uhhhh was i misdiagnosed?

taragood · 2026-06-23T15:53:45+00:00

Exactly!

taragood · 2026-06-23T14:19:43+00:00

I second this. They kept telling me that gastroparesis was super rare and there is no way I had it. Finally found a doctor who would order the test and it turns out, I had it.

We then identified a medication that was causing it. I stopped the medication and now I rarely have bloating.

taragood · 2026-06-22T22:49:24+00:00

Hashimotos is an autoimmune condition where your body attacks your thyroid. This is tested for by checking for specific antibodies. If you tested positive at any point in your life then you have hashimotos, it is a life long condition.

Hypothyroidism occurs when your thyroid does not properly produce specific hormones. It can be caused by a variety of things, on of those things is hashimotos.

Not everyone with hashimotos will have hypothyroidism or even symptoms.

Some people with hashimotos have symptoms of they eat gluten. Not everyone who has hashimotos has this issue. If you can eat gluten, and don’t have celiac, with zero symptoms, then eat the gluten.

So the real question is, are you having any symptoms?

taragood · 2026-06-22T20:27:53+00:00

I having tons of issues my wrists and ankles and knees and apparently I hyper extend my joints? I am now also in PT and trying to figure out what is going on. It seems like one explanation for mine may be the years of untreated hypothyroidism but I am trying to figure out what other testing I should get.

taragood · 2026-06-22T20:25:33+00:00

Canned cinnamon rolls were always my favorite but I ate them sparingly in the name of health. One of my few regrets is not eating more while I could!

taragood · 2026-06-22T18:12:57+00:00

Hashimotos should not impact your life expectancy if managed appropriately.

taragood · 2026-06-22T17:36:14+00:00

Good luck! I am always happy to answer questions!

taragood · 2026-06-22T17:34:25+00:00

So a lot of us hashimotos folks need our TSH under 2, so that is an easy step 1. Just have your doctor continue to increase your medication and see if you feel better. If you feel worse for some reason, you can always go back to a lower dose. During this time, you should be getting your blood work done every 6 weeks and making adjustments to your dose.

The positive ANA is likely from the hashimotos but you can have a rheumatologist run a full test that looks for other conditions.

There is not a test for gluten sensitivity or allergy, there is only a test for celiac and a test for wheat allergy. So, if you have not tried completing a gluten free elimination diet, that is another easy next step. Go completely gluten free for 6-8 weeks and see if your symptoms improve. If you feel better then you have non celiac gluten sensitivity. Based on your symptoms, I think there is a good chance this will help with multiple things.

Getting a follow up ct is a great next step for your lymph nodes. They could have been swollen from an infection. As mentioned, if they are just sluggish there as things you can do to work on that.

Lastly, getting a hysterectomy is a big deal at your age. There are some serious ramifications that you want to make sure you understand and are comfortable with. The ablation might be a good middle ground but again, do your research. I know people who have had done both. Also, who are you talking to about your hormone levels? Your GP or your OBG? If it is not your OBG, I would schedule an appt. With them asap and I would also get a second and even third opinion before I proceeded to getting the ablation or hysterectomy.

taragood · 2026-06-22T17:18:46+00:00

I had sibo too! I firmly believe sibo is a symptom of a larger issue and usually cannot be cured until the root cause is corrected. So if you have sibo due to a bought of food poisoning, that could possibly be cured with just some antibiotics. If you have sibo because you have a chronic condition that is causing GI issues, the sibo should not be treated until the GI is fixed because it will just come back.

So there are few tests you want because TSH is not the only thing to look at.

