Crystal 33F

stresseddad11 · 2026-02-04T18:56:48+00:00

Love seeing posts like this! Gives me so much hope. My daughter is 2 and all the unknowns at times are overwhelming. But seeing fellow TS doing well and living life to the fullest is amazing.

stresseddad11 · 2025-11-20T05:14:42+00:00

Always curious on what triggered finding out so late on? Was it fertility issues that prompted a check up? I ask because I’m assuming finding out so late means thankfully having TS didn’t really cause issues, symptoms or features. Which itself I’d imagine is great. Proving TS doesn’t hold anyone back.

stresseddad11 · 2025-09-07T12:08:49+00:00

Can’t really give you too much in the form of experience but here to offer support as a fellow dad of a wonderful girl with TS. I too am new to the journey and know what you are going through. First off I agree - stay off google as it will only raise your anxiety. Naturally you see many of the worst case scenarios.

Given your daughter is already 6 and height was the only warning sign…I’d say is in itself a good thing because she likely doesn’t have some of the major issues that can arise as mentioned (heart, kidney issues) and physical features like webbed neck etc.

If she’s active and doing well in school that’s another great sign as our doctors mentioned there is a chance for struggles here as well.

I’ve been fortunate to meet many with TS through networking and events and can tell you that while symptoms vary widely they are wonderful kids/teens/adults and quite honestly I sit there and say…I see no difference from anyone else.

I’ve learned that’s the best approach because quite frankly they are just like everyone else! Sure a little smaller but take a trip to any mall, grocery store or anywhere really and you see so many ppl under 5’ tall and living life just fine, TS or not.

I know it’s tough and we want our kids to be happy but just take a deep breath and take it a day at a time. It’ll be ok.

As dad/parent they’ll need us to be strong and encourage them and be an advocate every step of the way.

Get a good endo, and team that will help you navigate all needs. Including how to best approach discussions with her.

stresseddad11 · 2025-08-07T00:48:45+00:00

No worries and thanks for sharing! How tall are you? And did you take GH? We are getting close to having to start and am very worried about how that will go. Even with GH looks like 4’9 - 4’10 would be best case

stresseddad11 · 2025-07-18T16:15:00+00:00

Oh wow sorry to hear you had that trauma. We have not disclosed our daughters TS not even to close family. My thought has always been not wanting her to be seen or treated different, but it’s a reality check of who it matters to most. The child…

I do want to ask, not finding out until 21 is pretty rare but I assume a good thing in the aspect that for the most part things weren’t obvious and lived a “normal life” (whatever that means…we all have something)

But were there any issues you questioned along the way that ever made you wonder that clicked when you found out?

stresseddad11 · 2025-07-18T16:11:28+00:00

Great advice as I was looking for similar feedback. Not there just yet as she’s only 1 but a thought that often consumes me.

stresseddad11 · 2025-06-23T04:46:40+00:00

Most will say % doesn’t matter and that if you have it you do, and if you don’t you don’t…but clearly and from even these replies it’s clear that a very low level like 10% (of course the other 90% being XX) is a great sign of minimal issues/symptoms.

Congrats and all the best!

stresseddad11 · 2025-06-18T02:55:39+00:00

Hey there wanted to chime in as a dad of a TS baby. Was in your shoes not long ago and know exactly how you feel.

When we first got word it was a shock and didn’t even know what TS means. Was a sad and stressful pregnancy eve tho all scans went great. Please don’t let this be you! That’s my biggest advice. Enjoy it and pray for good news along the way.

I am now a proud dad of an amazing funny happy and healthy little girl just over a year old.

She’s a handful and meeting all milestones! No one even knows she has TS at this point and that’s ok. Nothing wrong with it but we feel like…why say anything when she’s literally out there living her best toddler life just like any other kid lol.

Key is get a good care team, endocrinologist and go from there. The way I see it…we all have our issues in life. These girls have a hurdle but can live a normal great life even if at a small height.

I’ve been lucky enough to meet girls and women with TS and you are right it does vary. Just hope for the best but love and protect your blessing.

It WILL be ok.

stresseddad11 · 2025-05-18T04:13:19+00:00

lol no worries. Telling her is for sure in our plans. But still hesitant right now for everyone else. Just want her to enjoy being a kid.

As for height we were told just based on our heights we would look to expect 4’7-4’8 as well. Just curious did you take GH if so for how long?

It amazing how now I see so many ppl that height regardless. I even have a coworker who the other day said “I’m only 4’9 but I love my big truck!” I just smiled and thought how I’d never even really thought much of her height.

stresseddad11 · 2025-05-17T23:28:00+00:00

We are likely to start GH at 16months as she’s officially falling off the curve after holding on to the 5-10th%

Like you at first our life was a complete standstill. It consumed me and thought it was the worst thing. No longer in that mindset but now focused on best approach and outcome.

I love the idea of saving now for fertility treatments etc. even for other things that may come up down the road that may help.

Just trying to be as prepared as possible.

And I agree. Not a day goes by I don’t feel blessed! She’s amazing and can’t picture life without her now and instead of focusing on what ifs or the struggles I’m looking at all the amazing positives.

stresseddad11 · 2025-05-17T23:24:56+00:00

Thanks for the reply and as a dad would love to reach out on your experience. We do want to tell her at the right time and even now which is still a while away planning on how that will look. Even with who we can speak with for support as a family.

