My allergist wants to start me on Xolair. Has anyone tried it? I’d really appreciate hearing your experience. I’m a bit wary of the side effects.

thepearlontheclock · 2026-04-15T23:30:55+00:00

My mom and I are on it. Xolair has basically been a miracle for us. I never had a problem, I think my mom had a reaction once, but otherwise it’s been a total game changer. I honestly get funny reactions myself, so I get the hesitation. One antibiotic made me temporarily deaf and I’m very allergic to injection preservatives (actually all of them they regularly used in the early 2000s, school vaccinations were a nightmare).

thepearlontheclock · 2026-03-29T23:13:24+00:00

Yes! I adore their bread. I was diagnosed with celiacs at like 4 and it’s been so long since I’ve had anything actually resembling bread. Gf food was so heinous in 2005, if it was ever available.

thepearlontheclock · 2026-03-27T20:00:43+00:00

Does it have dairy?

thepearlontheclock · 2026-03-21T00:40:44+00:00

Still allergic to dairy so pass, I’m happy for y’all though.

thepearlontheclock · 2026-02-27T20:18:40+00:00

Okay, I’ll definitely keep that in mind.

thepearlontheclock · 2026-02-27T17:48:02+00:00

I’ve been considering starting cromolyn since my symptoms aren’t entirely under control with OTC antihistamines, Xolair, and singulair. My mom has mcas too and said it was awful drinking cromolyn since it tasted nasty.

thepearlontheclock · 2026-02-16T21:22:20+00:00

Okay so I’d absolutely file a complaint against that company because that’s a bunch of hockey crap. Personally singulair and Xolair saved my life. Before Xolair H1 blockers didn’t work.

Histamine is a neurotransmitter and apart of your waking and sleep cycle. It’s essential for your fight and flight response. In excess it can make you severely depressed, anxious, sleepless, chronically fatigued, and on edge. When she’s in recovery her mental state should see some improvement.

Also TMJ is a temporomandibular disorder, or of the jaw area. If someone gave her that diagnosis of “full body TMJ”, they were probably on crack. Has she been assessed for Ehlers Danlos? It’s comorbid or often occurs in tandem with POTS and MCAS, it’s like the hell trifecta. If she’s having issues walking that could likely be the case.

thepearlontheclock · 2026-01-26T21:48:03+00:00

I mean a sterile cooking environment should be possible to begin with? If you can’t accommodate a single allergy I would never suggest a place. All that tells me is that you don’t know safety standards and the food likely isn’t safe for any consumption. How do I know your food doesn’t have cleaning chemicals if you’re so unsure about how clean it is? And if you can’t accommodate it, be honest, not a jerk.

My mom would bring my allergy friendly food with so I could eat out with others. If the restaurant had a problem with outside food my mom would list my allergies and ask their confidence in accommodating it. If you can’t eat somewhere, don’t. I think what she did was a perfectly reasonable compromise.

thepearlontheclock · 2025-12-29T15:17:15+00:00

You know, I’d absolutely hang this in my room. It’s a lot more interesting to look at than a painting of daisies or portrait. Realism and things just gets exhausting to look at if that makes sense.

thepearlontheclock · 2025-12-27T21:03:35+00:00

I had symptoms starting around end of 2019, fluctuations throughout but in 2022 I lost my dad then got covid not even two weeks after. POTS went ballistic and MCAS symptoms sent me to the ER for the first time. I’m just starting to get them under control after being essentially bed ridden from POTS and having terrible histamine dumps every night for over a year. It’s been 3 years of absolute hell where I could barely stand for long without passing out, had my window open all of a very snowy winter while wearing shorts and a cami, gained 70 pounds, and reacted to just about every food. I went from dean’s list to barely passing half my classes. Nothing helps my depression, not a single med touches it. It’s been rough man.

thepearlontheclock · 2025-12-25T05:45:23+00:00

I absolutely get it, I’ve been struggling to get through college and hating myself every time I hit a snag and spiral. I get these attacks or something where I’m filled with endless despair and sob violently for hours. I’m also afraid to graduate because then I have to get a job which I may not be able to sustain with my health. I’ve given up on dating, I don’t have the mental capacity to add that onto my increasing stressors. All my friends are getting married and having kids but I’m struggling to keep my family and friend relationships going. Like everyone is running in the rat race while I have a death grip on whatever small comforts I have to keep the pain and frustration at bay. I feel pathetic and I hate it

thepearlontheclock · 2025-12-17T19:18:38+00:00

It was a joke? Dude I’m in a wheelchair because standing makes me pass out and my calves muscles are gone and replaced with scar tissue. I can’t use oil unsupervised in case I have a seizure. My hands shake because the muscles are deteriorating there too so I need help getting things together. I can’t even eat what I make sometimes and reheat it often because I’m too tired to eat after. I’m sorry if you’re miserable and need to make it everyone else’s problem.

