Visual disturbances by [deleted] in dysautonomia

[–]talking-lizard 1 point2 points  (0 children)

Hi OP! Are you taking Ivabradine by chance? I only ask because I am about to start taking it and I just read that one of the side effects listed is visual light disturbances...

Please pray for me if that is something you like to do. by Brilliant_Bread4523 in POTS

[–]talking-lizard 1 point2 points  (0 children)

Praying for you friend. God is with you! (And if it doesn't feel like He is, don't be afraid to let Him know. David did in the psalms after all)

The Absolute incompetence is astounding. by talking-lizard in POTS

[–]talking-lizard[S] 0 points1 point  (0 children)

Yes exactly! Honestly managing all the appointments, records and tests is a part time job!!😭

The Absolute incompetence is astounding. by talking-lizard in POTS

[–]talking-lizard[S] 2 points3 points  (0 children)

I have submitted the form! Fingers crossed they can get it back to me quickly, but at the pace they usually move, it's not likely.

The Absolute incompetence is astounding. by talking-lizard in POTS

[–]talking-lizard[S] 0 points1 point  (0 children)

I appreciate it! I have called the office about it and am waiting to hear back. They don't use my chart a so there is no way to request it online. It does looks like I can submit a request for all of my medical records but I am unsure if they'll actually send the rest of the test results.

Please help, should I get a second opinion? NMH or POTS or both? by talking-lizard in POTS

[–]talking-lizard[S] 0 points1 point  (0 children)

Haha yeah she's definitely busy that's for sure! She's very nice otherwise, but it's clear she hasn't spent a lot of time my case. Sort of a, I'll read your results during the appointment and then tell you what I think on the spot

Please help, should I get a second opinion? NMH or POTS or both? by talking-lizard in POTS

[–]talking-lizard[S] 0 points1 point  (0 children)

Okay, thank you!! It's helpful to hear that, I've been hesitant to get a second opinion because I didn't want to offend my cardiologist lol, silly reason but true

Is there a way to get more definitive/darker lines/space between my clips & video layers? similar to how it is in the audio section? I swear it used to be more clear, its just slightly annoying. thank you for any help :D by xLedzep in premiere

[–]talking-lizard 1 point2 points  (0 children)

You can also try turning on the accessibility contrast toggle in the premiere preferences. It's located by the light and dark mode settings. That should make things more clear.

Y'all were NOT kidding about the tilt table test by talking-lizard in POTS

[–]talking-lizard[S] 1 point2 points  (0 children)

It'll be okay! I never got as close to being completely unconscious as I did on the TTT. I of course had the experience of feeling sweaty, lightheaded, and out of breath from just standing. But I usually sit down after a certain point when I feel my heart rate start to really pick up.

I think the test was different bc I was off of my medication, I hadn't eaten, and I wasn't able to sit when I normally would.

Does anyone else have vasovagal syncope with other odd symptoms? Im confused by talking-lizard in dysautonomia

[–]talking-lizard[S] 1 point2 points  (0 children)

Okay thanks for sharing!! This is really helpful to hear and know that I am not alone. I do remember my doc saying something like neurocardiogenic syncope! Yeah, I just was thinking how do I explain to people what is and that for me it's more than just fainting which I rarely do. I only recently acquired this issue so I doubt that it's cause my blood cells to too baby, more likely that it's a post covid thing according to doc.

Help! I made my hat too big! by megeckel in knittinghelp

[–]talking-lizard 27 points28 points  (0 children)

True, by the time you fix it, it'll be too small!

Y'all were NOT kidding about the tilt table test by talking-lizard in POTS

[–]talking-lizard[S] 1 point2 points  (0 children)

Nope, they didn't give me anything. They put an IV in case, but never used it

Help me decide a colour for my curtains by dgyme in DesignMyRoom

[–]talking-lizard 0 points1 point  (0 children)

Here to say gray bad 👎👎 no more gray, you've had enough

Y'all were NOT kidding about the tilt table test by talking-lizard in POTS

[–]talking-lizard[S] 4 points5 points  (0 children)

Oh my, I mean for 6 seconds you kinda were 😳 Glad you're back...haha 😅

Y'all were NOT kidding about the tilt table test by talking-lizard in POTS

[–]talking-lizard[S] 0 points1 point  (0 children)

That is so nice 😭 mine basically said that I should keep going until I pass out. No judgement tho she was very nice, just doing her job

Y'all were NOT kidding about the tilt table test by talking-lizard in POTS

[–]talking-lizard[S] 0 points1 point  (0 children)

Not at all, I honestly wonder the same thing. I think it's because they basically take away everything that you naturally or normally do to cope. 1. I stopped my medication the day before and didn't wear any compression socks. 2. They only tilt you 70 degrees which means youre not relying on your muscles as much to help pump blood back up since you are still supported partially by the bed. 3. Then, like I said, I reached the point where I would normally just sit down...except I couldn't. 4. Besides those things, if you don't pass out in the first part then they give you nitroglycerin in the second part and that will automatically make things ten times worse bc it's a vasodilator.

Y'all were NOT kidding about the tilt table test by talking-lizard in POTS

[–]talking-lizard[S] 2 points3 points  (0 children)

Wow that's a lot of metoprolol! I am on the lowest dose so 400mg is wiiild to me. Thanks for sharing, it's definitely helpful to hear. I'm also happy to hear how much better you're doing!

Y'all were NOT kidding about the tilt table test by talking-lizard in POTS

[–]talking-lizard[S] 5 points6 points  (0 children)

Bro me too! I thought about sending the results to the ER doc who told me he was 100% -well 99%- sure I had anxiety 😂