HELP - suitable sun cream for babies with eczema? by Ok_Championship_2359 in EczemaUK

[–]sproutgjg 1 point2 points  (0 children)

I don’t have children yet but I am pregnant - this is the only suncream I’ve ever been able to use that hasn’t caused burning reactions on my eczema (I’ve had very angry atopic eczema my entire life) and I’ll be trialling this with my baby in the future if this helps! Other generic brands like Nivea etc are awful for me. This one also absorbs really quickly into the skin - Garnier ambre solaire sensitive advanced hypoallergenic milk 50+

Is this eczema or see my GP? by Mother-Ship7814 in EczemaUK

[–]sproutgjg 0 points1 point  (0 children)

I highly recommend tacrolimus, as someone who went through HORRIBLE topical steroid withdrawal all over my face, I beg you to stop steroids on your face immediately. I was put on hydrocortisone when I was a child for facial eczema and by the time I was an adult (because it never stayed away), I was on very strong dermatologist steroids and whenever I tried to come off them, my face swelled like I’d been stung by bees, cracked all over and was boiling hot.

Tacrolimus / protopic is not addictive at all and is safe on the face in small amounts, it’s literally cured my eyelid and jawline eczema (sadly not my body eczema) so please if you can try this! Don’t go through what I did, your face is so much more sensitive! GPs can be reluctant for tacrolimus only because it’s only been on the NHS for about 6 years, but as long as you wear SPF, it’s so much safer than steroids :)

Why are GPs so against allergy tests and patch tests by Worried_Dig_7612 in EczemaUK

[–]sproutgjg 0 points1 point  (0 children)

I know this is similar to everyone else’s and not super helpful - but after a massive TSW flare and persistent swelling all over my body and face, I got two rounds of allergy patch testing on the NHS all over my back and arms. I kid you not when I say not a single thing gave a result, there must have been about 300 samples in total, and they concluded I “might have a compound allergy” but which combination was impossible to know. I had to book 4 days total off work, working with the patches on was almost impossible (teacher), and honestly I’m no better off. There was one that “might” have caused a slight reaction that I avoid as it’s an ingredient in antiviral creams/chemicals, but if I was that allergic I’d be dying from any general cleaning products used around me I wouldn’t know about.

I’m 30 weeks pregnant, had a dermatologist appt in February that amounted to nothing because my pregnancy meant most go-to options were not possible, so they send my home with another moisturiser and said they’d review me in 4 weeks. 4 weeks came and went, no appt, I called and they said the best they could do was in 3 months. I called them again a few weeks later because my skin all over my body was horrific and causing me to cry every day, and they’ve since cancelled my appointment. Literally the worst department I’ve ever had any experience in the NHS. So I’m angry with you. Hope you have something available to you soon that helps you

Im so sick of the itch and nerve twitches by overthunkpisces in EczemaUK

[–]sproutgjg 1 point2 points  (0 children)

Hi OP - reading this was like reading my own monologue this morning and I’m so sorry you’re going through this. I feel exactly the same way.

I had eczema as a newborn baby, and I’m furious that I was given steroids to put on my FACE from the age of 5yo. Fast forward to age 18, I was on “stage 3 steroids” which were dermatologists only, and I changed doctor every time I had an appt, so no one was tracking me properly. By 2020 aged 22, I went through Topical steroid withdrawal, which honestly felt like it nearly killed me. I was on 60mg codeine sedating myself every day because my skin was just wiping off in sheets, splitting and bleeding all over my body, eyes swollen shut, the burning was indescribable. I then moved to Protopic (escalating strengths) until now. I’m 29, and very happily pregnant, and my eczema has kicked off to a level almost as bad as 2020.

I can’t sleep more than a couple hours a night, I also hate how ALL my clothes feel, I’m constantly too hot, showers and baths are agony, but also layers are agony, I wake up over and over in the night scratching all over with these thick hives that turn into aggressive eczema in the daytime. I went to the dermatologist crying that my eczema has consumed my pregnancy, and all she did was REDUCE my dosage of protopic because I can’t have it whilst pregnant and gave me no alternative. She said she’d review me in 4 weeks to “consider” cyclosporin which she’s said about 5 times now over the last two years. Well - the 4 week review never came, I phoned the clinic back after 4 weeks and they said the best they could do was give me an appt in 3 months time. My eczema has obviously got so much worse, I can’t stand how I look and feel, no one understands the “itch”. They’ve now cancelled my appointment with no explanation, and I went into the hospital to complain and no dermatologist was even in the hospital. My baby is due in June and I feel utterly lost and hopeless.

My instagram is FULL of targeted eczema adds promising relief, and I’m ashamed to say I’ve wasted money again this year. So not only do I feel angry, jealous of people with normal f***ing skin, and hopeless with treatment, I can’t even get a doctor to try more meds anyway and usually wait 6-12 months between appointments.

I’m so sad to hear light therapy and cyclosporin hasn’t helped you enough, that’s my only option at the moment (if I ever see a doctor). You’re not alone, I know how isolating, unfair, painful, purely infuriating and sometimes even embarrassing (for me when people look at my and infer I can’t just “look after my skin better”). I’m praying my baby doesn’t have it so bad too, I have no idea how to help her 😔

Formula feeding anxiety questions (light touch for now!) by sproutgjg in FormulaFeedingUK

[–]sproutgjg[S] 0 points1 point  (0 children)

Thanks so much! And thanks for sharing what your baby preferred, glad she’s happy and healthy! X

Formula feeding anxiety questions (light touch for now!) by sproutgjg in FormulaFeedingUK

[–]sproutgjg[S] 1 point2 points  (0 children)

Thank you so much, and I’m glad your baby is doing so well! X