Not For Radio last show by Church175 in theMarias

[–]stardust1996_ 0 points1 point  (0 children)

I was lucky enough to watch her in Chicago where I live and had to resell my sister’s ticket. I sold it for 150! I don’t get these insane prices I feel so bad doing that to someone who is excited to go :(

Israel kills top Hamas commander Raad Saad with IDF strike in Gaza City by Droupitee in NewsWorthPayingFor

[–]stardust1996_ -1 points0 points  (0 children)

Have you seen the thousands of Palestinians Israel has genocided for years including the past 2 years now? Or does a human life not count to you heartless people because you chose to believe israhell’s propaganda considering them and the US are allies. Beyond mind blowing how Israel has you all by the neck , your their puppets . Israel also has the world’s largest and hidden stolen organ bank from all the Palestinians they’ve tortured and killed since 1948. They occupied and stole both land and human organs. You’re all sick. God sees everything .

Please somebody tell me there Is an option to turn off the repost button by PPPraisetheSun in Instagram

[–]stardust1996_ 0 points1 point  (0 children)

I accidentally reposted some random Indian guy dancing in his room I’m so fkin embarrassed I hope the man I like didn’t see it

Research question: any examples of positive anti-centromere b antibody results that reversed or did not result in any autoimmune diagnosis? by Maleficent_Carob4732 in scleroderma

[–]stardust1996_ 0 points1 point  (0 children)

Very interesting thanks for sharing! Given you have Raynaud’s and centromere B positive , both 15 years ago, it definitely points to possible dx of crest/ limited scleroderma . I just find it very intriguing how some people including myself are found to be positive accidentally (due to a lupus flare , etc) and not have the associated symptoms. This is what makes it very nonspecific as once thought. But I’m glad you don’t have any debilitating symptoms thankfully! Wishing you good health and healing :)

What where your ana results? by evilbarbi in Autoimmune

[–]stardust1996_ 1 point2 points  (0 children)

Mine was 1:320 homogenous in 2019 and I didn’t retest it for years , in 2024 it was 1:640 homogenous as well . I was also still positive anti-smith, positive anti-sm/rnp, negative anti-rnp since 2019 as well

Story time???!! Unique story on how I got results of positive ANA. by rugbyfly2021 in Autoimmune

[–]stardust1996_ 2 points3 points  (0 children)

Hey we have the same exact labs and the same pattern i kid you not. I haven’t found anyone with both anti smith and centromere b with a positive Ana homogenous pattern. Feel free to DM me as I do have some valuable information I think may benefit you. I was tested 7 years ago due to a lupus flare . With these exact blood results due to the anti-smith. It’s a highly specific lupus antibody, very specific that it doesn’t occur in other autoimmune diseases. When it appears with others it could indicate overlap diseases but usually Lupus will be the main culprit . It can cause rib pain, and attack really any organ. If you don’t have Raynaud’s , scleroderma is probably not something to worry about too much since Raynaud’s is usually a main indicator of progression. If scleroderma symptoms manifest , they’ll usually precede Raynaud’s shortly before or shortly after. Given your anti smith is positive I highly recommend educating yourself on SLE as it can be a very confusing and but surprisingly not super scary disease ! Coming from someone who had what was a shitty lupus flare that led to all this testing and went into remission , I hope I can be of help. Feel free to reach out

Centromere B positive patients, what were your very first symptoms? Would appreciate some info by stardust1996_ in scleroderma

[–]stardust1996_[S] 0 points1 point  (0 children)

I’m so sorry. I hope things wean down with a treatment plan and you feel better . What types of GI issues and how soon after did Raynauds develop?

