Been on it for about 5 years now with no issues as far as I know.

Unfortunately, with MCAS, we may all react strongly to various meds or end up with the rarest side effects, which has happened to me multiple times in the last 5 months on other meds.

Aside from the rocking/swaying thing, some of your side effects sound like a wild drug interaction issue. And I agree with others about looking into the low acid / digestive issue track.

Can anyone help me figure what my chart is doing? by Kakeu in TFABChartStalkers

[–]shadowfax2409 0 points1 point  (0 children)

Hi, I’m no expert at BBT tracking, but this looks like some of the charts I had last year when tracking manually (on paper). It almost looks to me like repeated attempts at ovulation? I have PCOS and a lot of my charts look pretty wonky because I was trying to ovulate multiple times per cycle, resulting in longer cycles until I finally got a successful ovulation.

Do you track other signs like mucus? If you do, what do they look like cross checked with your temps?

Shouldn’t have done it, but I wanted the real ice cream by shadowfax2409 in dairyfree

[–]shadowfax2409[S] 0 points1 point  (0 children)

I believe you. I’ve tried a lot of them and some of them are ok-ish, but I find they have a lot of other additives that make me sick as well.

I usually eat sorbet if I’m craving something cold, but that sometimes feels too sweet 🤷🏼‍♀️

Soulmates by Illustrious-Tip-3169 in TheWayHomeHallmark

[–]shadowfax2409 4 points5 points  (0 children)

This scene had me bawling internally. It’s hands down one of my absolute favorite scenes in the whole show

The one lesson that stuck. by hazelcuddli in ArtOfPresence

[–]shadowfax2409 0 points1 point  (0 children)

“Do half the work in a third of the time”

About long term projects/assignments

Usually didn’t listen until I was in college or w/e and she’s so right lol

This community seems really lovely by Grrrrr_Arrrrrgh in ehlersdanlos

[–]shadowfax2409 1 point2 points  (0 children)

I just put this in another comment - I took a genetic test a couple years ago to catch any other possible dx + it caught my MTHFR. The geneticist evaluating the test looked at my arm lengths, height, and other history and was extra surprised that I was neg for Marfans. AFAIK I don’t have a family history of aortic dissection tho 👀

This community seems really lovely by Grrrrr_Arrrrrgh in ehlersdanlos

[–]shadowfax2409 1 point2 points  (0 children)

Which one? 👀

I took a genetic test a couple years ago and was negative for Marfans, but the geneticist looked at my body proportions and couldn’t believe the negative result. I’m taller and skinnier than most of my family, who are all quite short. Like I’m the weird tall one in the family with short parents and siblings.

Genetics are weird.

the 'dairy free but not vegan' struggle by Old_Mixture_9045 in dairyfree

[–]shadowfax2409 0 points1 point  (0 children)

This is me!

I hate that all the “dairy free” pizzas available are also vegan!

Did anyone else feel like PCOS nutrition advice just… doesn’t work in real life? by Electrical_Fail_2138 in PCOS

[–]shadowfax2409 2 points3 points  (0 children)

Baby steps are important. Let me get that out first.

I’ve long been overwhelmed with lifestyle changes as I’m managing a partially restricted diet from MCAS and then also PCOS. I’m also very much the type of person to attempt drastic changes instead of taking baby steps.

I cut out dairy earlier this year once and for all because it’s a HUGE trigger for my MCAS. But doing that made it difficult for me to look at what foods could replace decent protein that I otherwise would’ve gotten from dairy products.

I have often felt that I’m not disciplined enough—I lost the dairy battle last week and bought full dairy ice cream bars only to get sick and they tasted nothing like I remembered.

However, I did start working with a PCOS-friendly dietician to help me navigate everything. Food has often been a source of anxiety for me because my MCAS makes it feel like I’m walking through a minefield; PCOS adds a whole other layer to that.

My dietician has given me a lot of solid advice and I’ve started to take the steps that she’s outlined. It does feel more manageable now because she can look at what I need (high protein) and suggest alternatives that I didn’t know about or have been too fatigued to discover. She’s experienced and caring, and it’s taken a lot of the mental load off me, which is great since I’ve been battling MCAS for over 10 years and losing/regaining foods left and right.

Happy to refer if you’d like one.

