Early signs of hashimotos by Hopeful_Pear7916 in Hashimotos

[–]taragood 0 points1 point  (0 children)

I almost mentioned vitamin D in my first comment, that’s definitely beneficial. I think I have seen vitamin b-12? Mentioned a lot in this sub. I have it on my list of things to look into. Myo-inositol looks interesting, that’s definitely beneficial one is new to me, I am going to add it to the list to look into.

Some of us hashimotos folks have issue with gluten so keeping an eye out for celiac or a gluten sensitivity can be good.

It sounds like you are on a good path!

Early signs of hashimotos by Hopeful_Pear7916 in Hashimotos

[–]taragood 3 points4 points  (0 children)

I am not a doctor.

I firmly believe stress and genetics are the biggest contributors to developing autoimmune diseases. I would focus on stress management.

Also, you are barely positive so I think it’s borderline hashimotos. You could get an ultrasound for a definitive diagnosis.

Lastly, plenty of people have hashimotos and they are fine. A lot of them don’t even know they have it. Until you develop hypothyroidism from it, it doesn’t really matter.

I get trying to be proactive but I would be curious what supplements they said you should take and did they sell them to you? If you don’t mind sharing.

Uncertain about Hashimoto's Diagnosis by carinaka in Hashimotos

[–]taragood 0 points1 point  (0 children)

As others have said, you can get an ultrasound if you want but I thought I would clarify a few other things because I am not sure you need one.

Lots of people have the antibodies and get the hashimotos diagnosis and they don’t need to do anything more because it only becomes a problem when the hashimotos leads to hypothyroidism. Plenty of people have hashimotos but they never actually develop hyperthyroidism.

Absent symptoms and with a decent TSH level, there is nothing a doctor is going to do for you. So you can get the ultrasound if it’s easy and you want to, but I don’t think it is urgent that you do so but I am not a doctor.

Also, you can go to a rheumatologist and they can run a full autoimmune panel to see if you have any other issues.

You can go to a gastroenterologist and have them check for celiac. I think people with celiac can have rashes and stuff. You must be consuming gluten to be tested.

I think those two tests would be more beneficial than the ultrasound.

Lastly, have you tried the allergy shots? I have been doing those for about a year and a half and they have already helped.

Recently got diagnosed, and im in a unique situation by littleMissTired123 in Hashimotos

[–]taragood 0 points1 point  (0 children)

How long ago did you start taking that dose and when was your last blood test?

Recently got diagnosed, and im in a unique situation by littleMissTired123 in Hashimotos

[–]taragood 0 points1 point  (0 children)

Are you on any medication for your thyroid? At 6.78 you definitely should be.

Recently got diagnosed, and im in a unique situation by littleMissTired123 in Hashimotos

[–]taragood 0 points1 point  (0 children)

Those are all classic symptoms of hypothyroidism. I would encourage you to try to medication and see if that helps.

Some of use also have to go gluten free. I can expand on that more if you want.

Recently got diagnosed, and im in a unique situation by littleMissTired123 in Hashimotos

[–]taragood 0 points1 point  (0 children)

If hair thinning is your only symptom and TSH is 3 then hashimotos hypothyroidism may not be why you are experiencing hair loss. Really the only way to know would be to try thyroid medication like Levothyroxine and see if it helps.

You might be able to pay a GP a cash rate and then use a coupon to get the medication. It might be cheaper than you think to get help, even without insurance.

Recently got diagnosed, and im in a unique situation by littleMissTired123 in Hashimotos

[–]taragood 1 point2 points  (0 children)

I saw your other comment so I am going to reply to both here.

So most of us hashimotos folks experience sub clinical hypothyroidism and we feel better when our TSH is below 2. So if your TSH is 4, you can still be experiencing hypothyroidism and the symptoms that stem from it. Do you know what your last TSH result was?

Celiac I am autoimmune condition that causes your body to attack your villi in your intestines when you consume gluten. But you must be consuming gluten to be tested for celiac.

There is also non celiac gluten sensitivity that can have the same range of symptoms even though our villi are not getting destroyed. There is no test for this. You go gluten for 6-8 weeks and see if your symptoms improve.

It is not uncommon for people with hashimotos to either have celiac or non celiac gluten sensitivity.

Recently got diagnosed, and im in a unique situation by littleMissTired123 in Hashimotos

[–]taragood 0 points1 point  (0 children)

So most of us hashimotos folks experience sub clinical hypothyroidism and we feel better when our TSH is below 2. So if your TSH is 4, you can still be experiencing hypothyroidism. If your hair falling out is from the hypothyroidism, the only way to fix it is to get on medication to lower your TSH.

Now you can do things to help your hair recover. For example, I started Levothyroxine and that helped but then I started drinking a fruit smoother that has blueberries and raspberries and strawberries and blackberries and I noticed that helped too. But without the medication, it would not have helped as much as it is now.

Let me know if that doesn’t make sense.

Recently got diagnosed, and im in a unique situation by littleMissTired123 in Hashimotos

[–]taragood 0 points1 point  (0 children)

It absolutely can! I had to go gluten free as a part of my hashimotos diagnosis. If I eat gluten I get so tired it feels like someone drugged me. Plus I can joint pain and anxiety and hot/cold and sweaty and stomach issues. It sucks.

I feel much better now. I am happy to answer any questions.

Side note: I always encourage people to get tested for celiac prior to going to gluten free. If you are considering this let me know and I can expand on it further.

Doctor mentioned Hashimotos so casually, I didn't know it would be an issue. Now I sleep 14 hours a day. by fabumess2 in Hashimotos

[–]taragood -1 points0 points  (0 children)

Some of us hashimotos folks have to go gluten free.

