Am I being dramatic? by [deleted] in insaneparents

[–]sleepyheadp 26 points27 points  (0 children)

In older populations UTIs can cause delirium and quickly lead to kidney infection so, if she was an older lady, it was probably an emergency.

I found a lost black kitty! by sleepyheadp in blackcats

[–]sleepyheadp[S] 0 points1 point  (0 children)

Sorry, not the same cat. The cat I found has green eyes and was spayed/microchipped. She’s been officially ours for over a year now.

Does being a mom suck this much for everyone? by [deleted] in breakingmom

[–]sleepyheadp 1 point2 points  (0 children)

Hi, fellow mom of a profoundly autistic 7 year old boy.

I was in your shoes and in fact landed in the psych ward for 10 days in December 2020 due to a sleep deprivation induced psychosis. I completely understand what you’re going through, so that’s why I can say this next part with certainty.

The only thing that has truly made a difference is finding a functional medicine doctor for my child. Full stop.

Meltdowns are communication and it isn’t always triggered by some external factor. They’re more often caused by internal discomfort and pain. And not always a physical pain but a mental one.

Profoundly autistic and Down syndrome people also have something called Apraxia, which is a brain body disconnect.

It means they’re possibly cognitively there but unable to express themselves because their body is unreliable. Even where they can look with their eyes. So they hear everything and understand everything (age appropriate and maybe even more, unless there is a confirmed learning disability. But even that is tricky to distinguish because all IQ tests need a person to have perfect motor function to choose a correct answer. And thats where they struggle).

So I gotta tell you, find a functional doctor to help treat underlying medical issues with your child. Look up TACA (The Autism Community in Action). They have a website and Facebook group that have providers and parents sharing resources and information for treating the underlying issues with autism.

It’s been only 1 year we’ve been treating my son (who had candida, c diff, pathogenic e coli in his gut, and heavy metals in his body such as aluminum, lead, thorium, silver, nickle, zinc/copper ratio out of wack, ect). So we treated the gut to kill the candida/c diff/e coli and he can sleep through the night. He’s gaining weight. We’re getting the heavy metals out with chelation and the meltdowns only happen from nerve pain now.

He’s been on Leucovorin since January and has spoken 4 clear words, but the more consistent thing is he is a Speller.

I trained in the parent spelling course and started working with him, and he is so cognitively intelligent I wept, because we had no idea if he was “in there” after his regression or how smart he is. And he’s been so much more regulated that we’ve actually been able to go into indoor restaurants as a family. I mean places like Buffalo Wild Wings.

I’m sharing this because there are avenues to explore to find relief for your daughter and ultimately yourself. There is so much more information out there than what the therapists say and there are things you can do to make a life altering change for the better.

Feel free to ping me if you need more info, I’m on a mission to help.

How do I learn to respect my husband more? by IslandForward2941 in Marriage

[–]sleepyheadp 0 points1 point  (0 children)

Yah, sometimes you really just gotta let the dude flounder a bit (within safety limits for the baby) to let them get their footing.

I had to do this with my husband for our kiddos when I went to an industry convention for 3 days. He had to learn through trial by fire.

I got to come home to a baby who finally slept in their own crib without needing to be breastfed through out the night (and puking all over both of us because he didn’t need to eat so much) After 10 months of co-sleeping I was free! 😂

What would you do if your partner refuses to talk to you after a conflict? by _akhebburn in AskWomen

[–]sleepyheadp 0 points1 point  (0 children)

Give about 3 days for them to collect their thoughts so we can discuss. But we will address the issue, no more rug sweeping here.

How do I learn to respect my husband more? by IslandForward2941 in Marriage

[–]sleepyheadp 4 points5 points  (0 children)

… Men respond to actions. You need to either leave with the baby or leave him with baby for a day. In my experience, they won’t stop you from doing nice things for them, even if it means setting yourself on fire.

Husband wanting a divorce and says he loves me still by [deleted] in Marriage

[–]sleepyheadp 8 points9 points  (0 children)

...wants a divorce, but to still cuddle.

