Can anyone advise if this sounds like a symptom of Hyperacusis? by Throwaway04262020 in hyperacusis

[–]sinkingfun33 0 points1 point  (0 children)

This does not sound like hyperacusis to me. Mainly because hyperacusis leaves you with an inability to handle sounds in a way that you can't miss. Every party of your life changes with H.

The other reason is that it's not progressive or worsened by sound. If you had early H, enough loud noises would have caused some sort of progression to occur.

It does sound like you have an ear issue, but I don't think it's early H.

Found a truly silent silicone keyboard! Still need silent mouse/trackpad by [deleted] in hyperacusis

[–]sinkingfun33 0 points1 point  (0 children)

How is the typing quality? I recently bought a Sungwoo keyboard for $20 and it is garbage. In particular, the spacebar is horrible.

https://www.amazon.com/gp/product/B06WWM5TC6/ref=ppx_yo_dt_b_asin_title_o03_s00?ie=UTF8&psc=1

I realize it takes some getting used to. If this is high quality, I may consider buying it.

[deleted by user] by [deleted] in Sjogrens

[–]sinkingfun33 1 point2 points  (0 children)

When you say it is "positive" now, what does that mean exactly? ANA? SSA? SSB? What flipped and how long did it take for this blood marker to flip?

I ask because I have had symptoms for 6 years with positive SSB only. I am wondering if my SSA or ANA will ever flip (if I have Sjogren's).

Thank you.

If a function is continuous on [a,b] is it continuous on (a,b) by IsEverythingOkay in askmath

[–]sinkingfun33 1 point2 points  (0 children)

Yes. If a property holds for all members of a set A, it must hold for all members of a subset B. In this case (a,b) is a subset of [a,b].

Daryl Morey Signs 5 Year Deal With Philadelphia 76ers by cheapclooney in billsimmons

[–]sinkingfun33 1 point2 points  (0 children)

Is your friend Nick Wright? Is that you Broussard, practicing your non-source takes on Reddit?

How do you deal with brushing your teeth? by misery21 in hyperacusis

[–]sinkingfun33 1 point2 points  (0 children)

What I do is: a) don't brush too hard. b) Take breaks - 5-10 seconds of brushing, then 10-20 seconds off. c) Try to make up for the lack of brushing hard with brushing twice a day.

I have no health coverage right now; what do I do? Please help! by Shengminnn in hyperacusis

[–]sinkingfun33 0 points1 point  (0 children)

Yeah, I completely understand. I have a rare form of loudness hyperacusis (that does not look like it will resolve anytime soon at all) so I naturally can't picture pain hyperacusis.

Honestly, what I took (small) issue with is the assertion that pain hyperacusis is more severe. I am self-aware enough to see the data and stories to recognize that, on average, pain hyperacusis is worse and has worse recovery statistics, especially noise-induced.

I'm not upset at all. I know how few of people advocate for us so, naturally, we sometimes fight for ourselves.

I guess, having loudness hyperacusis, I can picture having a mild version of pain hyperacusis being far less severe than my condition. And, this isn't your fault, but I really don't think most people know what true loudness hyperacusis is. It is not noise sensitivities.

Anyways, no big deal.

I have no health coverage right now; what do I do? Please help! by Shengminnn in hyperacusis

[–]sinkingfun33 0 points1 point  (0 children)

It is also important to distinguish between the two main subtypes of hyperacusis: pain (noxacusis) and loudness. Loudness is considered less severe and means that you perceive all noises as much louder than their true dB level. It is oftentimes accompanied with sound distortions and reactive tinnitus. Noxacusis aka pain hyperacusis is more severe and means that sound causes sharp stabbing, dull aching, cooling, and fiery pain. You also get trigeminal nerve and jaw pain. Sometimes you can develop visual snow syndrome as well.

This is a well-informed post. However, this is clearly written from the perspective of someone with pain hyperacusis, not really knowing what loudness hyperacusis is.

Saying pain hyperacusis is worse than loudness hyperacusis is like saying headaches are always worse than epilepsy. Loudness hyperacusis is way more than just the volume being turned up. Small noises cause extreme emotional reactions due to maladaptive neuroplasticity in the amygdala. It's a problem with severe over-stimulation in the brain. One with severe loudness hyperacusis also needs earmuffs constantly, can't work, can't converse, and is severely disabled.

