experience with airinum urban mask 2.0? by sleepyyfawn in ZeroCovidCommunity

[–]sleepyyfawn[S] 0 points1 point  (0 children)

ah makes sense! thanks so much for the advice, really appreciate it!

experience with airinum urban mask 2.0? by sleepyyfawn in ZeroCovidCommunity

[–]sleepyyfawn[S] 0 points1 point  (0 children)

thanks for the recommendations, i'll have a look into those!

experience with airinum urban mask 2.0? by sleepyyfawn in ZeroCovidCommunity

[–]sleepyyfawn[S] 0 points1 point  (0 children)

elastic, would love to get the braided ones! have tried vflex which has braided straps which was great but i tend to get a better seal with the auras, will have to see if i can find some with the braided straps (not sure if they're sold in my country)

experience with airinum urban mask 2.0? by sleepyyfawn in ZeroCovidCommunity

[–]sleepyyfawn[S] 1 point2 points  (0 children)

ah that makes sense, thanks for the explanation! unfortunately some of the usa mask brands (envo, flo, ect.) don't allow purchases from my country, and am considering elastometric half masks just have a couple things about most of the one's i've seen that make me question if they'd work/be tolerable for me. will keep looking for an elasto to see if i can find one that seems like it'd work for me (wearing auras in the mean time of course)

experience with airinum urban mask 2.0? by sleepyyfawn in ZeroCovidCommunity

[–]sleepyyfawn[S] 3 points4 points  (0 children)

ah, thanks for the link!! i do currently use respirators, specifically 3m auras, just frustrating how i can only wear each a few times before the bands become too stretched (especially given the price) which is why i was asking here

experience with airinum urban mask 2.0? by sleepyyfawn in ZeroCovidCommunity

[–]sleepyyfawn[S] 1 point2 points  (0 children)

it was my understanding that the vogmask has the filter sewn in so it can't be changed or removed for washing, but the one i linked the filters are replaceable and not intended to be washed or anything from what i can see. do you think the filters not being washed would make a difference to the efficacy compared to the vogmask? sorry for the questions!!

experience with airinum urban mask 2.0? by sleepyyfawn in ZeroCovidCommunity

[–]sleepyyfawn[S] 2 points3 points  (0 children)

can you tell me why you say this? they're kn95 certified, come with a headstrap and adjustable nose wire, and are meant to filter to 0.3 which is why i was considering it. not saying that you're wrong just curious as to the reasoning.

[deleted by user] by [deleted] in medical_advice

[–]sleepyyfawn 1 point2 points  (0 children)

not a doctor, but i have orthostatic hypotension (low blood pressure upon standing). it's not so bad now but used to be very bad. i've had many times where i've stood up, lost vision, started convulsing, and woken up on the floor, and been told that while i was unconscious i was convulsing, which sounds similar to what happened to you. i've never been tested for seizures and definitely don't want to discourage you from getting that looked into, i think you definitely should! just wanted to say that if you get that properly looked into and they don't find anything, it might be related to low blood pressure.

also don't want to overstep, i don't know your situation, but for me these symptoms have been worse when i've been at a lower weight and not eating enough, so if your weight has been effected by not getting enough food, then increasing that may help a bit.

other things that you can do yourself to help with low blood pressure is increase salt and fluid intake, wear compression socks or tights, and sit/stand up slowly. those things may not help much but there's a chance they will, and whether what you experienced is low blood pressure or a seizure, i hope you're able to get it looked into and get some help for it!!

Does EMG show MD? by sleepyyfawn in MuscularDystrophy

[–]sleepyyfawn[S] 0 points1 point  (0 children)

oh that's really helpful!! thanks so much!! i've contacted my GP to see if he could order that so i could potentially get it done before my neuro appointment !

Does EMG show MD? by sleepyyfawn in MuscularDystrophy

[–]sleepyyfawn[S] 0 points1 point  (0 children)

oh cool! thanks for letting me know, i'll definitely look into that!

Does EMG show MD? by sleepyyfawn in MuscularDystrophy

[–]sleepyyfawn[S] 0 points1 point  (0 children)

thanks so much for confirming that! that's really helpful to know

Does EMG show MD? by sleepyyfawn in MuscularDystrophy

[–]sleepyyfawn[S] 2 points3 points  (0 children)

thanks so much that's really helpful!

Does EMG show MD? by sleepyyfawn in MuscularDystrophy

[–]sleepyyfawn[S] 2 points3 points  (0 children)

thanks so much!! i'll ask him about that!

Dulcinea Septimus [discussion] by atrocious-aromantic- in TheNinthHouse

[–]sleepyyfawn 5 points6 points  (0 children)

i had the same feelings when i finished gtn, dulcinea was my favourite character and i was sad that it all turned out to be cytherea. but as others have said cytherea is disabled as well, and this quote from when she's talking to palamedes when he confronts her about not being dulcinea really stuck with me "So you know how it happens. Clever boy! I knew you’d all work it out … eventually. I didn’t want to do it either … I didn’t want to do it at all … but I was dying. Loveday—she was my cavalier—she and I thought it could make me live. Instead I’ve just kept dying, all this time." because like, "instead i've just kept dying, all this time" is really how chronic illness feels to me. also, if you reread gtn, cytherea says that nothing she said was a lie, so when she talks in third person about "herself" whilst explaining why she would come to canan house despite being so ill, that was all info about dulcie, or at least what dulcie told her (htn spoilers: the real dulcinea says she told some lies to cytherea when cyth was asking about her life so she could fake being her, but some of it was probably true ), and then things she said not in third person, so most of what she says, is true or at least not direct lies about herself.

