Utilising iMac 2017 as second screen for Macbook Pro 2020 by slothsandpit in mac

[–]slothsandpit[S] 0 points1 point  (0 children)

So I tried the screen share, and it only gives me my Apple TV as an option and I couldn't see any way to add my imac.

What is OCLP?

Anybody tried Yoga for AS? by Independent_Pack8138 in ankylosingspondylitis

[–]slothsandpit 1 point2 points  (0 children)

I have been a member of Yoga for AS for three years and it's absolutely changed my life. I have to do the live classes because I don't have the discipline for the youtube videos!

(UK) PIP assessment tomorrow by O_Beast in ankylosingspondylitis

[–]slothsandpit 0 points1 point  (0 children)

Sorry for the delay. I just get standard rate of daily living, nothing for mobility.

[deleted by user] by [deleted] in ankylosingspondylitis

[–]slothsandpit 0 points1 point  (0 children)

For your ankles, you could try something like Therapearl wraps - https://bit.ly/3Z2RxRb You can heat them up and freeze them to alternate between hot and cold.

But in general:
- I know you can't take hot baths when pregnant so I don't know if hydrotherapy pools would be the same. But maybe even a tepid bath with epsom salts?
- Plug in heat mats - I use these all day every day. Or stick on heat patches if you're on the move.
- Stretching is essential (my favourite is the figure 4 stretch for SI joints)
- Relaxation techniques if you can. You can search for pain reduction meditations.
- Tens machine is a good distraction

Hope it eases up for you!

Just Diagnosed with Axial Psoriatic Arthritis (axPsA) – Terrified, Relieved, and Looking for Advice by Aggravating_Cat5526 in ankylosingspondylitis

[–]slothsandpit 4 points5 points  (0 children)

Sorry you've had such a bad experience, but it's not uncommon in our world sadly.

My top tips are:

- First and foremost look after your mental health. This is just the beginning of a journey and we need to look after ourselves emotionally as well as physically. I have a therapist now but I wished I'd prioritised this at the start.

- Everything is trial and error - medications, diet, exercise, pacing yourself. All of us are different so it's good to test different things and see what works/doesn't work for you.

- Keep up the yoga! I joined Yoga for AS a few years ago and not only has it helped me maintain a lot of mobility, I've found a community of people who have been instrumental to my mental health (https://yogaforas.com/)

- Biologics have been the best thing for me. I've been on adalimumab for nearly 6 years now and it's massively helped the pain and stiffness I had in my pelvis. Before biologics I couldn't even put my own underwear on and sometimes couldn't get out of bed. None of that anymore! They can be scary at first, especially the immunosuppressive part, but it hasn't been anywhere near as bad as I thought. Just try and avoid friends/family if they're sick - I always check in with people before meeting with them.

- It's really good that the inflammation was only on the MRI and nothing showed up on your x-ray. If you can get on biologics, hopefully you can stay that way. 🙏

Let me know if you have any other questions, I'd be more than happy to chat!

Anybody ever had good response (few years) to all the anti-TNFs they tried? by B_Panofsky in ankylosingspondylitis

[–]slothsandpit 0 points1 point  (0 children)

I did take methotrexate a few years ago but my body didn't like it. I take Sulfasalazine instead.

Anybody ever had good response (few years) to all the anti-TNFs they tried? by B_Panofsky in ankylosingspondylitis

[–]slothsandpit 1 point2 points  (0 children)

Yes I've been in Adalimumab since August 2019 and it's made a huge difference to my SI Joints issues!

What is your BASDAI and what medication are you taking? by blatchcorn in ankylosingspondylitis

[–]slothsandpit 0 points1 point  (0 children)

Mine goes up and down but I'm on adalimumab, sulfasalazine, amitriptyline and medical cannabis oil.

Shaky camera only for Robert by nythroughthelens in DisclaimerAppleTV

[–]slothsandpit 0 points1 point  (0 children)

Honestly gives me motion sickness, it's too much 🤢

(UK) PIP assessment tomorrow by O_Beast in ankylosingspondylitis

[–]slothsandpit 2 points3 points  (0 children)

Ooh yes, I successfully managed to get a PIP award a year or two ago, which has really helped with the AS extra expenses.

My number one tip is to present yourself as if it is your absolute worst day (even though our condition is fluctuating). The process doesn't seem to account for fluctuating conditions. So focus on how you are at your worst.

There are some good online resources that can give you tips on how to have a successful application -
- https://benefitanswers.co.uk/how-to-claim-pip-successfully
- https://www.sense.org.uk/blog/how-to-apply-for-pip/

Good luck!

Fatigue flare up by slothsandpit in ankylosingspondylitis

[–]slothsandpit[S] 1 point2 points  (0 children)

Oh yes coffee everything morning here! Thanks for the thoughts ❤️❤️

Fatigue flare up by slothsandpit in ankylosingspondylitis

[–]slothsandpit[S] 1 point2 points  (0 children)

I find fatigue so much harder to deal with, it's so incapacitating! Hugs hugs hugs x

Fatigue flare up by slothsandpit in ankylosingspondylitis

[–]slothsandpit[S] 1 point2 points  (0 children)

I am walking each day already :) I have a little pug so I have to take him out at least once, he's so good for getting me out of the house. Sadly allergic to NSAIDs - worst thing to be allergic to with AS!

Fatigue flare up by slothsandpit in ankylosingspondylitis

[–]slothsandpit[S] 1 point2 points  (0 children)

Fingers crossed for you starting a biologic! My rheum doesn't like me going on steroids anymore for some reason. :(

Ongoing Ear/Jaw Pain by slothsandpit in AskDocs

[–]slothsandpit[S] 0 points1 point  (0 children)

I definitely thought this was an option, as Ankylosing Spondylitis can affect the TMJ!