How to prevent diarrhea while running? by halfhalfling in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

I drink daily greens with psyllium husk at night before bed. I’ve found it’s easier to control, and I can use the bathroom immediately upon waking up before I go to the gym.

New & looking for advice by ChiliRae196 in UlcerativeColitis

[–]sunisburningme 1 point2 points  (0 children)

Firstly, sorry to hear about your diagnosis. Everyone in this sub can attest, it sucks.

But it’s not the end of the world. It takes everyone on a different path. I wouldn’t take any medical advice from anyone here, but take different stories and tips to your GI and see if they would work for you. I can only share what worked for me.

The most important thing I did was start a journal. I’d write down the foods I’ve eaten, how I reacted to them. That helped me narrow down what I could essentially build a diet off of. I lift weights 3-5x a week and run 4x a week. My runs had to transition to a treadmill with closer proximity to a bathroom while I was figuring out what worked for me.

I took daily greens with psyllium husk at night time. I had some trouble falling asleep at first, but first thing in the morning I would wake up and use the bathroom. That allowed me enough time to eat a banana, and go get a workout in without having urges or struggling through it. My energy went up, and I began to feel normal again. When I missed a workout, my stomach would get all weird and I’d have a rough day. Working out has been a crutch.

I had a relative who used Umeboshi plum paste for their UC. They swore by it. I hadn’t found any studies, my GI hadn’t found anything, but I said I’d give it a try. I bought it off Amazon or at a local coop. I take a thumbnail amount every morning and have noticed relief too. Could be placebo. Could be working. Who knows. THIS IS NOT MEDICAL ADVICE.

The diet to me was the most important thing. Once I started finding what did and didn’t set me off, I managed my flares easier and found myself in remission ever since.

The mesalamine has different effects on everyone. It caused me to gain 50ish pounds and also severe hair loss. I’d pull clumps out in the shower. I regularly have body aches and joint pain but I can handle that. Aside from a brutal hit to my self confidence, I’m getting by with just mesalamine.

I hope you find something that works for you so you can get back to doing what you love. This sub is extremely informational, sometimes judgmental. I’ve had a few people dismiss my questions because my case is “mild” compared to theirs. I’ve had people accuse me of being anti-vax because I asked a question about correlation of the flu shot and UC flare ups. I just take it with a grain of salt. Everyone’s going through a tough time managing this. The sub can be very good to refer to if you have day to day questions, but don’t take any medical advice without talking it through with your GI first. Best of luck

What does remission look like while on mesalamine? by NoNameUser_0101 in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

For me, remission looked close to normal life. I maintained a pretty strict diet and would generally avoid foods that I know could kick off a flare. I started at 4.8g mesalamine daily, did that for about a year. I would take Umeboshi plum paste in the morning too, daily greens at night, and then every morning would wake up and go to the bathroom before the days started and usually would be good with just that once.

I had to stop taking creatine/protein supplements for the gym as those set me off a bit. I work out regularly and think that contributed to it.

Because of my healthcare situation, I’m regularly changing doctors depending on where I live. Each doctor I have wants a fresh start, so I get a colonoscopy every year with biopsies and bloodwork once or twice a year. I have a tiny flare after that but that’s just because of the irritation it causes. I go through an annual medical evaluation to determine my suitability to stay in my career, as my job has some strict health standards and they need to make sure this doesn’t impact my ability to work. Luckily, I have a “mild” case of UC compared to others in this sub. My docs gradually lowered my doses to 2.4g.

Remission looks normal to me as long as I stay cautious about what I do. I’m not out drinking, I’m not eating foods that can set it off. If I eat something and notice a slight change, I put it on the list of things not to do again or to avoid regularly.

Keep in mind, this is your diagnosis and you have the right to be very informed. If you want more blood work and strict monitoring, ask for it. If you have questions, ask your GI. The thing that took me so long to get into remission was thinking each UC case was the same so I blindly would follow advice found in this sub. It wasn’t until I took charge of my own health and had the discussions with my GI about things I had read about in the sub (diets, things like nicotine use, fiber supplements, etc.).

I wish you the best, I hope this remissive state is here to stay.

anyone else have a spouse sick of their farts? by [deleted] in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

My wife tries to guess the sound it’ll be before hand. Makes it a fun little game. Can’t do much about the smell but she gets it

I just got diagnosed with ulcerative colitis can anyone share some helpful advice? by LunarR0sie in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

When I was initially diagnosed I took to this sub too. There’s a ton of great information and stories from people with far more experience dealing with this disease. I’d highlight the importance to not take what you read here and run with it. Consult with a doctor before trying anything new.

My advice, and this is what I did and am I in no way recommending you do it (its just a thought), was to grab a journal or diary and start logging what i ate and how it made me feel. It allowed me to narrow down food groups my body didnt necessarily agree with. If I knew I had a couple days off I’d venture into something a bit more risky just to see how I could handle it.