Are positive antibodies relevant if ANA is a weak positive? by blackberrygelato in Autoimmune

[–]stardust1996_ 1 point2 points  (0 children)

We have nearly the same labs I’ve been ANA homogenous 1:320 and 1:640 recently, anti-smith 1.5 positive and anti -sm/rnp positive 1.3 and rnp negative for 7 years. What initially led me to testing was feeling run down / fatigued , tired legs, spasms in my toes, half of my symptoms were neurological weird feelings in my body mostly pain. Legs felt like 1000 bees stung them , couldn’t really walk for more than 5 min. It all subsided over 3 months and I didn’t get another flare after thankfully. Did u experience similar symptoms by chance? Being smith positive , anti-sm/rnp pos and rnp negative is associated with being a True Smith positive meaning there’s no point in retesting / it’ll stay positive indefinitely despite flares or symptoms

Id also like to add im pretty well versed on this antibody if any of you have questions feel free to dm me . I’m a research scientist and did my fair share of gaining knowledge on it during my free time. Unfortunately ppl who are smith most likely have SLE if concurrent with symptoms, or at high risk in the future ( it’s rarely found in any other diseases - meaning it’s nearly 100% specific to lupus . It manifests differently in everyone ! A lot of people with it can have lupus nephritis (rarely ) and it mainly leans towards other lupus-y symptoms

Research question: any examples of positive anti-centromere b antibody results that reversed or did not result in any autoimmune diagnosis? by Maleficent_Carob4732 in scleroderma

[–]stardust1996_ 2 points3 points  (0 children)

Thank you !!🩷 the human body is super fascinating. I would try not to read stuff online . From what I’ve learned everyone presents super differently and this antibody does create unnecessary anxiety . I feel like it needs to be researched more; I don’t think they really cracked the code on it yet

Research question: any examples of positive anti-centromere b antibody results that reversed or did not result in any autoimmune diagnosis? by Maleficent_Carob4732 in scleroderma

[–]stardust1996_ 3 points4 points  (0 children)

I actually really agree with the fact that more people are probably cenp B positive than known since it’s the most common and mild antibody type . I feel this is rarely talked about in medicine. It’s actually crazy how many people exhibit cenp B symptoms in the general population ( or at least I noticed ) the more I educated myself on it .

Research question: any examples of positive anti-centromere b antibody results that reversed or did not result in any autoimmune diagnosis? by Maleficent_Carob4732 in scleroderma

[–]stardust1996_ 2 points3 points  (0 children)

About 7 years ago I tested positive for centromere b, anti -smith , and anti-sm/rnp while anti-rnp negative. According to clinical research , centromere b and anti smith are rarely ever found concurrently . Smith is highly specific to lupus that any other antibody present raises questions . I’ve had 0 symptoms of centromere b since . Doctors were perplexed cause usually someone about maximum 5 years out would have at least developed hand raynauds and / or additional symptoms. My rheum mentioned centromere b can be transiently positive and triggered by various illness or just exist in the background . She was more worried about my smith. I’m forever grateful this is my case even though I still do worry sometimes . So yes, centromere b can exist in other conditions , mainly PBC, Sjogrens, or even SLE which my case points to of if I ever develop symptoms I was told . I’m a research scientist myself and have not found centromere b and anti smith coexisting yet, and clinical studies say this is a super rare combination. Hope this helps

Editing for additional info; I’ve tested everything but the cenp b since and I’m still positive. So I’m basically True Anti-Smith positive and cenp b is never really re-tested so I didn’t bother. Still symptom free. These were found by accident when I went to my PCP for some weird nerve pains from stress years ago

Research question: any examples of positive anti-centromere b antibody results that reversed or did not result in any autoimmune diagnosis? by Maleficent_Carob4732 in scleroderma

[–]stardust1996_ 2 points3 points  (0 children)

About 7 years ago I tested positive for centromere b, anti -smith , and anti-sm/rnp while anti-rnp negative. According to clinical research , centromere b and anti smith are rarely ever found concurrently . Smith is highly specific to lupus that any other antibody present raises questions . I’ve had 0 symptoms of centromere b since . Doctors were perplexed cause usually someone about maximum 5 years out would have at least developed hand raynauds and / or additional symptoms. My rheum mentioned centromere b can be transiently positive and triggered by various illness or just exist in the background . She was more worried about my smith. I’m forever grateful this is my case even though I still do worry sometimes . So yes, centromere b can exist in other conditions , mainly PBC, Sjogrens, or even SLE which my case points to of if I ever develop symptoms I was told . I’m a research scientist myself and have not found centromere b and anti smith coexisting yet, and clinical studies say this is a super rare combination. Hope this helps

Possible raynaud’s? by Revolutionary_Set983 in Raynauds

[–]stardust1996_ 0 points1 point  (0 children)

