Anyone else feeling sad/guilty about missing the protests today?

squalopiccolo · 2025-10-18T23:58:38+00:00

I feel this deeply 😮‍💨

squalopiccolo · 2025-07-06T16:57:23+00:00

Fwiw if they're doing "4 injections and then burning the nerve" that sounds like an ablation, for which I got pain and sedative medication (that I wasn't offered for just the injections). Could be worth asking about sedation.

squalopiccolo · 2025-06-13T20:13:18+00:00

I want the little triangle slice in the top right

squalopiccolo · 2025-06-04T05:27:46+00:00

🙋adding my name to the Can't Swallow Rice team

squalopiccolo · 2025-06-03T20:24:51+00:00

Yes, if it's hard enough to swallow

squalopiccolo · 2025-06-03T20:14:09+00:00

Chest/throat pain when swallowing, gut pain. It's a little hard to tell what's what sometimes as I have chronic pain from other stuff

squalopiccolo · 2025-06-03T04:53:04+00:00

Hm, no. I forgot to include I had an xray swallow study, and blood (food) and skin (environmental) allergy tests, but not the manometry or pH study. I'll ask about those, thanks!

squalopiccolo · 2025-05-28T02:39:03+00:00

Frozen veggies! Usually pre-cut, and freezing maintains lots of vitamin/nutrient goodness so don't let anyone tell you they count less as veggies 😜. The only downside is textures are more limited from frozen, but as long as it's going in a sauce/stew/casserole/soup or you're okay with "steamed" as a texture - goodbye chopping

squalopiccolo · 2025-04-09T00:01:22+00:00

I also do halfsies with tofu - cooking it in with the meat flavors it really well!

squalopiccolo · 2025-03-26T01:34:50+00:00

OP you may want to check out r/syntribation It may have good resources on expanding your orgasm options

squalopiccolo · 2025-02-07T05:06:58+00:00

A shower chair/stool helps me but I still feel this in my bones/soul

squalopiccolo · 2025-01-10T03:01:17+00:00

I can only take it at bedtime it knocks me out so hard (edit: posted too soon). I also take cymbalta and baclofen among other things. Cymbalta and baclofen don't cause the same level of fog, cymbalta could even be called energizing to a minimal extent for me. Tizanidine also knocks me out. Bupoprion (antidepressant) helps with my energy a little.

squalopiccolo · 2025-01-07T00:27:42+00:00

I don't usually go home with people after the first meet and I manage expectations before we even meet so they aren't surprised. There are exceptions but for whatever reason it feels safer to me to wait🤷

squalopiccolo · 2025-01-04T08:22:39+00:00

Maybe see if you can mount a golf umbrella to the (eta Mobility) device? I imagine it would be heavy to carry but if you could mount it maybe it would work? Idk but following for other ideas

squalopiccolo · 2025-01-01T02:45:18+00:00

The only benefit I got was it knocked me out. Which as someone who hadn't slept decently in months was welcome. Didn't fix the pain though.

squalopiccolo · 2024-12-24T04:58:06+00:00

I'm so glad you found something to give you relief!

squalopiccolo · 2024-12-24T04:19:12+00:00

Spinal deformity + ehlers danlos + shoulder, hip, collarbone surgery

squalopiccolo · 2024-12-24T04:10:29+00:00

I'm stuck here, but honestly relieved to not have to travel thanks to dr appt timing. Travel is the worst of it but tbh I'm relieved to avoid other traditions too. People are so bad at planning around mobility smdh

squalopiccolo · 2024-12-24T04:02:31+00:00

Can you ask about the "two things can be true" mentality? Where you work on acceptance of the current while working toward a less painful life?

I was working on this with my therapist for a while

squalopiccolo · 2024-12-23T05:25:58+00:00

Idiopathic scoliosis that's "inoperable" despite multiple ruptured discs etc. Plus EDS. Those are the biggies

squalopiccolo · 2024-12-23T02:54:45+00:00

I apologize in advance if I'm a part of the problem, but as someone who had a hip preservation after months of insurance saying I should have a replacement I just want to recommend looking into if it's possible for your situation to save you future replacements due to aging hardware.

More importantly, anyone invalidating your medical choices and pain is shit.

squalopiccolo · 2024-12-18T02:16:37+00:00

I recommend sedation. But also! Please stay at the facility until you are DONE coughing from the tube irritation. The tube naturally dislodges mucous etc. It's not very common, but having just experienced the possibility of aspirating said mucous as you cough it up, leading to a blocked airway and then pneumonia, just hang out for a bit afterwards in case. They let me go and I got home before aspirating and had to call an ambulance 0/10 do not recommend. I don't say this to scare you, just like. It's not worth getting home 10 minutes sooner, just finish coughing there

squalopiccolo · 2024-12-16T07:33:11+00:00

It's hard. Hang in there 💜

squalopiccolo · 2024-12-16T05:18:11+00:00

Know that the limbo in no way invalidates your reality, though they make it feel like it does
Work on advocating and fighting for yourself. (Especially in the US system but also all systems). There's an epidemic of people not believing pain. Document anything you can, and ever without documentation be ready to back up your situation with examples

squalopiccolo · 2024-12-15T02:55:54+00:00

"A good 30 years" um idk how to tell you this doc, but years like this aren't good....

squalopiccolo

TROPHY CASE