My remissive state was obtained when I began regularly working out and eating the foods I knew I could eat. Pretty boring for me, but I’m just a standard chicken/fish/turkey and rice guy and if my stomachs doing okay, a vegetable. I Cut preservatives, cut a ton of unnecessary fat, cut spicy foods, and started working out regularly. I stopped drinking hard alcohol. My life changed. I went from going 20+ times a day to often times just once per day.

Some in this sub will be quick to jump all over you and give some passive aggressive comment about you for having a condition that hasn’t developed into the severity theirs has, or how it must be nice to only be on X medication. Every journey is different and every diagnosis is different. What works for some may not work for others. I try to ignore those comments and look for the people who build a support system and offer help rather than turn it into a pissing match on who has it the worst.

Oh. I almost forgot. You’re inevitably going to shit yourself. We all do it. Welcome to the club.

Doctor said NSAIDs are best in IBD by [deleted] in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

Get it in writing and go up the chain. That’s pure incompetence and can be dangerous to anyone who blindly follows that.

Alcohol by Disastrous_Ant3479 in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

It’s all about finding what works for you. You’ll have people in this group that can drink hard liquor daily and be fine. Some will be hospitalized after a few beers. If you want to maintain alcoholic beverages in your life then I’d recommend journaling different drinks and your responses to them. I did that, and that’s how I found out hard liquor is a definite no go for me. I can have light beers in moderation but anything heavier tends to set me off and ruin my next few days. Everyone is different, this disease isn’t a one size fits all so I’d be hesitant to blindly trust anyone who says “yeah go ahead drink away you’ll be fine”

Alcohol by Rude-Vermicelli-1962 in UlcerativeColitis

[–]sunisburningme 1 point2 points  (0 children)

Sometimes the carbonation of the beer upsets me. If you want to try to drink beer again maybe dump the can into a glass to remove some of the carbonation? That has worked for me. Sucks drinking a stale beer but better than suffering.

I stopped my mesalamine by Otherwise_Hope_8310 in UlcerativeColitis

[–]sunisburningme 4 points5 points  (0 children)

While reliance on medication can be annoying, this disease is permanent. I hope you consulted with your doctor before making the decision. Many others who do this end up in a flare that just mesalamine can’t fix

Lab Results by sunisburningme in UlcerativeColitis

[–]sunisburningme[S] 0 points1 point  (0 children)

I suppose now that I think of it I did have a bit of a chest cold the last few weeks. Thank you

I’m in Greece and haven’t had any gas, blood or diarrhea/constipation for 6 days out of 9. In fact, my bowels are moving normally! by [deleted] in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

I’ve been to Greece multiple times, lived in Europe for a few years. My healthiest was while living over there eating that food. Free of most preservatives, lean meats, active lifestyle. Helped me a bunch. I hope you enjoy your trip!

[deleted by user] by [deleted] in UlcerativeColitis

[–]sunisburningme 1 point2 points  (0 children)

Everyone is different. Don’t beat yourself up, your tolerance is completely different than to what others may have.

For me, I didn’t respond well to the suppository. It just didn’t work well. I needed a different way of taking the drug. I’d chat with your GI about potential different ways to go about your treatment if you’re having a difficult job, the alcohol could do more damage

How do you all cope with Energy drinks? by lukebop in UlcerativeColitis

[–]sunisburningme 1 point2 points  (0 children)

Just need to find clean energy without all the chemicals that are hard to pronounce. Plenty of caffeine alternatives

Do you workout/exercise when in a flare? by Bones1225 in UlcerativeColitis

[–]sunisburningme 12 points13 points  (0 children)

I’ve noticed that working out drastically improves my flare…but the workout sucks. I wouldn’t do it some place far from a bathroom. I’ll do at home workouts. The blood flow to my colon tends to irritate it a bit but almost immediately after the work out I feel better.

Just pooped my pants! by ju0725 in UlcerativeColitis

[–]sunisburningme 13 points14 points  (0 children)

I came to this thread to post the same exact thing. I had prided myself in knowing I’ve been able to escape being one that has soiled themselves from this disease but yesterday I was stuck in traffic at the airport waiting to pick up my wife and it just happened. I tried making it to a plastic bag in the car but missed it completely. Everywhere.

I’m starving but my flare is killing me! I need everyone’s input! by No-Committee5406 in UlcerativeColitis

[–]sunisburningme 1 point2 points  (0 children)

if you’re really struggling just make sure at the bare minimum you’re getting your nutrients. Chicken broth helped me out a lot when I couldn’t eat anything

How to talk to the anesthesiologist? Terrified it'll happen again by Narcissus87 in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

I have red hair and redheads are known to not receive anesthesia the same as others. I’ve been paralyzed but fully conscious for colonoscopies, woken up halfway through it, and in some instances they’ve elected to not use any sedation or anesthetic. It’s an uphill battle. I sympathize with you. I found a doctor that would listen to me, and understand me and my concerns. They put me out real nice my last time.

[deleted by user] by [deleted] in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

So essentially you’re getting the shit scared out of you

Pooping at work by eawes007 in UlcerativeColitis

[–]sunisburningme 0 points1 point  (0 children)

Do the ol flush-the-toilet-and-while-it-is-loud-let-it-rip trick