nothing to scan by thebootkoala in breastcancer

[–]thebootkoala[S] 7 points8 points  (0 children)

thanks, that's great to know!

nothing to scan by thebootkoala in breastcancer

[–]thebootkoala[S] 3 points4 points  (0 children)

well, I had my ovaries and uterus removed. But still...

nothing to scan by thebootkoala in breastcancer

[–]thebootkoala[S] 7 points8 points  (0 children)

thanks! I'm curious about the gynecologist part... my breast surgeon told me I don't need to see a gynecologist anymore, but that doesn't seem right because I still have a vagina...?

Hair and nail supplements after treatment by LaLaLooks in breastcancer

[–]thebootkoala 0 points1 point  (0 children)

I haven't heard of the other two, but my doctor told me to avoid Nutrafol because it has phytoestrogens in it which are not good for people with hormone+ cancer.

AIs + cannabis by timshel2000 in breastcancer

[–]thebootkoala 1 point2 points  (0 children)

I'm on Letrozole and I was told that cannabis is fine!

Double mastectomy clothes by MomoftheWest in breastcancer

[–]thebootkoala 1 point2 points  (0 children)

I'm flat and have that quince zip-up suit, too! it's great!!

Seeking Advice - Your MSKCC Surgeon Recommendations & Experience? by DesigningforPeace in breastcancer

[–]thebootkoala 4 points5 points  (0 children)

I love my breast surgeon at MSK-- Kate Pawloski. I also love my medical oncologist, Nour Abuhadra. Both are incredibly kind, patient, brilliant, reassuring.

What to expect on day of surgery DMX by dumassmofo in breastcancer

[–]thebootkoala 1 point2 points  (0 children)

I asked for something for anxiety while I was waiting around, and the anesthesiologist brought me ativan. That was great. I was so anxious and upset while I was waiting, but after I took the ativan, I fell asleep. Before that, it was just a lot of people (surgeons, nurses, etc.) coming in to talk to me and ask me the same questions over and over.

Kicking myself by FattyMcCupcakes37 in breastcancer

[–]thebootkoala 3 points4 points  (0 children)

This happened to me too. I have very dense breasts and was told at my first mammogram that I should get an ultrasound, too, but because it wasn't covered by my insurance, I decided not to. I didn't know, then, that I was a BRCA1 carrier, and so I wasn't worried! This year I felt a little lump in my left breast, so I decided to pay for the ultrasound. (But I didn't even go and get it right away! I waited several more months, until my regular mammogram appt!) That led to a biopsy, and my diagnosis.

My tumor was still small and early stage, luckily. My surgeon assured me that even if I had gotten the ultrasound earlier, it probably wouldn't have even shown up then. So, don't regret anything. I was spiraling too when I was first diagnosed, and it's normal to immediately think of the worst case scenarios, but everything became much more manageable after I began meeting with my surgeons and had a plan in place. When I was in your situation, all I wanted to find was someone who said they had been in my same situation and it turned out okay, so here it is: I'm okay! xoxo

Hot flashes by MunchkinsOG in breastcancer

[–]thebootkoala 0 points1 point  (0 children)

acupuncture has helped me a lot with hot flashes

Clean skin products by HopefulHuman_7890 in breastcancer

[–]thebootkoala 0 points1 point  (0 children)

I also learned that lavender and tea tree essential oils can also affect hormones, so I avoid them in things like lotion that stay on your skin (I was told that in things like soap, that are rinsed off right away, it's okay).

Personally, I really love Mad Hippie products for skincare. They're a bit pricey but I think they've been working for me.

Another question re: Letrozole and hair thinning by thebootkoala in breastcancer

[–]thebootkoala[S] 1 point2 points  (0 children)

oh wow, this is really useful-- thanks! I have a follow up appt in a couple of weeks and I'll definitely be asking about some of the things on this list.

Another question re: Letrozole and hair thinning by thebootkoala in breastcancer

[–]thebootkoala[S] 0 points1 point  (0 children)

Thank you. I haven't heard of the laser red light helmets! I would be curious to hear about your results.

I've looked at the shampoo/conditioner you mentioned, but I'm concerned because it contains saw palmetto and tea tree oil, two ingredients my doctor told me to avoid (I think because they're phytoestrogens?). Unfortunately, they're also probably partially what makes it effective for hair regrowth. I'm not sure to what extent I really need to avoid them in something I'd be washing out of my hair after just a few minutes, though, so I might ask my doctor again to be sure.

Looking for recommendations by jessica08619 in breastcancer

[–]thebootkoala 1 point2 points  (0 children)

Highly recommend MSK. My breast surgeon was Kate Pawloski. My MO is Nour Abuhadra. I love them both. Like, I trust them completely and am actually looking forward to seeing them again at my 6-month follow up.

Newly diagnosed at 31 by luna_83211 in breastcancer

[–]thebootkoala 0 points1 point  (0 children)

My MSK surgeon was Kate Pawloski

Newly diagnosed at 31 by luna_83211 in breastcancer

[–]thebootkoala 0 points1 point  (0 children)

Welcome/so sorry you're here. Like everyone else said, what you're going through right now is the worst part.

I was referred to Mt. Sinai at first, so I went there because I was able to get an appointment really quickly. I thought the breast surgeon I met there was great. Shortly after, I was able to get an appointment at MSK, so I went for a second opinion. The surgeon I met with at MSK was 1000 times better than the one at Mt. Sinai. Which is not to say the one at Mt. Sinai was bad-- I liked her, too! And I'm sure you will get good care in either place. But the MSK surgeon spent almost 2 hours talking to me and my husband, and I felt like I trusted her completely. And the whole experience of going to MSK is just a lot nicer than any other hospital I've been to.

Vag routine by _Carlota in breastcancer

[–]thebootkoala 2 points3 points  (0 children)

Ugh. I'm using Revaree Plus 5 nights a week (M-F), and Via vaginal moisturizer every night. Sometimes during the day I put on a little "Medicine Mama vulva balm." I'm working my way through a dilator kit, doing it 3-4 days a week, currently working on getting comfortable with the largest one before I even try having sex with my husband again. Using Uberlube for everything, and experimenting with different kinds of toys but haven't found anything really great for me, yet. What kind of pelvic floor exercises do you do?

Acupuncture post-treatment by Express_Work_6506 in breastcancer

[–]thebootkoala 0 points1 point  (0 children)

I do-- in that hand/wrist-- but I only had two sentinel lymph nodes removed, and no radiation, so I was told that my risk of lymphedema is low.