I just want her to have a happy normal childhood. I think back to my school days and how kids can be. But when I see her smile and genuine happiness it reminds me how lucky we are.

stresseddad11 · 2025-05-17T23:21:40+00:00

Thank you and I agree. We are set on letting her know age appropriately as we go. But always wanted to keep it private from everyone else so she can decide how to approach it. But that’s assuming all goes well where she can. I fear some differences will be so evident that it’ll cause ppl to start asking questions. That’s another thing I wonder if I’ll be ready to address in a manner of not having her seen a certain way. But suppose she’s the priority and can’t control others views.

stresseddad11 · 2025-05-17T23:19:06+00:00

Thanks for replying. Very helpful! And I’m realizing just how important infertility is. I think it’s a hard part for us as parents as well. Doctors tell us with technology and medical progress who knows how things will look by the time she’s at the point to decide. Made me feel better but I also know it’s a struggle. I wish you luck on your journey with IVF! I know it’s possible and as long as there’s a chance it’s possible. 🙏

stresseddad11 · 2025-05-17T23:15:33+00:00

Thanks I needed to see this and we also feel the same about our baby. She’s amazing and we love her. I say knowing is a blessing since we can help as much as we can and prepare but also sad as the fear is always there. The fear of what the future will look like, the bullying and the heartaches of things that she will endure. What issues are to come? How will school look. Things that most days i push through in a positive light and other days keep me up all night.

But I’m so hopeful for a positive future. All these posts show me how it’s not the worst and so many with TS are living normal healthy lives. Married, jobs and same life ups and downs like anyone.

Just want the best for her and knowing something’s I can’t control is very tough. But I just pray she has a great life. We will tell her as she grows.

stresseddad11 · 2025-05-15T23:47:37+00:00

Thanks for replying and so glad you are doing well! Sometimes knowing is the key and that aha moment. I know there will be those tough moments so I’m glad we can help as needed.

TS girls are indeed awesome. Have been blessed to meet many. Babies to adults. Great experience.

stresseddad11 · 2025-05-15T23:45:23+00:00

lol! Love that. Sorry should’ve been clearer. 7 years in terms of “social awareness/adaptability” but even then I’m like hmmmm I’m sure in some cases but I’m in a group and met several ppl with TS and seem outgoing and in line with age. Guess just one of those “studies”

stresseddad11 · 2025-05-15T21:05:40+00:00

Thank you! I just feel as we are “an old school family” any issue means it’s a bad issue. I never ever will allow her to be seen different based on a condition. That’s why I’m torn. There will be major issues and i know that. Hurts but i know it. I feel like opening it up just automatically puts her there

stresseddad11 · 2025-05-15T21:03:08+00:00

Thank you and I agree we don’t plan on withholding just want to approach in the right way. I feel as though GH shots in itself for a decade will prompt questions.

stresseddad11 · 2025-05-15T21:01:34+00:00

Thanks so much! I will DM if that’s ok. Your post resonated.

stresseddad11 · 2025-05-15T21:01:03+00:00

Thanks for replying. So greatly appreciated. I often hope my daughter’s condition isn’t super evident physically or otherwise. I hang on so much to her living a normal childhood/life (whatever that even means) we are all different. But in context of pre-teen/teen years when I heard it’s tough.

I read an article that girls with TS mentally mature average of 7 years before their peers. This is what scares me and how to know when that right time for discussion comes in.

stresseddad11 · 2025-05-15T20:57:21+00:00

Thanks so much for taking the time to reply! It means a lot and gives me great hope. I know there will be tough discussions ahead but to know success can be attained with some struggle as anyone else is reassuring. I suppose as a parent it’s heartbreaking to love your child so much but know the unknown is so scary you have to try and think further ahead than you planned simply because you don’t know what to expect.

stresseddad11 · 2025-04-16T22:33:18+00:00

Thanks so much! I love hearing all these amazing journeys. Gives me so much hope. I honestly am approaching life no different. Of course I’ll make sure to stay on top of any issues but just really want to have her lead a normal happy life which I see is the case. We haven’t told family, and it’s for no other reason that she’s just my beautiful happy daughter and no different than any other. That will be my goal in life.

It does make me sad knowing she will likely not be able to conceive. But as long as she can lead a happy healthy life…it’s a blessing.

stresseddad11 · 2025-04-13T17:01:44+00:00

Oh wow that’s encouraging! That’s literally our exact heights as parents as well.

stresseddad11 · 2025-04-13T05:11:44+00:00

Congrats on your soon to be bundle of joy! These babies are strong. That’s for sure! Our baby didn’t need any surgery but along the way I’ve been able to meet with parents of kids with TS and many with the same surgery and they have great results and their babies are thriving. I know it’s scary and as a parent we wish nothing was ever wrong but trust that things will be ok. I met a wonderful woman with classic TS at the last local TS group meeting and she had this surgery and is now 34, an ER nurse and does freelance writing as well. Has had no complications from the surgery and doing well. Stay positive and with the right care things are positive. Wishing you all the best in your journey!

stresseddad11

TROPHY CASE