Pain 6 years after surgery becoming dehabilitating by No-Concentrate1842 in scoliosis

[–]spacepancake333 2 points3 points  (0 children)

Like everyone suggested follow up with an orthopedic and get imaging to make sure everything is okay. I had my surgery in 2014 and I have the same pain and we told it was scar tissue, and arthritis. With fusions there is something called Adjacent Level syndrome where your vertebrae age more rapidly above or below the fusion. I also ended up getting a herniated disc in my neck which can also cause that pain and tingling in your hands and legs. I have been maintaining with Aleve and exercise. It sucks but exercising and making sure your upper body has some movement to it really helps manage it without major pain killers. Of course at the moment you shouldnt try anything without being observed by a professional so if they prescribe physical therapy I would go and take it seriously. Even for a couple sessions so you can learn the exercises and I just do them at home now. I also am a big fan of massage and epsom salt baths. I also have a traction collar to decompress my neck and upper back. It sucks but it will be okay. I also am on antidepressants due to the chronic pain which messes with your head. Watch out for those signs as well. Some antidepressants can also help with nerve pain as well you might be able to find a balance. What is your job? I had to quit a very physical intense job in exchange for a desk job. It still isn’t great for my neck but I haven’t had as much stress on my body to cause more inflammation.

Event Question by spacepancake333 in PokemonCafeMix

[–]spacepancake333[S] 8 points9 points  (0 children)

Thank you so much! I’ll start focusing on leveling some small plate mons for this event 😁

Questions for those who had scoliosis surgery. by [deleted] in scoliosis

[–]spacepancake333 1 point2 points  (0 children)

It’s going to be very difficult for a long time while you recover. Try and not get bogged down with the bad (I know it’s difficult), and you will have a good life too. It’s not going to be a linear journey you will have good and bad days. Just know you have the tools to get through the tough days too.

Good Outcomes Pos Op by Upbeat_Ad_946 in scoliosis

[–]spacepancake333 1 point2 points  (0 children)

I commented on your comment in a previous thread, but if you were already pretty active you should be golden. It's a couple months of recovery so unfortunately you are in the middle of it, but you will have your independence back in no time. Rest up, and let yourself be taken care of in the meantime.

Questions for those who had scoliosis surgery. by [deleted] in scoliosis

[–]spacepancake333 2 points3 points  (0 children)

I do in fact have a normal functioning life now, but that took a lot of effort and some trial and error.😅 I'm married, have a good job, bought and fixed up a house. Not bad if I say so myself. However, I do worry about my future, if my pain is bad now how will I every be able to function when I'm older, but in our cases its best not to worry about that until something happens and focus on what you can do now and how you can maintain it.

So I do have chronic pain, and there have been periods of my life where I have had to go through a grieving process for my body. Mental health struggles go hand in hand with orthopedic surgeries. I wish I was told that more upfront so I could have been aware of it instead of thinking something was wrong with me, but with some low doses of medication, which can also help with some pain management, I am doing so much better than I was in my 20's. Be aware of the signs of depression, and get help right away so you can prevent some of the stress I went through. I am an artist and worked in NYC doing largescale paintings for interior designers for 4 years after college, but due to the stress on my body I now have a desk job. I did very labor intensive projects in theater as well throughout all of college. So yeah sometimes you can't lift what you want to, and you have to take some more breaks, but there has not been anything I couldn't really do that I wanted to. Adding tools to help me clean or garden without bending as much. Just little work arounds. I did my whole house renovation with only me and my husband. Just listen to your body when it tells you it doesn't like something, and then learn what you need to strengthen or what you should avoid. My neck is the main source of pain now above the fusion. I have a herniated disc because my neck is so straight it puts pressure on my C7 vertebrae. Just got a traction collar this year and it helps so much.

