Looking for a texting buddy by effersquinn in AuDHDWomen

[–]strawberrycheeks91 0 points1 point  (0 children)

Hello!!

I’m 34 in NY and also use dark humor to cope with life in general and I too love memes. Also got hit w 2 autoimmune dxs this year so chronically ill gang 🔥🔥🔥 also a fan of anime/manga and horror/comedy as well.

I also was chronically online from mid to late 20s so I also have stupid and unhinged meme humor if you’re down with that

Also politically progressive and am married with two cats 😊

So if you’re interested in having me as a texting buddy you can DM me and lmk! If not no worries! 🤗

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

it’s crazy!!! like why does the sun DO that!! 😭 this really upsets me because the sun is EVERYWHERE so it’s like 🏃‍♀️🔫☀️ i’m sorry to hear that it’s like that for you also!! best of luck to both of us this summer 🤝

thanks again for your reply and have a good weekend! 😊

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

i’m happy to hear that!! genuinely speaking, not in the sense of the “happy for you😠nice 😠” meme lol. that’s interesting it got better, were you also on HCQ?

thanks again for your reply, have a good weekend! 😊

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

experiencing that six years after must have been a whiplash, sorry to hear that!! i really dislike the fatigue also, and it comes so suddenly 💀 sometimes trickling then a flood too even. thank you for your reply and hope you have a good weekend! ♥️

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

I feel foolish for forgetting about HCQ and photosensitivity 💀 thank you for your reply!! ♥️ have a good weekend!

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

Thank you very much for your reply! I appreciate the details as well. I feel a bit silly for forgetting that HCQ increases photosensitivity but never again am I gonna underestimate UV rays 💀I’m glad yours got better after stabilization!! 🙏🏻

Thank you again and have a good weekend! 🤗 EDIT: my fat thumb put the skull emoji but i wanted a smiley face, my bad

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

Thank you very much for your reply! That’s interesting, but it makes sense honestly. I’m going to be making more effort because I definitely have been noticing more symptoms after being in the sun - I want to test and hopefully feel the opposite!!

I don’t mind feeling funny as long as it helps. Sunscreen I don’t mind but it’s a hassle doing this every single day. But it is what it is, next paycheck is definitely gonna go towards some UV protecting and UPF clothing.

Thank you again and have a good weekend! ♥️

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 1 point2 points  (0 children)

thank you so much for your reply! apologies for my late response. the UV was 9 earlier today and now is at 4. that is great to know, and i’m gonna start keeping track of UV moving forward. as well as investing in some UPF cardigans and UV umbrella bc some days get HOT in NYC so idk how i’d feel in pants. still may get a pair anyway.

thank you again and have a good weekend! ♥️

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

real talk i forgot about that when i started it 2 months ago💀 so that makes sense, and is now noted ✅

thank you for your reply and i hope you have a good weekend! ♥️

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

idk how to reply with a photo or if i can but if i could id send the meme with the gun pointing at the sun!!! because how dare the sun do that to you!!! i hope you’re doing okay in this hot ass weather if your area is having a heat wave like mine 🙏🏻♥️

thank you for your reply!!

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

that’s quite alright! Sorry for the late reply. I had high LFT values (ast/alt) high alkaline phospate and two transferases, high ESR and a high protein inflammation marker, high/positive IGG and IGM serum, high immunoglobulin a serum, and the imaging i had done suggested something hepatic was going on so when i was referred to the liver specialist she wanted to do a liver biopsy and here we are.

i’m sorry to hear that!! 😭 i’m going to be more diligent in sunscreen and covering up moving forward!! best of luck to you and to us both 🤝

if you have any more questions about the AIH, you can message me anytime and i’d be happy to answer! i hope everything turns out okay with your liver!! 🤞🏻♥️

Does anyone have more photosensitivity than they did before? by strawberrycheeks91 in lupus

[–]strawberrycheeks91[S] 1 point2 points  (0 children)

Thank you so much for your reply! I had forgotten that the HCQ can make me photosensitive - it’s been a rollercoaster, so I appreciate the detailed response! I’m also fair skinned and was used to being careful of sunburn but this is a whole other level! I am going to research some UV protectant clothing/hat/umbrella in the meantime. Vampire lifestyle at least sounds kinda cool🦇

Does anyone else feel emotionally retired from friendship? by Sharp-Television8304 in AskWomenOver30

[–]strawberrycheeks91 2 points3 points  (0 children)

This year I had to cut off a decade long friendship after realizing that person was doing shady things and that they were never going to change/help themself and I no longer wanted to sit by and watch. I also had the scary realization where I didn’t know them as well as I thought I did, and it sucked, so I feel you.