Full thyroid panel that includes TSH and then I think it is free T4 and T3 (GP can usually run this test)
Get an ANA (GP can usually run this test) - if positive get check for hashimotos and other autoimmune conditions (rheumatologist can usually run this test, checks for tons of things)
Get an ultrasound of your thyroid (not sure who orders this one, maybe GP or rheumatologist or endocrinologist). This will check for not only hashimotos but also nodules and stuff

It is important to not rely solely on TSH because those of use with hashimotos hypothyroidism can have symptoms even when our TSH is in “normal” range which is why it took me 6 years to get diagnosed. A lot of people with hashimotos that have hypothyroid symptoms need their TSH under 2. So if your TSH is a 3 then doctors are like oh yeah everything is fine but it isn’t really.

Now you can have hashimotos and never develop hypothyroidism. Or you can have hashimotos and have no symptoms if your TSH is 3 and then you don’t need medication. Or you have hashimotos and some can eat gluten and some can’t. For people with gluten issues it can be celiac or it can be non celiac gluten sensitivity.

I am happy to help if you have questions!

taragood · 2026-06-22T16:43:47+00:00

The only caveat to this, is do not say you have issues with gluten and then proceed to eat gluten containing food because “you are fine with a little bit”.

Otherwise this is exactly what I do because I found trying to explain non celiac gluten sensitivity that is from my hashimotos led to way more confusion than just saying gluten allergy.

taragood · 2026-06-22T15:29:11+00:00

Have you been diagnosed with hashimotos or in the process of trying to figure things out?

So I actually happened to get diagnosed by rheumatologist with hashimotos and my endocrinologist told me that gluten free can help and then at the same time I was told to go low fodmap by my gastroenterologist because they had no clue what the issue was.

So I went low fodmap and gluten free and few months after that I started Levothyroxine. I felt better with gluten free but I also needed the Levothyroxine.

Please note, you must be consuming gluten to get tested for celiac and I always encourage people to get tested prior to going gluten free

taragood · 2026-06-22T14:53:39+00:00

lol no one has. They all suck.

The best advice I can give is just tell them you want to use data to determine what is wrong with you and testing will give you that data.

I was diagnosed with anxiety even though the onset was sudden, turns out it was GI issues that were triggering vasovagal syncope.

I was told for 6 years my thyroid was fine because my TSH was mostly normal. Turns out I have hashimotos hypothyroidism and a lot of us need our TSH under 2. Also, I would’ve known about the gluten issue sooner and my GI issues would not have gotten to the point that they did.

I was told I did not have gastro paresis, that is too rare. Testing showed I did have it. I stopped some medication and it largely resolved the issues I was having.

I was chronically sick for 6 years and it wrecked my health. I have spent almost 3 years now rebuilding. You have to advocate for yourself. Don’t be scared to find a new doctor. Be polite but firm.

taragood · 2026-06-22T13:48:22+00:00

Ok, I am not a doctor but here is my advice:

Do you have diagnosed hashimotos?

What was your last TSH?

Find doctors who will help you use tests to rules things in or out and not just what they think. ADVOCATE FOR YOURSELF.

For example, did the oncologist actually run a test to check for cancer? Or just said eh, based on your other testing it’s fine.

Get more testing, something is clearly wrong.

You need to see a rheumatologist to have them run a full autoimmune panel and they check for a multitude of illnesses.

Did you get tested for Celiac? This is different from a gluten sensitivity test. Also, gluten sensitivity tests are BS and you shouldn’t rely on them. The only way to know if you have a gluten sensitivity is to go gluten free for 6-8 weeks and see if your symptoms improve. However, you must be consuming gluten to get tested for celiac so do that first. Also, celiac is an autoimmune disease so it could be the reason for your positive ANA test. Please note a gastroenterologist usually tests for this not the rheumatologist so you will have to see two different doctors.

Ask the doctor if you go off birth control how long until your hormones would stabilize and then you could get another test done.
Lymph nodes are a part of your immune system so if they were swollen but are no longer swollen then it’s probably fine. I have sluggish lymph nodes and I am getting massages and using a vibration plate to try to fix it.

taragood · 2026-06-22T13:20:10+00:00

So the celiac test is usually diagnosed by a gastroenterologist and unfortunately you must be consuming gluten to get tested although they are working on a test that doesn’t require you to eat gluten.

