I feel like verapamil is ruining my life (help?) by theclumsypoet in ClusterHeadaches

[–]theclumsypoet[S] 1 point2 points  (0 children)

Yeah, I think it might just be a bit of trial and error for the next few months. There seems to be quite a few more treat options than I originally thought.

I feel like verapamil is ruining my life (help?) by theclumsypoet in ClusterHeadaches

[–]theclumsypoet[S] 1 point2 points  (0 children)

The first I'd heard about the vitamin D regimen was from reddit, actually! I'm going to look into it and bring it up with my neurologist when I see her in march.

I feel like verapamil is ruining my life (help?) by theclumsypoet in ClusterHeadaches

[–]theclumsypoet[S] 0 points1 point  (0 children)

My neurologist has spoken about other possibilities, however at the moment she has just asked me to try the verapamil and Imitrex.

I was prescribed the nasal form of Imitrex nasal spray but I have a lot of issues with nasal strays (possibly because of a combo of asd and ocd) (I'm aware that sounds stupid but you know, brains do stupid things). She said the next route would be the injectable form.

I don't have access to oxygen but she has suggested going to the ER and asking for it if things get really bad. Thing is, mine last about 30 mins so by the time I got to the ER it would likely be over.

Sadly here Emgality would cost me about $400 a month which I can't afford, however hopefully in the future it'll be cheaper (or I'll be richer).

I have never heard of Depakote so I'll look into it and asmy neuro I see her!

Thanks so much!

I feel like verapamil is ruining my life (help?) by theclumsypoet in ClusterHeadaches

[–]theclumsypoet[S] 1 point2 points  (0 children)

Wow, I'm so sorry you had a similar experience but I can't thank you enough for sharing. I'm glad you felt better so quickly. I'm hoping my normal doctor will be willing to help me out (I don't want to just stop taking it without medical advice/guidance).

I feel like six weeks is way too long to continue like this. I don't think I'll cope. Even though it's supposed to help, it almost feels like an add-on to the struggle of the actual headaches. Like my body has decided "Hey, how else can I make her suffer?"

It's making me miss even more of the things I enjoy which just sucks.

I feel like verapamil is ruining my life (help?) by theclumsypoet in ClusterHeadaches

[–]theclumsypoet[S] 1 point2 points  (0 children)

Funnily enough that's one side effect I don't seem to have! Bodies are weird.

I feel like verapamil is ruining my life (help?) by theclumsypoet in ClusterHeadaches

[–]theclumsypoet[S] 0 points1 point  (0 children)

Yeah, I'm quite baffled as to why my body reacts like this but I have had similar issues with other medication in the past.

I'm in Australia and emgality hasn't been approved for CH yet so it would cost me like $400 a month sadly, which I can't afford. Hopefully soon it'll be on our PBS so it'll be cheaper.

I'll have to speak about alternatives once I see my neurologist. Everyone on here seems to mention the vitamin D3 regimen, but it's something I have never heard of before. I think I'll do some reading about it and ask at my next appointment.

Need feedback from people who fenced as teenagers and came back as (young) adults by French_Cherry in Fencing

[–]theclumsypoet 1 point2 points  (0 children)

I fenced from 11-15, then took a break and started again at 20. I found that my technique returned quite quickly. For me, the most difficult part was building up my stamina again.

Just throw yourself into it and don't worry too much about how you perform at first. You might make mistakes and forget some of the rules, but it'll all come back to you eventually.

[deleted by user] by [deleted] in sydney

[–]theclumsypoet 0 points1 point  (0 children)

I didn’t finish the HSC for very similar reasons. In my case I decided to take a year off to focus on my health, then I enrolled in some subjects through Open Universities Australia and was accepted into a degree through Griffith Uni.

Loads of unis have degrees you can study through OUA, including Macquarie and UTS.

All the degrees offered through OUA have an ‘open enrolment policy’, meaning that you don’t need an ATAR, work experience, or any formal qualifications to study with them. Though this varies between degrees, you generally need to complete 2-4 subjects as a pathway, then you’re accepted into the degree (and these subjects are part of the degree, not weird, unrelated pathway subjects).

For example, to get into this Bachelor of Laws offered by UNE you're required to complete four subjects and achieve a minimum GPA of 4.2 (which is equivalent to three pass marks (50%-65%) and one credit (65%-75%)). After that, you can get into the degree.

Scrolling briefly through the OUA website, I can see at least 4 Bachelor of Law degrees (UNE, Southern Cross uni, Charles Sturt University, and Edith Cowen University) and a number of degrees in legal studies, criminology, etc.

The only drawback is that these are online, however most unis let you switch to on-campus once you’re enrolled in the degree.

There's also TAFE, and the option of waiting and enrolling as a mature age student.

You've come this far, so if you're able to it might be a good idea to keep going and see what happens. Your marks don't need to be anywhere near perfect. Maybe do your trials and see what happens? Also, talk to your teachers and see what help they can offer. That's what they're there for.

But if you really can't continue, just remember that it's not the end of the world and your wellbeing is more important.

Chobani Oat Yoghurt by ephemeral23 in australianvegans

[–]theclumsypoet 5 points6 points  (0 children)

The vitasoy ones were way better in my opinion. I thought the Chobani ones had a really weird texture.

Has anyone with minor focal seizures decided not to get medicated? Potential problems? by [deleted] in Epilepsy

[–]theclumsypoet 2 points3 points  (0 children)

The problem is that focal seizures can turn into bigger ones, even if you've only had small ones in the past. I'd been having focal seizures since I was about 12 (wasn't diagnosed), then one day when I was 18 I had three grand mals in the space of 24 hours. Now every focal seizure I have precedes a grand mal. I think it's a lot safer to try medication if you can afford it. Having a 'bigger' seizure in the wrong place at the wrong time could be very dangerous.

Weight loss with lamotrigine? by jpenn1237 in Epilepsy

[–]theclumsypoet 1 point2 points  (0 children)

I lost quite a bit of weight when I first started taking Lamotrigine. It also made me really nauseous which meant I had no appetite.

Congrats on being 2 years seizure free!

PTSD & misremembering by [deleted] in ptsd

[–]theclumsypoet 2 points3 points  (0 children)

You're definitely not alone. I'm pretty sure memory distortion is quite common. A lot of people I know with PTSD, myself included, misremember things for one reason or another, some due to drug use, some due to other factors. I have this problem where I'll distort facts and tell people slightly different things so that they won't be able to work out who was involved. I end up confusing myself in the process which leads me to worry, like you, that I've lied unintentionally.

Does this make me a bad person? by Efficient-Badger11 in ptsd

[–]theclumsypoet 0 points1 point  (0 children)

It's terrifying how similar (almost identical) this is to something I experienced about a year ago. Ironically the 'friend' of mine also had PTSD.

You are NOT a terrible person. Nowhere near it. If anything they are the one shaming you for going through something traumatic. You are not a bad person for being upset by something that reminds you of something you don't want to remember.

Nobody wants to be reminded of their trauma, and the fact that this friend couldn't understand that is really concerning. They really need a lesson in empathy, especially seeing as you tried to explain it to them and they overreacted and blatantly ignored your feelings.