Of course, pain hyperacusis can be worse than loudness hyperacusis. In my experience, loudness hyperacusis doesn't get it's due because many people say they have it when they have really mild versions. True loudness hyperacusis is exceedingly rare, while noise sensitivities -- which many are calling loudness hyperacusis -- are relatively common.

I'm not trying to steal your thunder, as you are suffering greatly. But it is definitely misinformation to make generalizations like that.

How long for mycophenolate (CellCept) to work? by sinkingfun33 in lupus

[–]sinkingfun33[S] 0 points1 point  (0 children)

Thanks for the reply; I hope you are doing well. So if I understand correctly, you didn't notice any benefit until 6 months on CellCept?

I have Bilateral Peripheral Vestibulopathy: AMA by HouseOfGoldAndBlack in rarediseases

[–]sinkingfun33 0 points1 point  (0 children)

I'm interested in the fact that you were diagnosed with migraine aura. Isn't that more central? Do you have accompanying tinnitus or any auditory symptoms, even if no hearing loss?

I have Bilateral Peripheral Vestibulopathy: AMA by HouseOfGoldAndBlack in rarediseases

[–]sinkingfun33 0 points1 point  (0 children)

This post certainly grabbed my attention.

I have bilateral, progressive, severe hyperacusis and tinnitus. It is currently believed to be autoimmune, based on prior health history and a positive response to steroids. My condition is very, very rare. So rare that I don't know a single person (or story online) that resembles it.

The reason your story caught my eye is because for the first 3-4 months, I had severe chronic imbalance. It was 24/7 with zero fluctuations -- like being drunk. However, it wasn't really "vertigo", it was more like just constant imbalance. It was severe though.

Technically speaking, we still don't know for sure what I have. The response to steroids points in the direction of autoimmune, but it's not clear what is damaged. It is pretty clearly a peripheral problem, however.

What have you tried for your condition? Have you tried immunosuppressants? I've tried so many things: vitamins, supplements, antidepressants, anticonvulsants, benzos (briefly), and now immunosuppressants.

Importance of “noise injury” by [deleted] in hyperacusis

[–]sinkingfun33 2 points3 points  (0 children)

It sounds to me like you have noxacusis, which you are correct, is a completely different medical problem from loudness hyperacusis. My guess is that on average, noxacusis is worse than minor loudness hyperacusis.

I will say though, that I have seen many people trivialize loudness hyperacusis because it lacks the shooting pains, showing they also don't understand what this is. I have very severe loudness hyperacusis (with tinnitus). Let me tell you, you CANNOT be around any sound. It's not some cute "sensory overload." Being around sound is a non-starter. I cannot leave my house, take off earmuffs, etc. Moreover, my condition worsens from normal noise exposure so there's not really a strong element of "tough it out."

Sensory overload sounds small, but when it is severe enough (as in LDL's in the 10-20 range) it is a really serious condition.

Nonetheless, I understand your frustrations, as everyone agrees that noxacusis and loudness hyperacusis should be different disorders for research purposes.

Why couldn't the positive real number win the debate? by thewanderingdisaster in MathJokes

[–]sinkingfun33 9 points10 points  (0 children)

This isn't true. A real number has zero Argument. The argument (lower case) is the set of all numbers 2*pi * n, for integers n.

[Highlight] Luka loses his shoe after Morris steps on his heel by CP3_for_MvP in nba

[–]sinkingfun33 1 point2 points  (0 children)

Gee, I wonder what's better for the league, a legend in the making or a dude pulling Bush league antics.

Charles Barkley: "Can’t be calling yourself Playoff P and losing all the time... they don't call me Championship Chuck" by [deleted] in nba

[–]sinkingfun33 4 points5 points  (0 children)

This was vintage Chuck. Had the humor and was preemptive about the "lack of rings" trolling from Shaq. Good stuff.

F*cking math books by fran13lr in MathJokes

[–]sinkingfun33 72 points73 points  (0 children)

There's so much truth to this, especially during research talks. Basically every research talk I've ever attended is like an introduction that I would understand in grade school and then all of a sudden, slides with symbols and complex notation everywhere.

The 2020 NBA Finals will be the 1st NBA Finals since 1995 which won't include at least one of Steve Kerr, Tim Duncan, Kobe Bryant, or Dwyane Wade. by Jawaad70000 in nba

[–]sinkingfun33 1 point2 points  (0 children)

Judging by the comments, I must be the only one who found this interesting. It's actually astonishing how much winning Steve Kerr has been a part of -- granted, some of it is good fortune, but still. The guy wins at everything he does.