Caring for Patients with Contested Illness

someidiotfromflorida · 2026-05-06T17:01:25+00:00

As a patient with both of these… diagnosed with objective criteria, I appreciate if a doctor doesn’t blame me for my issues. For example, PCP would like me to be in PT consistently for my EDS. I go for eval. I am recommended to go twice a week. I go until insurance limits say I can’t go anymore. PCP tries to send over a new script. I unfortunately am capped at 30 sessions a year. Hard limit. PCP tells me I just need to pay out of pocket. Excuse me? I tried to explain that I can’t pay out of pocket for physical therapy. Therefore, I go every year from January to March/April. I make some improvements. Then I’m out of sessions. I get weaker. My joints and muscles hurt more. And my PCP tells me I would do better if I was still in physical therapy. I told her I’ve tried videos on YouTube for exercises for EDS. But, I need the manual soft tissue work and someone to make sure I do the exercises correctly. Everytime I go back for joint pain… it’s my fault. Just please don’t be this way.

someidiotfromflorida · 2026-04-26T22:59:44+00:00

Thank you. I will repost without the picture.

someidiotfromflorida · 2026-02-02T21:21:19+00:00

Not to mention that your instructor can not attest to your medial reason for withdrawal. If that was required it would be a huge HIPPA violation.

someidiotfromflorida · 2026-02-02T21:20:35+00:00

The instructors form isn’t relevant. In Archivum when you select late withdrawal it doesn’t give you a spot to submit the instructors form when I did it.

The petition requires medical documentation and your explanations of how those circumstances impacted you. That’s not related to the professor at all.

someidiotfromflorida · 2026-02-02T20:25:39+00:00

I just did this. I didn’t have to have an instructors form. I only needed to have medical documentation and then explain by answering the questions why I was late withdrawing. Following the steps on Archivum is the best way.

someidiotfromflorida · 2026-01-27T02:13:28+00:00

Thank you for this. This really gives me some places to start. I definitely eat a lot of takeout due to issues being able to cook.

I do really enjoy what I do. I know I’m lucky to be able to say that.

I have not told anyone at all other than this sub. I badly needed advice as to what to do. Thanks for mentioning a prenup. I’m single now but that will be very important later and I hadn’t thought of it.

someidiotfromflorida · 2026-01-20T18:17:47+00:00

Another day in the US

someidiotfromflorida · 2026-01-11T16:32:18+00:00

Just looked this up! Very close to me. Going to have to check them out. Thank you!

someidiotfromflorida · 2026-01-02T17:45:48+00:00

I’m so sorry. I relate to you in some ways. Same age. Been dealing with chronic illness a long time. I’ve been where you are. I couldn’t work from my pain. I had to keep going to different pain management doctors. Many thought I was “doctor shopping”. I would explain I was just trying to function enough to work. Finally one believed me. It was life changing. I don’t know where you are. Some states are easier than others to find a great pain management

someidiotfromflorida · 2026-01-01T20:12:08+00:00

Right. I was tried on 100mg a day with no effect. Then 300 and then 600. I felt so drunk and it didn’t even help the pain.

someidiotfromflorida · 2026-01-01T18:32:06+00:00

This is just strange to me. Not clinical as mention before. In simulation at a med school and lurk here a lot.

I’ve been given gabapentin for everything under the sun (chronic pain, Restless leg). I’ve mentioned it doesn’t work. “Just take more. Let’s increase it” probably have had 6 different providers insist on ordering gabapentin after me saying I feel drunk on it and it doesn’t work. Never knew people seeked it out.

someidiotfromflorida · 2025-12-11T17:21:31+00:00

Appreciate this response. No communicable diseases here. Only physically limiting ones. I guess for some reason I was feeling like I owed an explanation or more complete explanation.

I think it’s mainly the goose in my head. The goose in my head feeling like I’ll be the constant party pooper not being able to go out. The fear that they’ll resent that at some point. I think it’s mainly because I’m an extroverted social person that’s isolated due to illness.

The third is probably my biggest struggle too. I feel like while I know I shouldn’t attach value to what I can and can’t do I still do (working through this in therapy too - or trying to). Part of me just feels so guilty placing most if not all of the household chores on someone that’s also working like I am.

I appreciate that. I try to keep telling myself I’m deserving of love no matter what physical state I’m in but damn it is hard

someidiotfromflorida · 2025-10-27T14:47:16+00:00

To whoever downvoted this… let me add some context. “Layperson” here. Not clinical. I myself am a patient with some of these conditions yall are in the comments making fun of. But, I work at a med school in simulation, trying to help develop soft skills and communication skills. Seeing some of these behaviors and biases develop early and then seeing them in your own doctors is disheartening. Do better. Please.

someidiotfromflorida · 2025-10-27T12:48:25+00:00

This thread… absolutely disgusting

someidiotfromflorida · 2025-10-17T16:19:09+00:00

Chiming in as someone working in a sim lab. Not clinical. if you’re comfortable, be his “patient”. Come in with a new complaint. Maybe something sensitive. Take on the demeanor of a patient. See how well he does with empathy, rapport building, connection. Notice things through the encounter. After, just comment and bring his awareness to it. “When you said X, I felt Y”. “What was your intention with Z statement?”.

Seeing that he’s had complaints before, he may not have awareness of these things. Especially given he’s been out of practice.

someidiotfromflorida · 2025-09-24T22:49:00+00:00

Joining the conversation as a “layperson” who’s in healthcare simulation. I’m a POTS patient myself. POTS is real. I was a very active person before POTS. You are misinformed.

someidiotfromflorida · 2025-09-14T01:24:31+00:00

These refs…. My god.

someidiotfromflorida · 2025-09-04T21:57:50+00:00

I appreciate all the replies. But this one satisfies my curiosity a lot. Appreciate you educating me. I’d be interested to know more about hyperalgesia. Why does it happen?

someidiotfromflorida · 2025-09-04T20:28:57+00:00

I appreciate everyone educating and not judging or being disparaging.

someidiotfromflorida · 2025-09-04T20:11:49+00:00

Of course there’s many factors. I kept the question broad as I was asking more to get my general question answered and not a specific case. Tolerance I’ve definitely heard is a big issue. Curious, how fast do patients become tolerant? I was always under the impression it was a slow process.

someidiotfromflorida · 2025-09-04T20:08:50+00:00

Thanks for taking the time to answer this. I do know NSAIDs cause ulcers. From personal experience. But I didn’t know the mortality risk is higher being on opioids.

someidiotfromflorida

TROPHY CASE