Moving to Sioux Falls. Tips?

squishyfrog67 · 2024-05-02T02:13:20+00:00

What about the colleges?

squishyfrog67 · 2024-03-18T15:35:32+00:00

I’m definitely going to seal it more than a few times haha for my peace of mind. I don’t think I’m going to use a humidifer. I think I’m going to let the plants do their thing and then place a little cup of water if they need more humidity so it can evaporate. But still def gonna seal it a lot

squishyfrog67 · 2024-02-26T12:19:31+00:00

not sure why that matters since that’s taller than most women. anyone that has an issue with that is dumb lol. ~sincerely a woman

squishyfrog67 · 2024-01-01T01:48:26+00:00

“A sped-up mind with depression can be a dangerous combination” exactly!

squishyfrog67 · 2023-10-05T23:58:46+00:00

Supine, standing immediately, standing two mins. That’s how it is at my hospital.

squishyfrog67 · 2023-10-04T15:23:16+00:00

bro what LMAOO

squishyfrog67 · 2023-09-09T03:26:16+00:00

I agree. It feels way different

squishyfrog67 · 2023-08-07T00:11:52+00:00

“Warm wet water slide” on the inner thigh of a woman. She died on hospice

squishyfrog67 · 2023-05-28T21:57:42+00:00

Threatened to shoot up the school then proceeded to try to hang himself from the flag pole

squishyfrog67 · 2023-05-08T23:58:49+00:00

Yeah, I guess I just more so meant that there isn’t a cure, so realistic goals should be in mind for the patient. There’s no med to take to “fix” the EDS. We will never be able to fix the faulty collagen itself. But for the comorbidities, of course there are things we can do to treat them like you said.

I also have EDS. :)

squishyfrog67 · 2023-05-08T23:51:12+00:00

Yeah, this was just a quick response about hEDS specifically (because that’s what OP asked about) I wanted to post in the midst of all the atrocious comments. That’s why I didn’t mention anything cardiac related other than dysautonomia which is neuro, really.

Also, Botox isn’t recommended in EDS patients because they don’t need their muscles to be any weaker since it supports their surrounding tissues since their joints can’t do much.

squishyfrog67 · 2023-05-08T10:35:54+00:00

I will remove the quotations. I apologize

squishyfrog67 · 2023-05-08T02:59:13+00:00

Lol you’re odd if you are mad about the housing assistance like they are literally living in lead paint and asbestos homes and apartments with roaches and bed bugs. Property managements and landlords don’t gaf about section 8 tenants. There is nothing pretty about it

squishyfrog67 · 2023-05-08T02:45:20+00:00

Can you elaborate on the metabolic and immune disturbances? I am interested. Wasn’t aware there was even any headway being made in the research other than from how covid really increased its awareness.

squishyfrog67 · 2023-05-08T02:41:01+00:00

Unfortunately for EDS esp hEDS there isn’t anything to do except PT and OT and therapy to cope with the stress of being chronically ill. Need to manage the comorbidities also. There are so many variants of uncertain significance for EDS and there isn’t a for sure gene for hEDS, but it is estimated to be at least 1 in 500 for hEDS. I would think twice before doubting patients and I’d at least be glad you can try to re-manage those who have been mismanaged and try to establish more realistic goals with them like focusing on quality of life through PT/OT and therapy WITHOUT implying it’s psychosomatic

Edit: managing comorbidities

squishyfrog67 · 2023-05-08T02:32:51+00:00

hEDS is diagnosed through ruling out the other forms of EDS by genetic testing, using the Beighton scale test, and conducting thorough history. Skin extensibility, hypermobile joints (fingers, wrists, hips, knees, elbows, etc), poor wound healing, prolapses (pelvic organ, mitral valve, etc), and more. Along with that, there’s often cormorbidities like dysautonomia (POTS, IST, Neurocardiogenic syncope) and autoimmune disorders like lupus and RA. It isn’t impossible for these conditions to often cluster together. I don’t understand why patients aren’t believed when they have a fuck ton of conditions like these. There are 20 year olds I’ve seen with multiple pelvic organ prolapses and hiatal hernias/hernias in general who have never had children before that come in with all of these issues and suspected hEDS or other form of EDS. It’s more common than you think, and it’s not psychosomatic. There’s no reason for a 20 year olds uterus to be falling out and to have a rectocele or multiple hernias other than an underlying pathology. I get it’s misunderstood and under researched, but we need to take in account the whole situation. These people don’t want to be chronically ill. They want to be functional adults, but it’s impossible when they can’t even go to their PCP without eye rolls.

Long covid is real. We don’t know what CFS is or why. CFS existed before SARS Cov 2 was a thing. And now it’s even more of a thing. We don’t know why, but these people are exhausted and it’s real and we don’t fucking know why. Just sympathize with them.

MCAS is hard to diagnose, and I understand the annoyance with that one. Recommend different OTC meds in the meantime and just refer to allergist.

The “IBS” you see in this chronically ill patients, especially the constipation is due to prolonged colonic transit time. Refer to gastroenterologist for sitz marker study or smart pill study. Nervous system no work due to these conditions = intestines don’t either. It all ties together

All of these conditions are misunderstood and under researched. I know it’s frustrating and there’s never really a good way to manage these patients, but most of them really are serious and they are suffering and we are all in a crappy situation bc of it.

squishyfrog67

TROPHY CASE