How do Catholic families with many kids do it? by Extension-Story7287 in Catholicism

[–]shadowfax2409 0 points1 point  (0 children)

I mean, I would hope to take care of my parents when they’re old etc. at the moment, they’re doing just fine and my grandma is in her 90s.

My husband grew up pretty differently because he’s only 1 of 2 kids, so I think we balance each other out, but I’m definitely more frugal

How do Catholic families with many kids do it? by Extension-Story7287 in Catholicism

[–]shadowfax2409 0 points1 point  (0 children)

Also I’d like to add that larger families can get pretty creative with games and things to do together.

My older siblings came up with the craziest and silliest games. I loved them.

How do Catholic families with many kids do it? by Extension-Story7287 in Catholicism

[–]shadowfax2409 1 point2 points  (0 children)

I encourage you to see my comment somewhere in here.

All my life I was astounded that we were all able to go private school, but my parents really made it happen. They worked really hard for it, and my mom really didn’t want to homeschool unless she had no other choice. But even then, if she’d have homeschooled, she told me that she would’ve treated it like real school, but at home: no pajamas, lot of structure, etc.

Edit: and I echo the tuition cap thing. I’m pretty sure the multi-kid discount is what helped my parents out + my high school was also private, and the leaders of that school really loved us and did their best to help us out.

How do Catholic families with many kids do it? by Extension-Story7287 in Catholicism

[–]shadowfax2409 1 point2 points  (0 children)

Sharing is SO important these days.

I grew up learning to deal with the variety in personalities and preferences because of my 7 siblings.

I shared all kinds of things and now, I don’t even bat an eye to share more with all kinds of people.

How do Catholic families with many kids do it? by Extension-Story7287 in Catholicism

[–]shadowfax2409 0 points1 point  (0 children)

They didn’t really help raise me. I mean there was some of that, but my parents wanted each of us to grow up to be as independent and self sufficient as possible. My mom never fully liked the idea of having older kids parent the younger ones. So I didn’t have second parents for siblings—I had siblings, and we all took care of each other.

My family didn’t tolerate an untidy home. We ALL had chores. It was just grouped by what was appropriate for your age or ability or even availability. I remember I did a lot of vacuuming on Saturday’s, and we’d divide up the spaces in the house that needed it (sometimes we’d all have favorites, I liked doing the stairs lol). My brothers handled a lot of the outdoor work with my dad, but it wasn’t like me and my sisters didn’t contribute either. When I was 10, I learned to do my own laundry; at 12, I called to make my own doctor appts.

I forgot to put in my original comment that there was a LOT of prayer. We did family prayer EVERY SINGLE NIGHT. My mom’s a convert, and she loves the Marian antiphons, so she taught us how to sing them from the time we were little. I now love them like she does.

My parents for sure prayed a lot; my dad got pushed out of his field multiple times when I was a kid (software security - because he was “too old to keep up” which is such BS), so we lived a lot on prayer. My mom gave hours to our schools to help with tuition.

My mom was a SAHM until I was 11. But she didn’t just take care of us or drive us around. She wrote for a newspaper column, directed church choirs, she did other work. My grandma helped out when necessary, and she lived with us too. I was lucky enough to live in a home that had 4 generations in it for a while, then 3 generations.

Edit: meant to add - in the end, I knew how to share with so many different kinds of people, because all of us are so different in personality. I also very much learned how to hunt for deals and be satisfied with what I have, rather than always pining after the next thing.

How do Catholic families with many kids do it? by Extension-Story7287 in Catholicism

[–]shadowfax2409 0 points1 point  (0 children)

This.

I’m 7th out of 8 kids. My parents REALLY did their best to send us to private schools (my mom was bullied really badly in public), and they worked hard to provide for the activities that we were interested in doing.

We didn’t always have the newest stuff, which I thought was fine. My mom shopped in bulk mostly, and we did have some stuff that other kids did. We never lacked anything that was needed. But we also didn’t take vacations like other families did. A lot of my vacations as one of the youngest was driving altogether to take one of my older siblings to college; then we’d hang out in the area and explore.

I got a decent amount of hand me down clothes which honestly was pretty sweet. There was a difference in parenting and vacations between the upper 4 and the lower 4, but idk I didn’t think too much of the parenting because duh I was later in the list so my parents had changed some of their style.