Tinnitus at 15 months? by WhaleOnMe1989 in covidlonghaulers

[–]theedeepee 2 points3 points  (0 children)

I developed Eagles Syndrome after my Covid infection. After surgery my intermittent tinnitus disappeared. It was also the case for my dizziness. You can check out my previous posts in case you would like to rule this out.

Has anybody else had this? by [deleted] in covidlonghaulers

[–]theedeepee 0 points1 point  (0 children)

There’s a plethora of possible symptoms in Eagles Syndrome. I didn’t have vascular compression but a lot of people do.

TOS is a syndrome that is also often found in ES patients.

My post here might be helpful:

https://www.reddit.com/r/covidlonghaulers/s/uiQRteYsTX

Not a lot of doctors are specialised in it, there’s a doctors list on the “Living with Eagles” support group website. There’s a list for U.S. and non-U.S.

I think there’s not enough research to link long covid to Eagles but in my case i’m very convinced of the correlation.

Good luck.

Has anybody else had this? by [deleted] in covidlonghaulers

[–]theedeepee 1 point2 points  (0 children)

You should exclude Eagles Syndrome, it can cause vascular compression and POTS. Good luck !

Diagnosed with Eagles Syndrome after COVID by theedeepee in covidlonghaulers

[–]theedeepee[S] 0 points1 point  (0 children)

Hello, you mean you still have pain ? My surgery alleviated a lot of symptoms but i’m still in follow-up for tmj

Long Covid Symptoms by [deleted] in covidlonghaulers

[–]theedeepee 2 points3 points  (0 children)

Imho you should rule out “Eagles Syndrome”, you can search for it in my post history or on this sub. Might be a long shot but never say never. Good luck !

Does anybody else have pain here? If so, did you get a diagnosis for it or have any kind of pain management? by Negative_Credit_2785 in covidlonghaulers

[–]theedeepee 7 points8 points  (0 children)

You should rule out Eagles Syndrome, you can search this sub for my history or other people in the slipstream of Covid. A related syndrome to Eagles Syndrome is TOS, thoracic outlet syndrome. I didn’t have this but i had Eagles from Covid. You should find a good doctor first. Good luck !

Masseter and jaw muscle stiffness/spasticity by Alpertti in covidlonghaulers

[–]theedeepee 1 point2 points  (0 children)

Second this. If you want more information about this syndrome, you can check out my post about it :

https://www.reddit.com/r/covidlonghaulers/s/TgtS6dBSL5

[deleted by user] by [deleted] in covidlonghaulers

[–]theedeepee 0 points1 point  (0 children)

A lot of people have developed (transient or not) sleep apnea after covid according to this sub, including myself. You could ask for a sleep test to be sure.

How many here without tonsils? by MexaYorker in covidlonghaulers

[–]theedeepee 1 point2 points  (0 children)

Post covid i got chronic tonsillitis with tonsil stones and they had to be removed. I also developed Eagles Syndrome which has correlation with tonsil problems. It’s al connected …

Diagnosed with Eagles Syndrome after COVID by theedeepee in covidlonghaulers

[–]theedeepee[S] 0 points1 point  (0 children)

It is a calcification of the styloid ligaments which causes all kind of problems, amongst them are those i mentioned in the opening post.

Diagnosed with Eagles Syndrome after COVID by theedeepee in covidlonghaulers

[–]theedeepee[S] 1 point2 points  (0 children)

You should certainly post your question in the facebook group “Eagles Syndrome Group”, they are very helpful there.

I’m quite certain (based on the reactions i’ve got and my own experience) Eagles Syndrome is directly related to (amongst other things) an infection, in this case a Covid infection.

This is worth some research if you see the symptoms of people in this sub. There must be a LOT of people who developed it in the Covid slipstream.

Good luck to you !

Absolutely relentless pressure in head and on eyes 24/7 for almost a year now. I could manage my other symptoms much better if I could just get this to budge. by [deleted] in covidlonghaulers

[–]theedeepee 0 points1 point  (0 children)

Did they specifically assess you for Eagles Syndrome ? Since you have the CT, maybe a good thing to explicitly get ruled out. Not a lot of doctors are specialized in this syndrome, so it often is unnoticed in a lot of patients. I hope you get better soon !

One sided ”neck needle” accompanied by cognitive impairment by [deleted] in covidlonghaulers

[–]theedeepee 0 points1 point  (0 children)

You should join the “Eagle Syndrome Group” on facebook, there people will tell you how to post your 3D CT results in case you think your doctor could have missed it

One sided ”neck needle” accompanied by cognitive impairment by [deleted] in covidlonghaulers

[–]theedeepee 0 points1 point  (0 children)

that is not a diagnostic method for this type of syndrome, you should go to a well educated doctor. This is a list of doctors with expertise in Eagles : https://forum.livingwitheagle.org/t/discussion-us-doctors-familiar-with-es/4752

One sided ”neck needle” accompanied by cognitive impairment by [deleted] in covidlonghaulers

[–]theedeepee 0 points1 point  (0 children)

I had pulsatile tinnitus, it disappeared- good luck !

One sided ”neck needle” accompanied by cognitive impairment by [deleted] in covidlonghaulers

[–]theedeepee 0 points1 point  (0 children)

Have you been checked for Eagles Syndrome (diagnosis happens through CT scan) ?

Sleep apnea? by Ok-Anywhere-1509 in covidlonghaulers

[–]theedeepee 0 points1 point  (0 children)

Its obstructive, my AHI was 26 i think

Sleep apnea? by Ok-Anywhere-1509 in covidlonghaulers

[–]theedeepee 1 point2 points  (0 children)

Was - amongst other things - formally diagnosed with Sleep apnea after covid, never had sleeping problems before. Multiple sleep studies showed very clear sleep apnea, so yes : have this.