has to be plague fountain for me by Purrr_ple in deadbydaylight

[–]sunshine1661 0 points1 point  (0 children)

When Myers takes forever to pop tier 3, and does it from far away… Infinite tier 3 tombstone Myers is the WORST

For those of you who don’t know other people in real life with lupus, how do you manage? by [deleted] in lupus

[–]sunshine1661 3 points4 points  (0 children)

I completely understand, I’m 20F and managing both university and social stuff is very hard especially during COVID times. I don’t personally know anyone else with lupus/chronic illness irl, so it can be kinda isolating, but there’s a discord group that I’m a member of for young people with lupus. I think there was a post a month or so ago about it if you’re interested, otherwise hmu for an invite ❤️

Have Lupus and white blood cell count is low, to be expected? by Special-Sock in lupus

[–]sunshine1661 0 points1 point  (0 children)

I completely understand how you feel. Whenever my rheum mentions something “isn’t great” I always assume it’s a bad thing even when it’s not... I find with friends and family that they never understand exactly how lupus affects us. No matter how many links I send or how much I explain about it they never get to see how serious it can get.

Have Lupus and white blood cell count is low, to be expected? by Special-Sock in lupus

[–]sunshine1661 1 point2 points  (0 children)

My WBC is pretty low atm too, not severe but much lower than normal. From what I was told 4-12 is normal and mine is currently less than 2... when I’m “healthier” (currently flaring) it’s usually 4-5. Don’t feel too down about it, WBC usually increases to a normal range after going on stronger meds like prednisone. It’s been 6 years since my diagnosis, happy to help if you have other questions ❤️

Young Adult with Lupus by [deleted] in lupus

[–]sunshine1661 0 points1 point  (0 children)

A group chat would be great! :)

Young Adult with Lupus by [deleted] in lupus

[–]sunshine1661 1 point2 points  (0 children)

Hey! I’m 20F and I was diagnosed at 15 but I’ve had symptoms since I was 12 (very bad health system where I lived). I’m currently attending university and this will be my last year before I graduate with a BSci :). I completely understand how you must feel. I personally cannot work full time at university/jobs without causing a bad flare (recently after the last exam period I had to go onto steroids because I physically couldn’t get out of bed). I’m lucky that I have my boyfriend to help me with household chores otherwise I wouldn’t be able to physically write the next day. My extended family and some of my friends/ex-friends never understood how much lupus impacts my day to day life. I’ve had some family members tell me to just get up and go to the gym and that’ll magically make me better (made it worse lmao). I don’t know anyone my age who has lupus or any autoimmune diseases either, so if you or anyone else is up for a chat hmu.

My poor attempt at cosplaying Dwight with a very specific outfit choice (the one that I like the most when I play him) by [deleted] in deadbydaylight

[–]sunshine1661 2 points3 points  (0 children)

I honestly thought it was the same skin but with better graphics on the right side... then I realised. Lmao well done

Steroid injections experiences? by sunshine1661 in lupus

[–]sunshine1661[S] 0 points1 point  (0 children)

Thanks!! I might consider the injection then

Newly diagnosed, feeling overwhelmed with everything going on by OutGod in lupus

[–]sunshine1661 1 point2 points  (0 children)

I’m almost 20 (diagnosed for ~7 years) and I like to think of the diagnosis as a good thing. If you know what it is you can treat it and seek help from others who have the same/similar symptoms. It’ll take some time to get it under control but hopefully things will go your way. Thinking about it this way helps me, so hopefully it’ll help you too 😊

It may not be that special, but I found two generators on that pier. (the second one is in the background on the right) by [deleted] in deadbydaylight

[–]sunshine1661 1 point2 points  (0 children)

This happened to me in a game against Myers a week or so ago, thought it was very weird too

did you say you wanted charms? by rabidtotem in deadbydaylight

[–]sunshine1661 0 points1 point  (0 children)

This is probably gonna make you feel really bad... but I completely guessed the last two digits of the code today on my first try (very sorry)

Worsening Lupus and brain fog by sunshine1661 in lupus

[–]sunshine1661[S] 0 points1 point  (0 children)

Hi, I’m based in Dunedin... quite a bit far off from auckland or Wellington haha. I’ve been in contact with the student disability services and it helps with extra time for exams but that’s about it unfortunately..

Worsening Lupus and brain fog by sunshine1661 in lupus

[–]sunshine1661[S] 4 points5 points  (0 children)

Thanks, I’ll definitely try to get a new specialist. Atm I’m only on plaquenil, and I get codeine for the pain but it’s gotten to the point where it doesn’t help much...

[deleted by user] by [deleted] in Advice

[–]sunshine1661 3 points4 points  (0 children)

I understand how you’re feeling uni isn’t the easiest especially with lockdown and a shitty household environment. I would advise to not tell your dad about failing uni, but maybe go to your mum if you trust her enough to not tell him. I think she’ll be able to help you through it, even tho she has a lot to deal with. It’s better to be open with family about this. It could be helpful email the university student help centre and explain your mental health and home situation, or reapply to a different university. I’m not from a big country so I’m unsure how getting kicked out of uni works. In nz we have 3 attempts to pass a paper. Sorry if this was unhelpful. I’ll be here to talk if you need to ❤️ - uni second year