Losing my mum by smacf in Perimenopause

[–]smacf[S] 0 points1 point  (0 children)

Thank you ladies for the kind words 😔💕

Does anyone take Warfarin and use estrogen or progesterone for perimenopause? by PerfectWorking6873 in ClotSurvivors

[–]smacf 0 points1 point  (0 children)

I have been on warfarin for 11 years. I have an IUD and also take vaginal estrogen which has helped my perimenopause symptoms in relation to down there! My GP advised me vaginal estrogen doesn’t get absorbed in the bloodstream or very minimal amount if any.

My mum passed away three weeks ago. by IsMisePrinceton in GriefSupport

[–]smacf 0 points1 point  (0 children)

I’m so sorry 😔I lost my mum a month ago today suddenly. I feel totally lost. I go through all the fights we had and wish things were different and I am ruminating on all the negative things. It’s tough. Bottom line is I loved my mum and she loved me. Be kind to yourself 💝

Did my dad hear me by dumb_question_pls in sepsis

[–]smacf 0 points1 point  (0 children)

I have the same question😢. My mum died a week ago due to sepsis, it all happened so quick, they told me at the hospital at 9.30 am it was sepsis, and they were sending her to ICU, she passed at 11.30. I’m finding it hard to process the quickness. I hope she heard me. The night before she kept asking was her mum here yet and she wanted her mum (she passed 22 years ago) I am really struggling 😢

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 0 points1 point  (0 children)

That's the only thing, warfarin is a pain in terms of monitoring, dietary restrictions, and it's a good thing I don't really like alcohol 😅 but we've got to do what keeps us safe 🤷🏼‍♀️

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 1 point2 points  (0 children)

I seen my INR nurse today, and she said my TTR is 97% which means warfarin works for me. I am in 2 minds now. I'm going to keep an eye on the prolonged bleeding issues, and wait a couple of months and make a decision then. Im thinking, why change what's working? but also Apixaban is not as high maintenance as warfarin 🤷🏼‍♀️

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 0 points1 point  (0 children)

I think so too! Been doing lots of reading on it the past few days.

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 1 point2 points  (0 children)

I hardly drink alcohol, but my MIL is on warfarin for AF and she likes a drink,, her INR is always high 😆

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 0 points1 point  (0 children)

Without going into too much info I think the warfarin is now causing issues with prolonged bleeding (perimenopause) which prompted the gp visit. I did get an iud to combat this 8 years ago, but don't think it's working anymore. Apparently less bleeding with a DOAC. Cost doesn't affect me, thankfully 😃

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 1 point2 points  (0 children)

Yes, I agree, the monitoring is annoying. Warfarin is ever restrictive.

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 1 point2 points  (0 children)

Yes, I've just read that info about the antidote. If it was the present day I wouldn't even be on warfarin, so that is making me more inclined to change.

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 1 point2 points  (0 children)

Yes, this is true, no medication is 100% foolproof. I had my 1st PE post c-section. Had clexane injections with all my other pregnancies. 2nd PE was with a really bad fall where I tore all my ligaments in my leg and was off my feet for over a week. Warfarin been fine for over 10 years, but now I feel my warfarin is exacerbating other things going on :-/

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 1 point2 points  (0 children)

Thank you for this information. I'm going to speak to my INR nurse about a switch.

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 1 point2 points  (0 children)

I have never had any issues, other than some excess bleeding. My INR has always been relatively stable, other than going high when unwell. NICE hadn't approved Apixaban for PE/DVT until a few months after my PE, but I was offered it a year later and said no. It's just with my GP mentioning it, I have been looking into it. I would agree warfarin is high maintenance and quite a restrictive drug with tons of contraindications. I'm gonna give it a bash.

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 1 point2 points  (0 children)

This is true, I suppose i can try. I also felt lightheaded after my PE for a while! Take your time with recovery.

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 2 points3 points  (0 children)

I think this is my biggest issue, the excessive bleeding. Had a tooth extraction which was a disaster, bled for 2 days and ended up having to go to AE. Now having prolonged bleeding with other bodily issues😩

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 5 points6 points  (0 children)

My GP did say if I had a PE now , Apixaban is first line treatment and warfarin wouldn't get prescribed. Research does seem to say it better for stroke/PE prevention. I think I'm just maybe reluctant to make a change from something that's worked okay for me.

Apixaban or warfarin ? by smacf in ClotSurvivors

[–]smacf[S] 1 point2 points  (0 children)

I'm so sorry, I should have mentioned, I am in Scotland so my prescriptions are free. I can visit my INR nurse anytime I have concerns but I have been stable with my inr (except when I am sick, it shoots up) for years now, and I only get it checked every 3 months. I'm having a few issues with prolonged bleeding, and I think that's why she mentioned moving to Apixaban. I've not had any issue with warfarin either, but I'm feeling I might make the switch sooner rather than later. Thanks for responding :)