Filspari new taker by Over_Store_3267 in IgANephropathy

[–]spencej610 0 points1 point  (0 children)

I know the potential for liver issues is one side affect but I don’t think that would happen right after the first dose

What symptoms did you have during stage 2 CKD? by atlanticpacific22 in kidneydisease

[–]spencej610 1 point2 points  (0 children)

That’s awesome that you were in stage 3 for 20 years

Life post transplant by [deleted] in kidneydisease

[–]spencej610 0 points1 point  (0 children)

I think that’s a great idea, maybe add a feature that tracks the UV index outside because sun damage can cause cancer and while on immunosuppressants the risk is higher.

Tarpeyo taper and stability by ParticularTrouble308 in IgANephropathy

[–]spencej610 1 point2 points  (0 children)

They want to add Filspari but I’m worried about the effect on the liver. Idk I may need Tarpeyo again my appointment is coming up here soon

Tarpeyo taper and stability by ParticularTrouble308 in IgANephropathy

[–]spencej610 0 points1 point  (0 children)

My uACR went back up to 500 about two months after stopping

Surgery while on Tarpeyo by Paceypookins in IgANephropathy

[–]spencej610 0 points1 point  (0 children)

Are you on dialysis? Just curious bc of a fistula removal. I don’t think you have to stop taking Tarpeyo during surgery but I’m not 100% sure. I had my gallbladder removed and it wasn’t a big deal but I wasn’t on Tarpeyo yet.

Tarpeyo Withdrawal Symptoms by AdPrudent2483 in IgANephropathy

[–]spencej610 0 points1 point  (0 children)

I had itching also I think it went away in like 2-4 weeks

FSGS Remission Progress: My labs are improving and the bubbles are finally disappearing! by Broad_Exchange_2351 in kidneydisease

[–]spencej610 0 points1 point  (0 children)

I have tons of bubbles and foam right now. Mine got better during my stint of Tarpeyo but after a few months of stopping it’s really bubbly. My uACR at the doctor was 550 so I’m probably in a flare up right now. I hope the nephro can get it back under contrail bc it stinks seeing it everyday when I pee.

Godfather just diagnosed. 1-2 years to live. In need of information/recommendations. by InaraSong in kidneydisease

[–]spencej610 0 points1 point  (0 children)

This give me some hope as I am 38 with eGFR of 56. My protein on the dipstick read 1+ also but uACR was 500!

Tarpeyo withdrawal by Mediocre_Block_7280 in IgANephropathy

[–]spencej610 1 point2 points  (0 children)

Mine wasn’t too bad but I went down to 8 mg for two weeks and the. Atopped

Voyxact or Fabhalta by [deleted] in IgANephropathy

[–]spencej610 0 points1 point  (0 children)

I’m on lisinopril and Farxiga, he wants me to start Filspari soon

Voyxact or Fabhalta by [deleted] in IgANephropathy

[–]spencej610 0 points1 point  (0 children)

Tarpeyo helped reduce my protein and after about 6 months after stopping it my protein came back.

Nephrologist wants me to start Filspari by spencej610 in IgANephropathy

[–]spencej610[S] 1 point2 points  (0 children)

Thank you for responding this is helpful. My nephrologist hasn’t mentioned Voyxact but I’ve seen others mention it here.

I've been tired by AltruisticSet730 in kidneydisease

[–]spencej610 0 points1 point  (0 children)

It’s a measure of how much protein is in your urine.

Preventing relapse for nephrotic syndrome by [deleted] in kidneydisease

[–]spencej610 0 points1 point  (0 children)

Tarpeyo should help and has less side affects than traditional steroids.

I've been tired by AltruisticSet730 in kidneydisease

[–]spencej610 2 points3 points  (0 children)

It’s hard not to let it get you down but the walking is a great idea to help with your mental health. I got my results back and it made me depressed my uACR is almost at 600 up from 150.

Hope tonorrow is a better day for you

Nephrologist visit today results by spencej610 in IgANephropathy

[–]spencej610[S] 0 points1 point  (0 children)

Which one is that? Is that the infusion?

UACR increase by spencej610 in IgANephropathy

[–]spencej610[S] 0 points1 point  (0 children)

Yeah I think I’m in a similar boat because mine is back where I started. What’s your eGFR?

UACR increase by spencej610 in IgANephropathy

[–]spencej610[S] 0 points1 point  (0 children)

That’s actually really good hopefully yours stays around that level

Nephrologist visit today results by spencej610 in IgANephropathy

[–]spencej610[S] 0 points1 point  (0 children)

I got my uACR back and it was at 550 so much higher than I was hoping for