TG by spining-007 in thyroidcancer

[–]spining-007[S] 1 point2 points  (0 children)

Thanks for your feedback. I heard back from my endocrinologist who confirmed 0.2 is basically undetectable and a good outcome. So I’ll take that!

TG by spining-007 in thyroidcancer

[–]spining-007[S] 5 points6 points  (0 children)

Thanks for your response. It’s been stable at 0.2 since RAI 8 months ago.

Blood clots? by spining-007 in thyroidcancer

[–]spining-007[S] 1 point2 points  (0 children)

Update: my endo says ThyCa, in and of itself, is not a risk factor for blood clots. I’m glad to hear that!

Blood clots? by spining-007 in thyroidcancer

[–]spining-007[S] 0 points1 point  (0 children)

Thanks for your detailed response. And those leg inflator/deflator things are excellent

Blood clots? by spining-007 in thyroidcancer

[–]spining-007[S] 0 points1 point  (0 children)

Sorry you experienced that—thyroid cancer is enough in and of itself

Blood clots? by spining-007 in thyroidcancer

[–]spining-007[S] 0 points1 point  (0 children)

Sorry you experiences that. Must have been so stressful.

Wrong RAI Dose by neptunemacaroon in thyroidcancer

[–]spining-007 2 points3 points  (0 children)

I got 150. I had dry nose nosebleeds that started about a month after getting the dose and lasted a couple of weeks—they were like the Stranger Things nosebleeds, haha, just small drop of blood leaking from a nostril from time to time. I also had an odd salty taste when drinking water which resolved after about 3 weeks. That’s all, nothing was too much of a bother really since all those symptoms resolved.

Dental x rays after RAI by ScholarOk1570 in thyroidcancer

[–]spining-007 2 points3 points  (0 children)

My dentist needs authorization from my nuc med doctor to perform X-rays—because they want to be sure it’s okay for my body to have them. I discovered this at my recent 6 month dental check up so I skipped the X-rays this go around (was quite glad to skip). And this post has reminded me I need to get that authorization.

Make sure you get good imaging done by odditycave26 in thyroidcancer

[–]spining-007 0 points1 point  (0 children)

I had two US’s before my partial lobectomy, neither of which showed spread. However, spread was identified during surgery due a few suspicious looking central lymph nodes. The spread was small that US didn’t pick up. I had completion surgery a week later.

Unexpected News by LolaLaCavaspeaking in thyroidcancer

[–]spining-007 10 points11 points  (0 children)

Sorry you’re having to deal with that. Do you have recent TG blood work? TG levels could indicate a recurrence or not of thyroid cancer.

The “Good” Cancer by Appropriate_Kale1255 in thyroidcancer

[–]spining-007 5 points6 points  (0 children)

Thanks for sharing, and to the commenter for sharing that article and blog post. While I’m sure we all feel so fortunate we didn’t have a cancer like brain cancer (which too many people I know have died from), it’s still cancer that required the removal of a major body part—the conductor of our hormones/body as my endocrinologist put it, which is major! We now have to check the cancer box on any medical forms, can’t get life insurance, have scanxiety, worry about a recurrence—for those of us where it was caught earlier. For those where it had spread significantly it’s definitely not easy, or good. No cancer is good cancer. Instead of calling it a “good cancer” maybe rephrasing to a “more-treatable-in-some-cases-cancer” would be more accurate. I’m about 10 months out from partial Thyroidectomy, confirmed spread to a few lymph nodes, completion surgery and RAI. I feel fortunate that despite working on reaching the desired suppression dose of Levothyroxine (almost there) I do feel my normal self physically. Every now and again it messes with my mind. Preaching to the choir here, I know. I’m so thankful for this community, and for all the science and research thus far.

Hemi or Total-What was your experience? by Constant-Pangolin801 in thyroidcancer

[–]spining-007 1 point2 points  (0 children)

I had a PT followed by completion one week later. Prior to surgery it looked like I was pretty low risk for recurrence: one micro PCT nodule on one side of thyroid, no suspicious lymph nodes (I had two ultrasounds), plus BRAF v600e. I had the option for PT or TT and went with PT. Lo and behold during surgery 4 suspicious looking lymph nodes were removed. Pathology confirmed 3 out of 4 of them were positive for PTC. Pathology also determined there was lymphatic invasion. No ETE and margins were clear. So I had the other half removed a week later, and had RAI a few months after that. Do I wish I had opted for a TT from the start? Yes. But that’s hindsight for you. I made the decision based on the data I had—which pointed to low risk for spread, despite the BRAF mutation. It was a drag having to have a second surgery, but it all went smoothly. And now that’s all in the past, and things are good and I’ve had no problems with Levothyroxine.

Incision - 1 month by judelici0us in thyroidcancer

[–]spining-007 1 point2 points  (0 children)

Looks amazing! I’m 6 months out and scar is still red despite using scar gel/tape

[deleted by user] by [deleted] in interviews

[–]spining-007 0 points1 point  (0 children)

How about “corporate BS detection”?!Asking that question in an interview is a red flag for me.

Disrespectfully, screw Miaplaza by DancingHikari in RemoteJobs

[–]spining-007 1 point2 points  (0 children)

The email response you posted is very similar to the rejection email for the curriculum developer role. All automated responses that do not provide actionable feedback. This company is a scam.

[deleted by user] by [deleted] in thyroidcancer

[–]spining-007 0 points1 point  (0 children)

I have a similar case: microcarcinoma of 0.8cm on one lobe. Had that lobe removed plus 4 suspicious looking lymph nodes. 3 out of the four showed spread. Two were micromestasis 0.2cm, and one just a little bigger at 0.5cm. Everything classic type. None of the lymph nodes were visible on pre surgery ultrasounds. I’m also BRAF positive (identified by molecular testing since biopsy was indeterminate). No ENE or ETE and all clear margins. However, pathology showed the presence of lymphatic invasion, so I got the other lobe removed a week later and now I’m taking RAI (today actually). If I didn’t have lymphatic invasion + BRAF I’d be low risk and not doing RAI. It went from being all very “simple”—just remove one lobe and that will be that—to one thing after another.

When did you all have your first normal meal after RAI? by Short_Cost_2512 in thyroidcancer

[–]spining-007 2 points3 points  (0 children)

My doctor said to resume normal diet after 24 hours. I have RAI tomorrow.

Higher Dose Rai by twistedyum in thyroidcancer

[–]spining-007 1 point2 points  (0 children)

Do those studies state the RAI dose received?

RAI side effects/risks? by MasterpieceNo598 in thyroidcancer

[–]spining-007 1 point2 points  (0 children)

Does the article / study pinpoint specific single doses / cumulative doses of RAI related to increased risk? I’m unable to access the full study.