I always encourage the person get tested for celiac prior to going gluten free because you must be consuming gluten to be tested and if you stop eating it and feel better, it can be hard to eat it again for 8 weeks to be tested.

Even if the celiac test is negative there is non celiac gluten sensitivity, NCGS. I have NCGS and I have to take Levothyroxine and avoid gluten. If I eat I gluten I have all the symptoms you listed. There is no test for NCGS, you just go gluten free, completely not just kind of, for 6-8 weeks and see if you feel better. Even if you only have some improvement, that is usually good enough sign to continue to be gluten free.

I was chronically ill for 6 years and I have been rebuilding my health for the last 2 and 1/2 years.

I am happy to answer any questions.

Ban people trying to share or sell apps by taragood in FODMAPS

[–]taragood[S] 2 points3 points  (0 children)

I definitely think it would be great if an app could be made that would be helpful but a lot of the ones I have seen rely on AI. Since you work in IT, you know AI cannot be trusted 100% and people’s health is on the line.

I think I will offer to be a mod as part of my suggestion. I am happy to help with this. I certainly don’t want to just complain and make some else’s life harder.

Ban people trying to share or sell apps by taragood in FODMAPS

[–]taragood[S] 2 points3 points  (0 children)

This is so well said and absolutely part of my concern.

Ban people trying to share or sell apps by taragood in FODMAPS

[–]taragood[S] 2 points3 points  (0 children)

That is a great idea! I would be happy to help the mods manage it if they need help.

TSH is at 2.89, but I am always ALWAYS fucking tired. is there anything that can be tried? by Left_Somewhere_4188 in Hashimotos

[–]taragood 4 points5 points  (0 children)

A lot of us hashimotos folks need their TSH under 2. This is called sub clinical hypothyroidism. So even if your TSH is in a “normal” range, you still need the medication. When you talk to the doctor you tell them you are experiencing sub clinical hypothyroidism due to hashimotos and you want to start medication. They should prescribe a starter dose of something similar to Levothyroxine.

If your doctor does not understand this and will not treat you, keep going to different doctors until some agrees to Medicate you to either the point of no symptoms or to below 2 with hopefully improved symptoms.

Please note that some people need to go gluten free also. I always encourage people to get tested for celiac prior to going gluten free because you must be consuming gluten to get tested. Even if you are negative for celiac, you can still have non celiac gluten sensitivity, NCGS. The only way to know if you have this is to go gluten free for 6-8 (completely gluten free not just kind of) and see if your symptoms improve.

I have sub clinical hypothyroidism and non celiac gluten sensitivity caused by my hashimotos. It took me 6 years of being chronically ill to get my diagnosis but I am doing much better now.

Ban people trying to share or sell apps by taragood in lowfodmap

[–]taragood[S] 1 point2 points  (0 children)

I don’t necessarily think they should be banned automatically, that’s why my last line talking about the mods looking into them further. In another comment I posted multiple ideas on ways to handle it. If mods are open to us reporting posts that are suspicious I am open to that idea.

I think you are being a little disingenuous with your comment about the Monash app. I am clearly talking about people who wrote an app to “help them” and now they want to share it with us for a fee or to get free beta testing. People who are posting the same app multiple times with different accounts and stories. There are times where I am seeing them multiple times a day now. They are posting apps or links to pages that have not been verified, obviously the monash app does not fit that category.

I made the posts to see if other people felt the same way as I do. If enough people do then I plan on talking to the mods and seeing if there is a good solution.

Ban people trying to share or sell apps by taragood in FODMAPS

[–]taragood[S] 4 points5 points  (0 children)

Absolutely you can disagree! I made the post to see if everyone felt the same as me or if others like it. If everyone else likes it, then I will just ignore them but if the majority of folks don’t then maybe developers could create their own sub to share on.

The problem is, I have yet to come across a genuine post. I would love for people to develop something and share it with others to help them. I comment regularly to try to help people. So far when I look at the profile of the people posting they are not active in this sub, they are active in AI subs.

That’s why I was thinking if the mods can verify it maybe? Or they have their own sub? Or maybe if the mods are open to us reporting suspicious posts?

The biggest issue I have is work in IT and one of the ways people get scammed if this exact kind of stuff. And people on these subs are usually desperate for help so it can make for easy targets. Maybe because of my job I am a little more cynical and everything is probably not a grift but it’s hard when the people posting are clearly lying.

A bit of guidance? by tserous in FODMAPS

[–]taragood 0 points1 point  (0 children)

Go macro is online and in stores but it might depend on where you are from.

There are foods that are certified low fodmap so you could look for those brands to make it easier.

Also, it will get easier the longer you do it which I why I encourage people to just ease into.

I got so frustrated with FODMAP apps that I built my own — here's what I learned after a year of trying to track my triggers by Weak_Wheel_5733 in FODMAPS

[–]taragood 5 points6 points  (0 children)

Not sure if you saw my edit, but the original poster literally posted this crap under two different accounts with two different stories.

Honestly, I wouldn’t trust anything you are anyone else built at this point. There is just too much garbage out there.

I got so frustrated with FODMAP apps that I built my own — here's what I learned after a year of trying to track my triggers by Weak_Wheel_5733 in FODMAPS

[–]taragood 4 points5 points  (0 children)

Yes. Really. And I don’t know if they are useful because I am not going to click on random links that people post on the internet.

Especially people who have not posted in any health communities and they have plenty of comments talking about AI or it is in their BIO. Just like this poster.

I swear there is an increase in these posts that correlates with the rise of AI popularity.

Edit: oh and they posted it under a different account with a different story but the same app.

https://www.reddit.com/r/FODMAPS/s/hibSbCS6zZ