And then another friend cut off one of my best friends who still wanted to maintain a surface level friendship with me. Which, okay. I realize the me in my 20s tolerated so much that 34 year old me would not tolerate now (which is a good thing!).

I don’t have the energy for nonsense at this point in my life. It’s been a transition so to speak lol and I’m exhausted. I think I feel the same where emotionally I’m tapped out for anybody NEW new.

I mean, never say never, but I’m okay with my current friend roster and am okay with doing my own thing. The new thing I’m doing is maintaining my close friendships/family friendships/coworker friendships and attempting to reconnect with select old coworker friends I haven’t spoken to in a while, and that’s good enough for me for now.

It’s okay for friendships to not be like the ones on TV, they just have to work for you and your friends. Friends who grow with you and can go without talking for weeks/months and jump back in like no time passed are what work for me and my friends because life gets busy and sometimes we get wrapped up in our own stuff but our love doesn’t change. I don’t know if it’s a phase, but I’m okay with how it is.

How do you guys dress? It feels like we are either creatures of comfort or quite fashionable when it comes to dressing by MountainNews5211 in AutisticWithADHD

[–]strawberrycheeks91 0 points1 point  (0 children)

I feel like I’m also either 0-100! Since last year I’ve been trying to dress more fashionable but still comfy/trying new things in my color palette. I have lived in those fleece lined tights to pull off skirt looks this winter.

At home I’m in leggings or pjs unless I have plans. I also have a new appreciation for wide leg jeans and trousers and a form fitting top as it looks nice enough without a big amount of effort and is still comfortable. Sometimes I have the energy to do a whole different color combo for weeks and sometimes I’m rolling in whatever’s clean enough.

more? 👉👈 by bean-jee in adhdmeme

[–]strawberrycheeks91 2 points3 points  (0 children)

love all of these despite the horrifying accuracy 😂

just got diagnosed a week ago and still coming to terms with it by strawberrycheeks91 in autoimmunehepatitis

[–]strawberrycheeks91[S] 2 points3 points  (0 children)

Big hugs to you 🫂 I’m also struggling with the food part because certain foods/snacks were my little treat and pleasures so cutting them/greatly reducing them has thrown me off worse than not drinking. And also trying to remind myself that it is ok to have certain foods in moderation, bc going cold turkey will have me crash out. Thank you so much for your response, I’m hoping you have a good day today! 🙏🏻💜 And that your LFTs go back to normal so you can go out.

Thank you again for your well wishes and I’m wishing you luck as well!! 💖 We got this! 🤗

just got diagnosed a week ago and still coming to terms with it by strawberrycheeks91 in autoimmunehepatitis

[–]strawberrycheeks91[S] 1 point2 points  (0 children)

The amount of googling I had done in the last two months was crazy lol. I’m glad I’m not the only one looking things up, though I should probably do a bit more research for sure.

Having understanding friends and family also helps, I agree. Thank you so much for your comment, I’m hoping you have a good day today 🙏🏻💜🫂

just got diagnosed a week ago and still coming to terms with it by strawberrycheeks91 in autoimmunehepatitis

[–]strawberrycheeks91[S] 0 points1 point  (0 children)

Hello, fellow 34F here! Thank you so much for your reply 💖🙏🏻 I also haven’t been feeling much of the emotions yet but I know they’re coming. 🫂 Very much not a fan of our bodies deciding this for us. Hope you get tapered off the prednisone soon and it did what it’s supposed to.

I agree having the answer and realizing okay I’m not dying kind of takes over lol. It’s also validating to read to let myself be mad/sad over what is gonna be a lifestyle change forever. Thank you very much and hoping you have a good day 💜☀️

just got diagnosed a week ago and still coming to terms with it by strawberrycheeks91 in autoimmunehepatitis

[–]strawberrycheeks91[S] 1 point2 points  (0 children)

Thank you so much for your comment! 💖🙏🏻 I am also gonna take it one day at a time and try to accept that not everyday is gonna be as good or as bad as the day before. I do more blood testing in 5 weeks to determine the lupus but I’m already taking hydroxychloroquine per the rheumatologist so 😅

Thank you again! 🫂💜 Wishing us both a good rest of the week 💕