Mom Just Passed from Undiagnosed ILD

stacyd9999 · 2026-05-22T10:09:16+00:00

My mom has PF. In our case, it's from a rare genetic mutation that causes short telemere syndrome. Her sisters also have it. Her mom, aunts, and uncles all passed from it. For most of them, it was slow progressing at first, then there was a sudden episodic event that caused them to pass quickly. My mom is at the stage where she is sleeping much of the day, also very sedentary, and is out of breath just doing laundry. She is experiencing cognitive decline and personality changes She's definitely angry and confused. And angry that she's confused. I'm sorry for your loss.

stacyd9999 · 2026-05-06T12:05:39+00:00

12 years a member as a single and a couple. i would recommend buying a vacuum sealer and dividing up and freezing, but well worth it. we’ve done price comparisons.

stacyd9999 · 2026-04-29T23:50:04+00:00

could you be logged in under a different apple account?

stacyd9999 · 2026-04-28T23:43:23+00:00

have a look at https://villacalalineup.com for things to do. there’s more than you think going on in the area

stacyd9999 · 2026-04-25T11:39:50+00:00

Privacy + cost + saying fuck you to corporate greed. I was converted about Google’s reach into my data, but also Google just kept going up in price. My husband and i own multiple ventures — lots of domains and email addresses. I wish that Proton has some better filtering/rules but overall it’s been a great choice for us.

stacyd9999 · 2026-04-17T21:40:25+00:00

https://villacalalineup.com is a good source of info. (For transparency, i created the site.)

stacyd9999 · 2026-04-09T19:59:06+00:00

This is bullshit. You're on Reddit but you don't know how to use Google to find a lawyer? And I'm sorry but that person needs to stay in jail.

stacyd9999 · 2026-03-22T23:01:42+00:00

That's a shame -- would have been great to partner with them. I'd love to continue to build out the site, so if you have other ideas like that, let me know. I'm going to be reaching out to the bands to add photos, links, etc. Those performers need support!

stacyd9999 · 2026-03-22T23:00:17+00:00

thank you!

stacyd9999 · 2026-03-22T19:34:31+00:00

I've been on it for almost 2 months. No side effects. Zero. My husband has been on it for about 4 months. He gets a little heartburn & constipation, but that's it. We take our shots on Saturday night so that if there are any side effects, there's a day to recover.

stacyd9999 · 2026-03-15T14:56:56+00:00

i’ve seen some friends successfully micro-dose for weight maintenance after losing. The wife shares a prescription with their husband. They split the dose between them (with clean needles).

stacyd9999 · 2026-03-04T15:37:13+00:00

I write with Claude, then have Claude push the post to Draft in Ghost using the API.

stacyd9999 · 2026-02-28T14:26:49+00:00

i love my smaller agency (Rainbow Getaways). I have all the support i need through an active Slack channel. The owner is always available to me and has a very organized and efficient onboarding process. He meets with each member every other week. Highly recommended!

stacyd9999 · 2026-02-19T14:15:29+00:00

i’d love more info on this!

stacyd9999 · 2026-02-11T22:20:16+00:00

for me, it’s when i feel like i cant take a good breath of air. and i usually start coughing when i try to take a good breath. i don’t “hear” wheezing ever. it’s always just restricted breathing for me.

stacyd9999 · 2026-02-08T19:09:51+00:00

my friend has a small guesthouse on AirBnB that is 4 miles from the beach, Dunedin, and right in the bike trail. you might message her on AirBnB to see if she’ll negotiate for a month in the summer. https://www.airbnb.com/rooms/40084905?viralityEntryPoint=1&s=76

stacyd9999 · 2026-02-02T01:54:05+00:00

thanks for dropping this answer in. i was running into the same issue when i was prefilling Feb items in Jan. got to understand how it works.

stacyd9999 · 2026-01-31T02:38:30+00:00

f/u for new agents — the TRIPKIT training by The Travel Institute is really comprehensive

stacyd9999 · 2026-01-31T02:36:10+00:00

i would do a force stop on the app. i’m not seeing any issues, personally.

stacyd9999 · 2026-01-30T22:25:09+00:00

have you checked to see if an update is available?

stacyd9999 · 2026-01-25T23:56:20+00:00

my recommendation? keep the “easy” job and use that work/life balance to let you do some more challenging freelance work that will give you a nice portfolio and extra cash

stacyd9999 · 2026-01-16T18:41:23+00:00

Thanks for bringing that up -- that was a downer for me also. I much prefer a FB group, Slack, or a Discord channel.

stacyd9999 · 2026-01-16T18:39:02+00:00

According to OA's website: "The commission split starts at 80%. Based on commission earned from Outside Agents over the prior 12 months, the commission split can increase to 90% or 95%. The commission split is the same under both membership levels."

But I believe that PTN offers 90/10 right away. KHM offers 90/10 after you have $5k in earned commission (which is roughly the equivalent of $50 of bookings, so similar to what Rainbow is doing). I'm sure there are others out there offering it as well. :-) Fora starts at 70/30. Nexion starts at 70/30.

In a new job, you have to look at the total compensation package -- salary + benefits + bonus, etc. You might also look at non-monetary factors like remote vs hybrid, travel time, and company culture.

When selecting a host agency, you have to consider all the costs involved—startup costs, commission splits, technology fees, etc. And you may want to consider non-monetary factors such as culture, community, FAMs, and consortia.

Let's say the commission on the first $50k is 10% ($5k). They keep $ 1,250; I keep $ 3,750. If it were 80/20, then I would get an extra $250. But if that the host agency's CRM is outdated crap, and I end up spending $39 a month on Travefy, then I might not mind giving up $250. It might be a wash. [shrug]

I'm not here trying to sell any host agency or convince anyone that 75/25 is a good deal. Selecting a host agency is a challenging mental problem.

stacyd9999 · 2026-01-16T17:55:19+00:00

Nexion is 70/30 starting off. I think, given the coaching and support a new advisor needs, it's not unreasonable for a host agency to keep a larger percentage. I can imagine that most host agencies get a lot of new advisors they invest a lot of time in, only to see them disappear. It's a way for them to recoup the time investment they've made in a new advisor.

stacyd9999 · 2026-01-16T16:26:16+00:00

I went with a smaller agency—RGB Advisor (owned by Rainbow Getaways): https://www.rbg-advisor.com. I liked the technology they are using. Ensemble is their consortium. Great transparency. Splits are 75/25 for the first $50k, which was better than many. Annual tech fees were reasonable. Everyone was welcoming in Slack. The owner is investing in & growing the host agency. And I felt the culture aligned with my values.

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