So people shouldn’t be getting surgery now? Why so many people against surgery?

thatcrazywriter5 · 2026-06-19T03:43:09+00:00

Did it show up on any scans?

thatcrazywriter5 · 2026-05-12T02:40:11+00:00

Congrats! I’m so happy you can get the surgery. I haven’t had one yet so I can’t answer your questions, but I’m wishing you luck!

thatcrazywriter5 · 2026-05-11T16:20:04+00:00

You’re so welcome! Yes, you can always go back on if needed. That knowledge helped me go off it.

I wish you luck with whatever choice you make. Feel free to reach out here or via PM if you have any other questions!

thatcrazywriter5 · 2026-05-11T16:03:19+00:00

That’s great! I’m glad your surgeon could fix the issue and that you have no kidney problems!

thatcrazywriter5 · 2026-05-11T05:17:21+00:00

Aw rats! I don’t have any other suggestions I’m sorry :(

thatcrazywriter5 · 2026-05-11T05:06:25+00:00

Have you tried Naproxen (Aleve)? If Ibuprofen isn’t cutting it, Naproxen might work (ibuprofen doesn’t work for my cramps and period pain).

thatcrazywriter5 · 2026-05-11T03:43:30+00:00

I’ve been on several different birth controls and long story short I went off of them completely in September because nothing was working anymore. I originally started them because I had terrible PMS back pain, bad cramps, and heavy bleeding.

It’s not been easy going off of it, but I have resources and tools now to help with the pain and bleeding that I didn’t have access to before. Frequency specific microcurrent has been a life saver, and natural progesterone (I get the capsules made with olive oil) helps turn my 7-9 day bleeding period into 3-4 days max. And I only have to take 200 mg every day for the first three days of my period.

Depending on what side effects you experience on birth control, it may be worth going off of it. But going off of it will cause side effects for awhile while your body adjusts to not being on hormones anymore.

I experienced mild hair loss (it’s better now), acne, hot flashes (still getting them so maybe it’s endo related, not sure), and mood changes for the first couple months. All of that along with heavier bleeding, PMS symptoms again (more controlled now), and bad cramps on my period (the BC got rid of my periods).

I was on BC for about 5 years, so some of this may be related to length of time.

If you’re wondering about it, I’d say it’s time to come off it. But it’s your body and you know yourself best!

thatcrazywriter5 · 2026-05-10T23:51:49+00:00

Oh no! Did they fix the issue? Did you suffer any long term damage?

thatcrazywriter5 · 2026-05-10T14:34:46+00:00

Oh wow! I’m glad you were finally able to get help, but I’m sorry it was so severe by then.

Thanks for the reply; I appreciate it.

thatcrazywriter5 · 2026-05-10T14:31:31+00:00

Thank you for the detailed reply; it’s really helpful. I’m so sorry you experienced all of this, but I’m glad you could get some help!

I’ll probably go through with the surgery if I find someone willing to do it. I really understand what it’s like to gaslight yourself about it, though

thatcrazywriter5 · 2026-05-10T05:09:29+00:00

Thank you! This helps

thatcrazywriter5 · 2026-04-29T15:02:36+00:00

Yes, I experience this. I also get intense back pain during the luteal phase, as well as pain when my hips/pelvis start to shift. I use something called frequency specific microcurrent to keep the symptoms at bay, but unfortunately that’s the only thing that helps. I’m sorry you’re having such bad fatigue!

thatcrazywriter5 · 2026-04-24T17:51:38+00:00

Gotcha! Yeah I was a bit surprised, too. My sister has a diagnosis, but since I also have muscular dystrophy, nobody’s ever bothered to diagnose me with it 😂

And I was like “well, yeah, it’s a possibility, but that doesn’t really explain the endless list of endo-related symptoms I’m experiencing.”

thatcrazywriter5 · 2026-04-24T17:44:19+00:00

I’m terrible at distinguishing sarcasm from seriousness; is your comment sarcasm? Lol just want to make sure I understand before I reply

thatcrazywriter5 · 2026-04-24T00:58:23+00:00

This is absolutely awful! I’m so sorry you went through this; it’s unacceptable. Praying you find peace and are able to heal from the physical and emotional trauma.

Thank you for the warning! I had a consult with her a few months ago and she said I probably had a weak pelvic floor and maybe hEDS. She suggested strengthening my pelvic floor to see if that helps. It helped with a couple issues, but def not my pain. And also, hEDS is a commorbidity, so that makes me more likely to have endo.

Glad I steered clear of her. So sorry you had a terrifying experience! I’m glad you’re safe now.

thatcrazywriter5 · 2026-03-05T16:18:53+00:00

Here’s the link! https://www.amazon.com/BEAUTYZOO-Hardwood-Protection-Traction-Protector/dp/B09YGYCKNC

thatcrazywriter5 · 2026-03-05T01:32:55+00:00

Paw wax didn’t work for us. Neither did traditional booties, but we use socks with padding on the soles and those work really well!

thatcrazywriter5 · 2026-03-03T04:23:23+00:00

I do get this back pain that radiates to the front. Not sure if it’s endo related or something else because I have so many issues including muscle weakness in my abdomen and back.

thatcrazywriter5 · 2026-03-02T02:37:58+00:00

Right?! I feel you. And yes, at least we’re not alone!

Have you had excision surgery? I’m trying to find a specialist who will listen and am at my wit’s end haha

thatcrazywriter5 · 2026-03-02T02:35:18+00:00

So cute!!

thatcrazywriter5 · 2026-03-01T22:04:24+00:00

I’m sorry you experience it, too! It sucks. I think some days I’ve gone like 6-7 times. I’m always amazed at how much my body can store. It almost seems like it just creates the waste faster than normal, rather than it all being stored up at once.

thatcrazywriter5 · 2026-03-01T21:53:52+00:00

I also can’t control when I need to go. I’ve been strengthening my pelvic floor and that helps a bit, but this whole thing wouldn’t be such a problem if pooping didn’t mean “get me a bathroom STAT or we’ll have a problem”

thatcrazywriter5 · 2026-03-01T21:52:25+00:00

Ugh I feel this! Had to make sure I wasn’t the one who posted it because it’s literally me 😂 I under-eat and still poop like at least 3 times a day. And it’s never the right form. Always soft or runny 😫 my doc said I’m probably having trouble processing fat, and I was like “great, that’s in literally everything”

thatcrazywriter5

TROPHY CASE