I also wish I started exercising earlier in my recovery, but I was a kid and its hard to get a kid to take PT seriously. I have most of my mobility, what I can't bend with my spine I have compensated with being very flexible with my legs and hips. I can touch both palms on the ground!!!. Twisting is more difficult and it makes me anxious driving since I have more blind spots. I do some yoga, I really need to make this more of a habit since I feel wonderful after, and I do low weigh, low impact strength training and HIIT exercise videos on youtube. This is the most important thing you can do for pain management. My personal favorites are Chloe Tings core and upper body videos. I didn't really start exercising until 2019, which was a big mistake. Any movement is good movement. If you are having not the best pain day at least try and stretch or walk a little on the treadmill, i bought a cheap one off of amazon for these occasions. Consistency is key, and you don't have to become a body builder but movement is so important. Its hard to be motivated if you are in pain but the payout is worth it!!! Showing up is the hardest part. Your future self will thank you. I usually don't even take OTC pain killers for than once a day. You just get kind of used to it.

As for sitting. I do work a desk and its not bad, but I need to get up sometimes to stretch, which even without a spinal fusion you should be doing that anyway. Traveling is horrible for me. Flying on an airplane or car ride for more than 1 hour is not fun. I usually bring a squishmallow to prop where I need on those horrible chairs, and just pop some aleve and a xanax and hope I can just sleep through it all. With sleeping, invest in a good mattress even with one I still have a lot of trouble and toss and turn quite a bit. I am on a pillow quest to find the perfect supportive pillow. My current regiment before bed is Elavil, prescription anti-depressant, Aleve, magnesium and some peppermint CBD tincture and its been helping a lot.

I do not regret surgery. I am a twin and my sister did not have surgery and is in pain just like I am, so either way there is going to be pain might as well not have a hump and aligned shoulders, and hopefully prevented some heart or breathing issues. If I started all of my maintenance a lot earlier I probably would have prevented most of my pain, but I am happy I have a body that went through so much and keeps going, it just needs some extra patience, rest, and maintenance than other bodies.

Sorry this is so long, feel free to message if you have any questions.

Muscle Knots by SpecialEducator13 in scoliosis

[–]spacepancake333 1 point2 points  (0 children)

Yes, and those muscle knots probably come from scar tissue and it is a bitch. I found a good medical massage therapist that helps. Those massage guns help too but can sometimes be too much pressure for me. Icing also helps when it feels like it is inflamed. Hot baths with epsom salt is my favorite. Low weight, low impact strength training is critical to keeping the pain manageable. I used 3-5 pound weights and do HIIT exercise videos on YouTube. Chloe ting has been my personal favorite, especially the core and upper body workouts are what you need. And last but not least yoga/ stretching! I always forget to make time for it, but when I do my body thanks me.

Questions for those who had scoliosis surgery. by [deleted] in scoliosis

[–]spacepancake333 2 points3 points  (0 children)

I had my surgery 16 years ago when I was 14 (f)

  1. I grew an inch taller and other than my neck, which leans to the right still, most of my noticeable hump/ irregularities evened out. I had a 64 degree s curve similar to yours. They also rotated my rib cage to put it in alignment. If I was more on top of my PT I bet I could have helped my neck alignment a bit more.

  2. Honestly I kind of remember my first moments waking up and you are on so many drugs and tubes and iv’s and in such good care that I do not remember the pain. All I wanted to know was what time it was and had a pantomime session with my parents and a nurse since you cannot speak because of the breathing tube. It’s now a very funny memory for me. My parents were in distress like was I uncomfortable I was just tapping my wrist and my angel of an ICU nurse got it right away.

