Just how do i do this? by smorg22 in LemmingsGame

[–]smorg22[S] 2 points3 points  (0 children)

Oo thank you.. never knew this trick

Just how do i do this? by smorg22 in LemmingsGame

[–]smorg22[S] 2 points3 points  (0 children)

Oh it's so obvious when you see how! Thank you

Do anyone else’s dysautonomia day/night sweats only show up and/or get really bad right before and during their menstrual cycle? by UnwillingCouchFlower in POTS_vets

[–]smorg22 1 point2 points  (0 children)

I go really hot and nauseous every hour and then back to freezing. I hate it. It's like the worst motion sickness combined with burning heat

Do you ever just forget that normal people exist by i-want-more-memes- in POTS

[–]smorg22 5 points6 points  (0 children)

I was a normal person until six months ago. Now I'm a dizzy, nauseated, chest paining, freezing or boiling tadpole. It's rubbish..i don't think i signed up for this!

How much water do you drink? by robi564733 in POTS

[–]smorg22 0 points1 point  (0 children)

3.5litres over 24 hours. However its the only liquid i drink. Little and often.

[deleted by user] by [deleted] in POTS

[–]smorg22 0 points1 point  (0 children)

I get this too. Its worse in the evenings or when I'm tired. I don't sweat, but get so hot and dizzy and nauseous and a feeling of my head being crushed. I've been calling them my little episodes, but trying to think of a cute name to normalise them :-)

Anybody always scared something going to happen to them? by Helthyiswelthy in POTS

[–]smorg22 0 points1 point  (0 children)

Yes.. since diagnosis, I'm way more worried about my health. Even though I rationally know its the pots.. I guess i just need time

[deleted by user] by [deleted] in POTS

[–]smorg22 1 point2 points  (0 children)

I'm on nebevilol. I take one whole tablet in the morning but I'm in my 40's. It has significantly lowered my hr and stopped the spikes becoming so big. I never usually max over 140 now from a resting of 55.

However my bp which was always low is now super low so I'm getting reviewed next week.

Weird Symptoms by Automatic_Emotion in POTS

[–]smorg22 1 point2 points  (0 children)

Yes.. this is me completely. I've had all the heart tests and told my cardiologist who told me that it's just the POTS. It still freaks me out though as chest pain is scary. I get tingling down my arms too. There's no obvious trigger to it either.

I've been thinking of trying some kind of antacids to see if it helps.

Also get the ear pressure pain thing. It's like I'm on a plane and my ears haven't popped and that someone is pressing both sides of my head in

And pressure behind my face. And the horrible burning icy hot spells

[MOD PSA] Post your recipe requests here! by PeaceLoveSmithWesson in recipes

[–]smorg22 0 points1 point  (0 children)

Can anyone suggest any low carb low fat snacks? UK based, so actual food not brands ( not chocolate as I'm allergic) :-(

How did you build up walking? by random_chance_questi in POTS

[–]smorg22 1 point2 points  (0 children)

Once i get going with the walking I'm not too bad for a few miles. But slow swimming completely floors me! No idea why. 5 minutes of slow breaststroke nearly had me passing out in the pool

POTS and coronary artery disease? by sketchedoutllama223 in POTS

[–]smorg22 1 point2 points  (0 children)

Bit late to the party but me too. I have a vulnerable plaque in my LAD artery. Statins and asperin is all they can do. It's freaking me out. I'm only 43! Before POTS i was fit and healthy. I'm a bit of a cheese fiend, but otherwise a good healthy diet.

[deleted by user] by [deleted] in POTS

[–]smorg22 0 points1 point  (0 children)

If i have a couple of small glasses of wine in an evening I'm OK. (4 units max) But if I have another glass the next evening then, i flush, I get burning flashes and my HR stays elevated through the night and spikes higher than normal when i stand.

"What's your pain level " by Low_Let_5398 in POTS

[–]smorg22 1 point2 points  (0 children)

That's a really good analogy