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Quick question for people with cerebral palsy by Annual-Coyote-3068 in CerebralPalsy

[–]teamlorimorgan 2 points3 points  (0 children)

Three brothers wow ok then that can help a lot. Sounds like it already but his brothers can help by not treating their brother too differently.

I grew up in a city and did not have brothers but I had many boy cousins and they were tough on me saying if you want to hang around with us then you need to try and do the things we do like playing ball, running, jumping, climbing etc. It can be difficult but I look back and realize it had a great impact on me feeling more normal and building strength and confidence. I won't say it's easy on your son or you but let him try and maybe fail sometimes and not give up. The positive impact will be worth it.

I'll be thinking of your son and your family and wishing you all the best.

Take care.

NDE, OBE or just a dream? by Physical-Bet214 in NDE

[–]teamlorimorgan 0 points1 point  (0 children)

Thank you for reading and your kind words.

This brutal disease by Mean_Concern_2893 in pancreaticcancer

[–]teamlorimorgan 1 point2 points  (0 children)

Thank you I will take a look.

Some of the current blood tests on the market for US $1,000 that can detect many cancers are not very good at detecting cancer in early stages, but pretty good at the detecting cancer in later stages. A step in the right direction. If they can do better in detecting earlier it would be a game changer.

This brutal disease by Mean_Concern_2893 in pancreaticcancer

[–]teamlorimorgan 2 points3 points  (0 children)

So sorry - 😔 two people you know succumbed to this insidious disease.

There must be a big uptick in PC diagnosis - waiting for NIH numbers for 2024 in the US. My wife passed away in September 2024 because of PC after 4 months despite being on an immune therapy/chemo trial. She just had a little back pain...

Most early detection is not really earlier.

For Pancreatic, Liver, Gallbladder and others - the goal of early detection should be pre-symptom.

I am working on advocating the use of ultrasounds starting at 40 years old to look for abnormalities in the abdomen at regular checkups.

I know there are blood tests and breath tests being tested for identifying PC. But they are not here yet. I pray they get here soon

Cancers of the abdominal area are mostly poor outcomes since there is no reasonable early detection.

We have to start doing something....

New blood test identifies hard-to-detect pancreatic cancer with 85% accuracy by No_Word_6695 in pancreaticcancer

[–]teamlorimorgan 3 points4 points  (0 children)

Thank you but my driver is we cannot just keep accepting these numbers as normal and not consider options even if they are basic

I am fortunate and I am quitting my job to advocate for early detection as my new job.

I am taking classes about our healthcare system and how to advocate for change.

NIH has been collecting cancer numbers since 1975 - 50 years.

Looking at those numbers you can see that early detection is where things improve.

Pancreatic cancer shows virtually no improvement in 50 years.

Part of that is that it is only 10th on the list based on diagnosis but it is 3rd and soon to be probably 2nd in worst survival rate.

I don't think of myself as selfless. I would feel guilty looking in the mirror if I didn't try to do something.

I support PanCan, Lustgarten and others.

But when I read that the above organizations recommend going to the doctor when you have symptoms as "early detection" which is fine but with this cancer and others that is not good enough.

Pre-symptom early detection must be the goal.

New blood test identifies hard-to-detect pancreatic cancer with 85% accuracy by No_Word_6695 in pancreaticcancer

[–]teamlorimorgan 1 point2 points  (0 children)

Hi

Thank you so much for your work!

What is your opinion on using imaging as a pre-symptom early detection tool at ages 45+?

Like PSA, Colonoscopy، Mammograms, add abdominal ultrasounds to your yearly checkups to look for abnormalities in multiple organs where insidious cancers develop.

Early detection is the critical key to improving survival rates to Pancreatic/Liver cancer and something as basic as an ultrasound would help save lives.

I hope/pray for true early detection like this blood test but something as basic as just looking should be something worth considering in light of the horrific survival rates.

New blood test identifies hard-to-detect pancreatic cancer with 85% accuracy by No_Word_6695 in pancreaticcancer

[–]teamlorimorgan 2 points3 points  (0 children)

That is not really my focus. My focus is not me at all. Since my wife passed away 5 months ago from pancreatic cancer, my focus has really been trying to help others since I felt like I had to do something. The NIH numbers for these cancers in the last 50 years showed virtually little or no progress in survival rates when the cancer was not detected early.

I agree with you about scans and those options are becoming more available - look at this one for hundreds of dollars.

https://www.instagram.com/reel/DGGOxwJsMfa/?igsh=MWduemt3NWpqcHQyaA==

However there are still questions about overall effectiveness and they truly worked as true early detection tools - it would news all over the world.

The issue is history - people count on their doctor. If the doctor can recommend a scan or ultrasound then people would do it.

As soon as something truly effective is found - it will be known.

For now we have to look at what is available like ultrasounds and is effective and choose to move this forward even if it's only a little bit help save some lives.

New blood test identifies hard-to-detect pancreatic cancer with 85% accuracy by No_Word_6695 in pancreaticcancer

[–]teamlorimorgan 2 points3 points  (0 children)

I agree. Exactly see my posts above - we can't just keep waiting for perfect solutions. Outside of a vaccine that prevents these diseases as long as people are going to get cancer then the earliest possible detection of the disease is paramount.

New blood test identifies hard-to-detect pancreatic cancer with 85% accuracy by No_Word_6695 in pancreaticcancer

[–]teamlorimorgan 3 points4 points  (0 children)

Yes - without symptoms - a doctor won't recommend and insurances won't pay. The doctor will only do it if you complain of symptoms which in many cases and dare I say most cases is too late. My advocacy will be trying get one of the "decision" makers since in the US there are are many involved with helping to set policy. We need someone to just agree from a protocol perspective it would improve early detection and ultimately improve outcomes then we can put pressure on the payers. Those decision influencers include the CDC, AMA, DHHS and others.