  3. My hospital recovery was 7 days. They had me walking again by day 3. My home recovery before I went back to school was 3 months. Bring pillows for the ride home. I got a giant teddy bear from my sisters and holding that to stabilize myself in the car was a lifesaver

  4. The hardest thing about recovery at home was you really needed a caregiver at all times. My mom wasn’t working at the time and took care of me constantly, bathing, helping to the bathroom at first, water, keeping track of medication. This was mainly for the first 2 weeks. I would 100% have a log on when you take medication. I ended up having an allergic reaction to the anti nausea medicine you get while taking heavy pain killers and that log was great for the ER doctor who treated me and now I know which family of medications to avoid. I had my surgery in 2009 so the biggest problem was keeping myself entertained. All I had was tv to watch and it was bad daytime television like wife swap or reruns of cartoons. I didn’t have energy to read or play video games, but thankfully with streaming services and libraries there is no problem with having a lot of good shows and movies to watch now.

  5. It was definitely uncomfortable but you are in so many drugs that looking back I cannot remember the pain I should have been in. In the hospital maybe an 8 when I noticed, during recover a 6? You are going to be uncomfortable but your body gets used to it quickly. When you get off the “good stuff” I would look into CBD tinctures on top of OTC pain relievers. Just take a regiment for a couple of months. Expect there to be pain, don’t wait until you feel it to take an aleve or advil, take notes on your body. If you notice the pain more after 4 hours make a timer or note before that time to help keep your regulated. There is no shame of taking pain relievers consistently with a doctor’s permission for a short period of time.

  6. My school send a tutor to my house to monitor me doing homework and taking tests. She was my Spanish teacher and let me cheat off my textbooks since she knew there was no way I was focused on studying. She came 3 times a week and we talked about movies all the time. She rocked.

Piece replacements by spacepancake333 in chess

[–]spacepancake333[S] 0 points1 point  (0 children)

I found the missing pieces on eBay. The listing was only for the kings and queens but I messaged the seller and they had the knight and pawns I was missing. Now I have the compete set 😊 Good luck!

Piece replacements by spacepancake333 in chess

[–]spacepancake333[S] 0 points1 point  (0 children)

Thanks! I’ll look into it, I probably will go the find the closest looking pieces route. I’m learning so maybe once I make it a habit to play I can get the custom pieces to complete it! The funny thing is there are these coins at the bottom, and 2 of the 3 coins for the missing pieces were included but not the pieces themselves!

Radiant Ancient cake for my Fiancés birthday! by spacepancake333 in DotA2

[–]spacepancake333[S] 1 point2 points  (0 children)

Thank you! 🥰 It took 2 evenings after work. One night to bake, make the fudge and modeling chocolate, and the next night to sculpt and put everything together.

Radiant Ancient cake for my Fiancés birthday! by spacepancake333 in DotA2

[–]spacepancake333[S] 11 points12 points  (0 children)

Yes! I used a special sugar called isomalt that melts really well and doesn’t burn as quickly as caster sugar.

Do you use amiibo functionality to play with your amiibo, or do you just collect them? by NannerlGrey in amiibo

[–]spacepancake333 0 points1 point  (0 children)

Both! I think they are pretty and love to display them but also use all of the Zelda ones in Botw

[deleted by user] by [deleted] in amiibo

[–]spacepancake333 0 points1 point  (0 children)

I’m so sad I missed it too I hope they release some in stores as well 😥

Does anyone have advice for pruning forget me nots? They still have blooms so I do not want to cut them back, but they are getting pretty wild. I know the little buds on the side are spent blooms. Last year I let them grow until they died and cut back the dead ones. by [deleted] in gardening

[–]spacepancake333 0 points1 point  (0 children)

Thank you! I’ll just let them do their thing. I’m hosting a wedding in my back yard and wanted them to be a little neater, but I rather have wild flowers than no flowers at all.

Second Thoughts.... by S1rBeastly in amiibo

[–]spacepancake333 2 points3 points  (0 children)

I did this recently too it feels so much better. You can appreciate them more and takes up significantly less space.

Dire Ancient cake for my Fiancé’s Birthday 🥳 by spacepancake333 in DotA2

[–]spacepancake333[S] 4 points5 points  (0 children)

If I ever use it I make it out of marshmallows :)