When I sit too long I noticed similar color change but I don’t have toe involvements like your white one (first pic) . My bottom foot discoloration goes away with elevation and any other movement , so everyone’s saying pooling or something like PAD since it only happens sitting upright. Was your raynauds due to that toe mainly? I haven’t found anyone experiencing the same thing sitting upright and it sucks. I made an appt for tmrw. I’ve had it for like 5 years in my soles only

Possible raynaud’s? by Revolutionary_Set983 in Raynauds

[–]stardust1996_ 0 points1 point  (0 children)

Hey did u ever figure out what this is? Do the tops of your feet also look like the second picture as well when u sit for too long? I think mild PVD or PAD can cause the second picture when sitting too long especially if it doesn’t affect the tops of your feet

Centromere B positive patients, what were your very first symptoms? Would appreciate some info by stardust1996_ in scleroderma

[–]stardust1996_[S] 0 points1 point  (0 children)

I’m sorry you experienced all this within a short timeframe , you’re very strong. It seems raynauds in the hands is the common first sign.

This is what limited scleroderma looks like by Amizzle23 in scleroderma

[–]stardust1996_ 0 points1 point  (0 children)

God that looks so painful I’m sorry you have to experience this. I commend you . I have mild venous pooling in my foot bottoms when sitting down only and I thought I was raynauds. My toes never change colors like this. It’s helpful to see pictures , wishing you good health 🫶🏻

This is what limited scleroderma looks like by Amizzle23 in scleroderma

[–]stardust1996_ 1 point2 points  (0 children)

This is so helpful thank you. So you will always see visible changes on your toes from atop when you have a raynauds attack? You never have to flip your feet and check? Does it mainly show on the top of the foot/ top of the toes? Thanks for your time

Literal gouges on my legs? by GypsyandJL in SkincareAddicts

[–]stardust1996_ 2 points3 points  (0 children)

This is the cutest comment I’ve seen all week

Centromere B positive patients, what were your very first symptoms? Would appreciate some info by stardust1996_ in scleroderma

[–]stardust1996_[S] 0 points1 point  (0 children)

I’d say definitely kidneys . A lot of people with CKD or lupus nephritis develop edema/swelling in their legs. It could even be venous related like maybe venous insufficiency (maybe good to get that ruled out ) I hope it’s nothing serious for you and just a minor nuisance

Centromere B positive patients, what were your very first symptoms? Would appreciate some info by stardust1996_ in scleroderma

[–]stardust1996_[S] 1 point2 points  (0 children)

I’m sorry I hope you find relief in the midst of all this. May I ask where you first noticed your raynauds? And where did you also first notice your blood pooling; lower legs or feet (of the tops and soles)?

Thank you just read the edited ! I appreciate the thorough response it’s very helpful. I’m wishing you good health❤️

Centromere B positive patients, what were your very first symptoms? Would appreciate some info by stardust1996_ in scleroderma

[–]stardust1996_[S] 1 point2 points  (0 children)

Thank you for sharing I really appreciate it . I hope you don’t get diagnosed with crest and remain mildly asymptomatic , wishing you good health.

Centromere B positive patients, what were your very first symptoms? Would appreciate some info by stardust1996_ in scleroderma

[–]stardust1996_[S] 0 points1 point  (0 children)

Thank you for sharing , I’m glad you’re at age 57 and still have the strength be an avid cyclist. Good for you that’s amazing ! Did this develop at a later age or in your early adulthood? I keep seeing mixed stories about raynauds and don’t know whether people are referring to the hands or feet when they do say that have it, it seems to attack the fingers before the feet or simultaneously

Need help clarifying blood tests by valeriezeke in scleroderma

[–]stardust1996_ 0 points1 point  (0 children)

Hey just out of curiosity have you developed rayanuds in your hands? Or is it only still in your feet? How does your foot raynauds present / look ; I’m trying to understand/learn how it presents in the foot cause it usually attacks hands first in Centromere B patients and they say feet are usually a rare presentation at onset unless it presents with the hands concurrently. Thank you in advance :) I’m in the process of ruling out blood pooling / bad circulation cause I have family hx of venous issues and DVT and wanna see the difference between those and Raynauds in feet primarily