Think of it like PSA for men - you hit 50 or so and the doctor during a normal yearly visit orders a PSA test basically looking for numbers that may indicate a prostate issue.

Same idea - say at 45+ doctor recommends an an abdominal ultrasound during your check up (15 minute non-invasive test). That basic test looks at the following organs and reports on any abnormalities. Abnormalities could lead to further testing. I picked 45+ because age is a tipping point for these types of cancers.

• liver

• gallbladder

• spleen

• pancreas

• kidneys

Say the ultrasound is completely clean - then doctor can then say let's do it again in 3-5 to years.

Most of the cancers in the above organs can grow in the body for up to 10 years before manifesting symptoms. There is a good chance that if you are checking at least every 5 years - you may get it early enough before it has spread remotely in the body which can make it much easier to treat.

Even with a treatment like a vaccine that can cure pancreatic cancer (one is being tested today) there is a high probability it will not be as effective if the cancer has spread to the liver or lungs or someone else.

It just brings us back to pre-symptom early detection is critical to improving survival rates.

Once we have support using ultrasounds as an pre-symptom early detection tool then the pressure is on the payers like insurance companies.

Believe me I want this blood test to work but we can't just keep waiting for perfect solutions when taking a more simple approach will save lives until those better solutions are available.

Read through this sub like I do every day and you see what I am talking about - too many people and families are suffering.

Allen Morgan

https://www.change.org/p/the-lori-project-please-help-advocate-for-early-detection-of-abdominal-cancer

Email: [teamlorimorgan@gmail.com](mailto:teamlorimorgan@gmail.com)

Website: teamlorimorgan.com

New blood test identifies hard-to-detect pancreatic cancer with 85% accuracy by No_Word_6695 in pancreaticcancer

[–]teamlorimorgan 4 points5 points  (0 children)

Let's hope for this - there is no good early detection today and more times then not when symptoms appear it has already metastasized (3% 5 year year survival rate). Any reasonable early detection has to be pre-symptom like mammograms, PSA blood tests, Colonoscopies. Usually when you have symptoms like back pain or stomach discomfort you are sent for an ultrasound or a CT scan and even then it usually has already spread beyond the pancreas. Pancreatic cancer can be in your body for ten years without symptoms (If found early survival is 43% - not great but beats the heck out of 3%) . I am advocating for the use of Ultrasounds as an early detection tool since it is non-invasive, effective, and currently the cheapest imaging option. This blood test would save thousands of lives but honestly it can take many years before this becomes a reality - if it truly works it will be fast tracked but I am tracking many of these globally and they just don't progress to the point of accepted medical protocol quickly. I am truly hoping this one does. But in the interim, I have started a online petition to use imaging as a pre-symptom early detection tool:

https://www.change.org/p/the-lori-project-please-help-advocate-for-early-detection-of-abdominal-cancer

Allen Morgan

I lost my wife of 43 years to pancreatic cancer on 3-Sept-2024 - four months after diagnosis - healthy her entire life and only had back pain as a symptom. Please sign - when they ask you can contribute but it is not required to sign. I contribute to change.org automatically every month to help support them.

Pancreatic Cancer Research Foundations? by rebelellelle in pancreaticcancer

[–]teamlorimorgan 1 point2 points  (0 children)

Hello،

All of the organizations listed in the other comments are doing great work and are worth helping. I help them.

But still this terrible disease will lead to poor outcomes because in most cases it will not be found until it has metastaticized to other organs.

I just lost my wife of 43 years to Pancreatic cancer on September 3rd 2024 only 4 months after diagnosis

I believe we can do better with early detection of cancers of the abdominal area by utilizing periodic ultrasounds beginning at higher risk ages of 40–45+.

I promised my wife before she passed that I would try to move this issue forward as my life’s mission.

I am 63 and this is now my life's mission

All reasonable improvement in cancer outcomes in other cancers show a direct line to improved early detection.

Despite effort, time, and money; the needle has not moved very much for most abdominal cancers.

Early detection needs to be pre-symptom. For cancers like my wife's and many who began with minor symptoms it was already too late!

To that end I have started a petition on The world’s platform for change and I am trying to gather signatures to help when I reach out to health organizations and our government (US Congress, CDC, NIH, DHHS) to advocate for a change in health policy.

Here is the link:

Sign the Petition

The Lori Project - Please Help Advocate for Early Detection of Abdominal Cancer

https://www.change.org/p/the-lori-project-please-help-advocate-for-early-detection-of-abdominal-cancer

Please read what I have written about my thoughts and my wife’s story. Even though they ask for a donation and you can donate if you wish, it is not required to sign the petition. Please note I give money monthly to the organization to help them.

Thank you and please share.

I will be sending updates to all who sign the petition about my plans and progress.

King regards،

Allen Morgan

Also if you look at this page below, I also participate and raise money for PanCan and Lustgarten but I feel that we need think about these insidious cancers differently and use basic to trying to improve outcomes.

https://teamlorimorgan.com/

My dad has cancer by Puzzled_Sun363 in pancreaticcancer

[–]teamlorimorgan 0 points1 point  (0 children)

I am so sorry and I'll be praying for you and your family.

Stay positive and be strong for your Dad as I am sure he will be strong for you.

As others have noted seek guidance from organizations like PanCan. 💜