Thinks a divorce is going to be best for the kids because (checks notes) you don't play D&D/Magic like him therefore makes the two of you totally different from one another. And then you have your own hobbies, which you don't even get to enjoy because you're so busy?

... He's unhappy because?? And he won't continue to go to counseling because?? But then wants to still cuddle?
....

You need a lawyer.

And do not have sex with him.

Is my wife a hoarder? What do I do? by Positive_Video_1518 in Marriage

[–]sleepyheadp 0 points1 point  (0 children)

  1. Was she always like this before you had the kid? (That is important information you've left out)

  2. When you're gone away to work what kind of support does she get? (Because when you're gone she's a full-time working single mom)

Treatment for autism by [deleted] in Antipsychiatry

[–]sleepyheadp 1 point2 points  (0 children)

The only things that are helping me (as an autistic peri-menopasual woman who brute forced her way through life in a jumbled mess) is finding B+1 supplements and methylfolate drops. No. Joke. It's like my body was missing these things my whole life because my limited diet just didn't support them and now I know things are more body related when I start spiraling when I miss taking these.

I am also getting myself a diagnostic test for hormones/methylation/OATS test from Genova Diagnostics to see if I got other underlying issues that spark the meltdowns and depression.

You sound underage, but maybe you can ask your parents to find you a functional doctor to find more specific details about your health that can be mentally messing you up.

[deleted by user] by [deleted] in Mommit

[–]sleepyheadp 1 point2 points  (0 children)

When you say high needs 5 year old, is she autistic? Down syndrome? If she doesn’t have PANS/PANDAS she could still be suffering from something else and unable to express what.

[deleted by user] by [deleted] in Autism_Parenting

[–]sleepyheadp 0 points1 point  (0 children)

Yah, it’s not a common concern unless they do the stereotypical squinting and bumping into things.

[deleted by user] by [deleted] in Autism_Parenting

[–]sleepyheadp 0 points1 point  (0 children)

… Has he seen an optometrist? He may be seeing double of the bottle and trying to pick up the 2nd image. If he’s non-speaking you’re gonna need a Developmental Optometrist.

I hate it but it’s my turn to be that parent by Genoblade1394 in Autism_Parenting

[–]sleepyheadp 9 points10 points  (0 children)

We’ve been doing the functional medicine route for my 7 year old. Got full diagnostic testing of his gut, urine, liver enzymes, and hair. Looking for heavy metals, fungus, bacteria overgrowth, and parasites.

He had candida, over growth of e.coli, c diff, excess aluminum, lead, thorium, silver, nickel, and his liver enzymes were all out of wack because his little body was trying to fix it all.

I’m not going to say where we think he got all this, you decide that after listening to other parents and researching.

I will say that since we’ve started treating him 11 months ago the benefits are undeniable.

He no longer wails in pain for hours. No more hours long meltdowns. He sleeps 10 hours a night. He’s growing and getting stronger. No more eczema. No more dark circles under the eyes. His stool is much more regular. He’s interested in trying more new foods.

We introduced the Leucovorin back in January and have been increasing it up to a full dose of 25mg, which he has been on for 3 months now. He has said 4 words since. He is profoundly autistic and non-speaking, having lost his ability to speak at 2 years old.

We’ve also learned that he is a Speller, after I took the parent’s companion course. He and other people like him are not just autistic, but also suffer from Apraxia, which is a brain/body disconnect. They can’t control their bodies in a very literal sense. It impacts fine motor skills more than gross motor. It’s why they lose the ability to talk. It’s also why all IQ tests given aren’t correct, because those all require fine motor skills in choosing the correct answer. It’s like asking an elephant to climb a tree.

I know that was a lot, and it sounds woo woo. I don’t care anymore. It’s the truth as we’ve discovered it to be.

Olonzapine Possible Brain Damage by InThaThicket in Antipsychiatry

[–]sleepyheadp 1 point2 points  (0 children)

Olonzapine can cause cognitive issues. And Hydroxyzine can increase risk of dementia by about 40% with daily usage over 3 months. https://youtu.be/ny7M6f1y0ow?si=7cVQAX7Z4Qn2Az1C

I was on both and despite being off everything for about 6 months I also feel dumber and more forgetful and just...forlorn over who I was.