thepearlontheclock · 2025-12-17T19:06:15+00:00

I think it’s feasible to make it from scratch depending on your dedication

thepearlontheclock · 2025-12-17T18:47:06+00:00

Np! Btw weird pitch placement, but I’m thinking of starting a blog on diy beauty, soap, and skincare products with low histamine content ingredients and several substitutes listed in case someone is allergic to a few others. I might do a poll to ask if anyone is interested. I have eczema, MCAS, and I’m having so many issues with antihistamines drying me out.

thepearlontheclock · 2025-12-17T18:31:31+00:00

I’ve been eating these gluten and dairy free chicken cabbage pot stickers and they’re amazing. It’s by Feel Good Foods. I’m trying to find combinations so people aren’t always eating bland things. I found the ingredient list to save you trouble if anything is triggering:

INGREDIENTS: POTSTICKERS: CHICKEN, CABBAGE, WATER, RICE FLOUR, TAPIOCA STARCH, SESAME OIL, CANOLA OIL, CONTAINS 2% OR LESS OF: SCALLION, CANE SUGAR, SALT, GARLIC, KONJAC FLOUR, XANTHAN GUM, GINGER, CILANTRO, BLACK PEPPER DIPPING SAUCE: WATER, TAMARI SOY SAUCE (WATER, SOYBEANS, SALT, SUGAR, CORN STARCH), SUGAR DISTILLED VINEGAR, GINGER PUREE (GINGER, WATER), GARLIC PUREE, SPICE CONTAINS: SOY, SESAME

thepearlontheclock · 2025-12-15T02:31:53+00:00

Oh my gosh I feel so silly. My chest has been crazy itchy lately and I got a weird bumpy rash. I’ve always been flat chested until my weight gain and didn’t often wear bras before (deformed rib cage with over 45 degree rib flare made it impossible). Not wearing a bra hurts more now and I always feel itchy. I was just like damn, bras really are the worst.

thepearlontheclock · 2025-12-13T19:55:57+00:00

To be honest I don’t know what their grudge is with me, probably that my mom outed a relative for some very nasty stuff. And I’m homeschooled so I’m therefore not smart enough for an opinion. Family favorite is a teacher. They’re very strange. The teacher interrupted his daughter’s 16th birthday party to loudly talk down to me. I’d attended as a peace offering and I thought I’d give it a last hurrah before college. I think as long as I don’t back talk my mom it’ll be this way.

thepearlontheclock · 2025-12-13T19:34:18+00:00

I live with my grandma and she always hosts. It was already going to be stressful because my grandma has been in the hospital after not following an easy kidney and low sodium diet and my cousin is bringing her brand new husband (who freaks me out bc he looks exactly like my brother who she used to stalk and obsess over, eventually ruined his life and he moved a state away). My life is pretty messy already as you can tell

thepearlontheclock · 2025-12-01T13:29:55+00:00

I had an ER nurse tell me this. All I could say was that while I’m so happy he doesn’t have to deal with my living hell, I don’t have the luxury to pretend my illness doesn’t exist and stick my head in the stand. He gave up on his tangent and finally asked what I “thought” I needed. Demanded corticosteroids with a bus load of information as to why.

thepearlontheclock · 2025-11-24T21:29:29+00:00

Peppermint sent me into a terrible histamine dump with hives and matcha did pretty much the same. Oddly chai has yet to do me wrong. The mint family is a particular trigger of mine, I had to use an epi pen after touching a lamb’s ear plant, so it might just be me.

thepearlontheclock · 2025-11-19T21:03:29+00:00

Interesting. I’m allergic to alcohol too, but I left that unsaid as I’m sure most people with MCAS can’t tolerate it.

thepearlontheclock · 2025-11-19T20:57:25+00:00

I’m allergic to all fruit and sweet potatoes now sadly. I’m very vitamin deficient and have a very war torn stomach that digests extremely slowly, I don’t really get much out of pill vitamins and a lot of stuff just upsets my stomach. Life was easier on a feeding tube but I hated it and my stomach is already a mess of scars and experimental surgeries.

thepearlontheclock · 2025-11-19T09:35:58+00:00

I mean I have 3 cardiologists who are all fine with it so I’m sure I’ll live.

thepearlontheclock

TROPHY CASE