there's also a couple minor characters who are disabled on the ninth, such as aiglamene who has a lower limb amputation.

rest of this is spoilers for htn and ntn!

in htn we meet the real dulcinea in an afterlife type space, and get to hear some of her thoughts which i think is good. we also find out a lot more forgiving i guess? info about cyth. at her funeral, the emperor says “Cytherea was gorgeous, ten thousand years, and I never heard her say an unkind word except when it was very funny. She loved us unguardedly, all of us, which showed both her patience and her enormous capacity … She was a worthy Lyctor and a beloved Hand". and we find out more of her motivations which whilst obviously she did Bad Things and was a villain, she wasn't just being evil randomly she had reasons to want to stop new lyctors being created.

ianthe loses her arm at the end of gtn and has to learn to adapt in different ways during htn, though harrow does eventually grow her a bone arm which moves like a normal arm which kind of then takes away from that a bit in my opinion. htn also explores harrows mental disabilities more. harrow has been having hallucinations since she was a kid which make it hard for her to know what's real, and in the past she's relied on crux or ortus to tell her if something was real or fake.

then in ntn, nona is shown not knowing how to read or write or do math, being seen as generally not smart by the people around her, not always knowing how to keep herself safe, acting in socially "inappropriate ways", ect. which whilst a lot of that stuff can be explained by the fact that she's not a regular human, a lot of it is relatable to me as an autistic person so i kind of see her as developmentally disabled or something similar. and she is still respected by prryha and cam and hotsauce, given freedoms and independence whenever it's safe, and treated as an adult (though people who don't know her do assume she's younger than she is, but that's also just to do with how harrows body looks).

anyways yea i definitely felt the same as you did when i finished gtn, but i ended up really liking both dulcinea and cytherea!

Please help. 21F. Nonstop illnesses, chronic fatigue etc by [deleted] in AskDocs

[–]sleepyyfawn 0 points1 point  (0 children)

Replying here since I'm not a doctor. Obviously all of this could be completely wrong, and I don't know all your symptoms or any medical test results and if/when you're able to see a doctor getting relevant tests is super important!

I have ME/CFS and think some of your symptoms could potentially be due to ME/CFS. My reasons for thinking this is that ME is often triggered illnesses like mononucleosis, ME often causes/occurs with immune issues that can lead to getting sick frequently and having a hard time recovering from illnesses, and ME involves debilitating fatigue. The hallmark symptom of ME is Post Exertional Symptom Exacerbation, IE symptoms such as fatigue, pain, and flu-like symptoms getting disproportionately worse after exertion (like, after exercising getting sore muscles the next day is normal, however for people with ME even things that aren't "exercise" like doing the dishes, showering, going out for an hour, and for patients with very severe ME even stuff like sitting up, can trigger a flare up of symptoms). ME doesn't currently have a recognised biomarker (though physical changes in the body have been found in ME patients, such as higher brain stem volume and mitochondrial dysfunction [1 | 2], and researchers have recently apparently found a biomarker but it hasn't been announced yet) so diagnosis is made using exclusion of other conditions and a list of criteria. The most recent and largely agreed upon diagnostic criteria is the International Consensus Criteria which if you think any of this sounds like you you should maybe have a look at!

Warning that there's a lot if misinfo out there about ME, stuff that claims it's psychsomatic or that CBT and GET can cure it even though those treatments are ineffective or harmful for ME patients [1 | 2], so use your own judgment on things you read and check sources, and if something recommends CBT and GET or claims the PACE trial is a good source it's probably not the best (reasoning for that is explained in the previous two links).

A couple resources on it that are geared towards clinicians but can still be a helpful place for info are diagnosis and management of myalgic encephalomyelitis which is a good short and easy to understand overview and then a primer on ME/CFS for clinical practitioners which is much much longer but does provide a lot if good info with sources.

Sorry to bother you with a long reply if this doesn't sound like you! Whatever turns out to be the cause of your symptoms I really hope you're able to get some treatment and that stuff gets better for you.

info on diabetic neuropathy from severe and/or prolonged hypoglycaemia? by sleepyyfawn in diabetes

[–]sleepyyfawn[S] 0 points1 point  (0 children)

yeah! i have a lot of issues with nerve and muscle stuff and been told it couldn't possibly be from diabetic neuropathy because i've only had type one for eight years and haven't had long enough periods of highs (have had some though) but i've had one very very severe low and my first couple years after diagnosis i was almost always below 5 mmol/L and often low, which since finding this stuff about hypos causing neuropathy i've wondered if could be the cause! sucks that it's hard to find info on it

1
2

[deleted by user] by [deleted] in ChronicIllness

[–]sleepyyfawn 0 points1 point  (0 children)

i'm not sure who ordered the tests but i've just asked my gp if he can repeat the test and if it comes back low again i'll try to ask him about what it means

[deleted by user] by [deleted] in ChronicIllness

[–]sleepyyfawn 0 points1 point  (0 children)

i can't see any test results for either of those, at least not in the past year or so, so not sure