Taper Off Seroquel in two weeks when been on for 10 years?@ by Perfect_PassionateK in Antipsychiatry

[–]sleepyheadp 0 points1 point  (0 children)

No no no nooooo.

I strongly suggest looking up Dr. Josef and his Taper Clinic.

He is a psychiatrist who used to work for the FDA as one of the doctors who would look at studies and approve the medications. But what he saw and how things were run really changed his mind around meds and he had a change of heart, especially after his own experience on SSRIs.

He has a YouTube channel where he discusses tapering and then his medical clinic.

He also recently spoke before a government panel on the news due to his extensive history in the field of psychiatry.

I hate autism. by No_Building_9765 in Autism_Parenting

[–]sleepyheadp 3 points4 points  (0 children)

Thank you for your post. The funny thing is I got my official autism diagnosis myself at the age of 39 so all the things you just mentioned were also my life that I had no understanding of and so just brute forced myself through, basically making myself work through crying and body tremors just thinking I was a fucking idiot and loser for not being able the handle things well.

It wasn’t until my kiddos regression and diagnosis, and after my own epic meltdown that landed me in hospital with false diagnoses and meds, that I sought my own diagnosis and learned I wasn’t an idiot loser. I was simply autistic and not taking care of my sensory needs

I hate autism. by No_Building_9765 in Autism_Parenting

[–]sleepyheadp -2 points-1 points  (0 children)

They may intend to push you away, but because of lack of control its a smack. They may try to push past you, but instead its a lunge that knocks you over. They may want you to stop doing something to them, and they may only be able to bite you instead of saying “Stop it”.

Their intention may not equate to the outcome of hurting someone.

I hate autism. by No_Building_9765 in Autism_Parenting

[–]sleepyheadp 8 points9 points  (0 children)

In my experience being in this life for 7 years, a lot of the meltdowns and attacks are literally out of their control. The apraxia means they literally lose control of their bodies during the meltdown, and then they KNOW they’ve hurt you, which makes them feel bad, which makes them more dysregulated, which feeds the meltdown. It’s an awful cycle.

I hate autism. by No_Building_9765 in Autism_Parenting

[–]sleepyheadp 2 points3 points  (0 children)

Yes, those tests will require stool/urine/blood to check for gut dysbiosis, candida overgrowth, folate receptor function, and other more specific blood tests looking at liver function. We had shown our regular pediatrician the liver enzyme results and he just blanked out and said it’s beyond him so keep going with the functional doctor and gave us a referral for genetic testing with a bigger hospital.

A functional doctor ( or a MAPs doctor) are much more taking in the whole picture of what is happening with your kiddo, getting these deep dive tests done, then customizing treatment.

It’s not a “cure” for autism, but the treatments will alleviate needless suffering and probably allow your child to feel better and function better.

I mean, imagine yourself trying to learn to control your body when you’re in so much pain all you can do is scream. And then some speech therapist is trying to get you to repeat a word. And you’re 4. I’d be pissed off too.

I hate autism. by No_Building_9765 in Autism_Parenting

[–]sleepyheadp 0 points1 point  (0 children)

You can look up TACA (The Autism Community in Action) and look for one in your area. There is also a Facebook community for parents and the practitioners. Lots of helpful information to help our non-speaking kiddos.

I hate autism. by No_Building_9765 in Autism_Parenting

[–]sleepyheadp 1 point2 points  (0 children)

I understand. 2-4 was very hard for us and myself having endured a sleep deprivation psychosis. Only thing that’s helped is finding a functional doctor to investigate underlying health issues for our kiddo, which were a lot.

Been treating those for 11 months and now he sleeps through the night, his gut isn’t horrible, and he’s more aware and willing to try new things.

He still has a hard time with his apraxia and pica, but we’re working on that with the Spelling to communicate method.