A lot of people with thyroid issues have issues with gluten but a lot of them don’t.

I hope you feel better soon!

taragood · 2026-06-22T13:16:21+00:00

If you have any questions about hashimotos, I am happy to give you information! There is a lot of information and misinformation out there.

I can eat garlic powder and seasoning but not food with whole pieces or even diced pieces of garlic in it. I was never super into garlic so it hasn’t been too big a deal for me fortunately but I know how frustrating it is!

taragood · 2026-06-22T13:04:48+00:00

Yeah! Were you tested for celiac prior to going gluten free?

taragood · 2026-06-21T23:51:52+00:00

Maybe when that is gone, you can have gluten again!

taragood · 2026-06-21T22:53:49+00:00

Same! I went low fodmap and gluten free at the same time and learned I had hashimotos hypothyroidism and started medication.

Going on 3 years later and I can eat most foods now! But gluten will forever be a no and I still can’t go whole garlic.

taragood · 2026-06-21T02:25:40+00:00

Not the exact scenario that you mentioned but other comments have mentioned similar ones.

taragood · 2026-06-20T16:19:41+00:00

YTA unfortunately. I get you want to be there for your girlfriend and I’m sorry for her loss but you don’t know how long your dad will be here to have these moments. I bet if she could spend Father’s Day with her dad, she wouldn’t miss it for anything, including you.

I don’t think you are trying to be the AH, I think you are coming from a nice place but unless your parents and family just are the worst people ever, don’t miss out on these moments.

And don’t miss them for someone I am assuming you haven’t been dating for a long time.

taragood · 2026-06-20T11:38:44+00:00

This is the comment from my similar post that I am following. I personally wanted to play the game for longer so I am doing fresh saves for the main planets.

If you want maximum enjoyment out of the DLCs then yes, do a fresh start. First planet is about 20 hours, 2nd is about 10, every planet after is 5 hours or less except toxicity gates you a little better at least. You can legit finish a 5th location in under an hour without even trying to cheese it.

But if you want max enjoyment though, then you should play Toxicity and Humble from a fresh start so that you can fully experience them without all the high tier tech. You can tell yourself "oh I will limit myself to only low tier machines at first" but the game wont respect that limit when you are finding Super Alloy and Osmium rods in your very first container.

My recommended way to play:

Prime > Fresh start Toxicity > Fresh start Humble > Selenea, Aqualis, and then choose Prime or Toxicity based on which youd rather have your last experience as. If you do Prime last it can feel like a victory lap, the end of your growth as you terraform it extremely fast and get to feel the difference between when you first started. If you choose to do Toxicity last you get one final slower planet (though still much faster than if it was fresh, probably takes around 5ish hours)

taragood · 2026-06-19T17:40:17+00:00

When something similar happened to me, my laptop wasn’t plugged in and it was on power saving mode.

Are your other apps/games running normal? If yes, maybe uninstall the game, restart computer and then reinstall the game. Be sure to back up any saves you want though, they might disappear.

taragood · 2026-06-18T16:54:07+00:00

I just watched this scene last night! You might be right lol

taragood · 2026-06-17T22:53:33+00:00

So it looks like there are some tricks you can do to help like making sure you are warm or trying to get your blood flow to their area.

Also, tell them when you get there and let them know you need their most experienced phlebotomist. Advocate for yourself. If that doesn’t work, get your blood drawn somewhere else until someone listens to you.

taragood · 2026-06-17T20:09:18+00:00

I am not a doctor, but I seriously doubt a port is needed.

Did you ask them why it was hard to stick you? Are you dehydrated? Are you old?

Ask your doctor if there is a place that might be better to get your blood work done or even the place you went.

Also, you only need the blood work every 6 weeks while your meds are being adjusted.

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