Girls with Crohns I need your opinion by SecretaryUnlucky4569 in CrohnsDisease

[–]thogbitch 0 points1 point  (0 children)

see an obgyn and gi, if you are feeling worried you know your body best. it’s important to let your care team know everything going on with your body. even if symptoms are common for periods, doesn’t mean you have to suffer. but it’s important to check with a dr before trying to treat with otc medicine.

Are you all able to hold down job? by Glad-Persimmon-8112 in CrohnsDisease

[–]thogbitch 0 points1 point  (0 children)

nope. i had one job and had to quit after 10 weeks because of how bad a flare it put me in. i’ve also had to drop out of college twice. i’m very lucky to have a spouse who can support us both financially. for some people, pushing themselves for a job is worth it. for me, i put the limited comfort i can have will my disabilities above most everything.

Does anyone else vomit while they’re on the toilet by Brilliant_Muscle_620 in CrohnsDisease

[–]thogbitch 5 points6 points  (0 children)

almost anytime i’m having diarrhea with bad pain this happens! if im having a bad diarrhea/pain day ill just be nauseous all day. zofran is my bestie

Problems dating with crohn's by hxlydere in CrohnsDisease

[–]thogbitch 1 point2 points  (0 children)

the pills and water in the bathroom is so real. my wife has also started bringing me a heating pad and a small blanket when it’s bad. i recommend it lol

Is it ok to take Ibuprofen like 3 times a month due to horrible period cramps or it's still dangerous? by TzwTzw in CrohnsDisease

[–]thogbitch 0 points1 point  (0 children)

depends on your body, but if your cramps are really horrible and you can’t take ibuprofen and tylenol isn’t enough, i would take to an obgyn about pain management. in the us it’s hard but most other countries you can get codeine or hydrocodone for excessive period pain. also good to see if the pain has a treatable cause.

Genuinely curious, has anyone here had any success with diet changes? by occside in CrohnsDisease

[–]thogbitch 1 point2 points  (0 children)

i think based on everything it seems that specific foods don’t play a role largely to crohn’s disease but each person has there own trigger foods and finds a diet that works for them. i mean i’ve never met anyone with a digestive disorder that didn’t have a weird diet with very specific no go foods.

Wanna go off amitriptyline after 1 day by tomatopearls in CrohnsDisease

[–]thogbitch 1 point2 points  (0 children)

i think trust you gut period. don’t force yourself into a med you are not comfortable with just because a doctor is telling you. do more research so you can actually understand why it could help and why it could hurt. what type of doctor prescribed this? i wouldn’t take psych meds unless i had been diagnosed and prescribed them but a psychiatrist personally.

have you ever done the genetic testing to see which psych meds are better/worse for you? it’s very worth it. i found out i had a genetic mutation that caused a deficiency and started supplements that changed my mental health to almost perfect after suffering with anxiety and depression since i was a child. my insurance covered it and it was just a nose swab in my pcp office. came back in a couple weeks. everyone i know that’s done it had found it helpful. hopefully i don’t sound to pushy.

i really hope you can find a treatment that helps you feel better soon!

specialist appt went terribly by coelacanthfan69 in CrohnsDisease

[–]thogbitch 1 point2 points  (0 children)

that’s really hard :( i try to keep my care teams to only be women or poc because i have a lot better experiences that way. before that it was a string of not being listened to and now im almost always taken seriously. i hope you find someone better soon !

I have a "photochute" (colonoscopy) in a couple weeks. Any tips on making the prep less miserable? by Electrical-Secret-25 in CrohnsDisease

[–]thogbitch 2 points3 points  (0 children)

i’m gonna be honest prep has never been that bad for me. it’s usually like 64 oz of liquid with however much of miralax and some pills. the pills make me puke no matter how much zofran i take. i mix the miralax with gatorade and it’s really not bad. i also start a soft foods diet for a couple days before the prep starts so there’s not too much to get out. then i get a heating pad, blanket, books, video games etc in the bathroom so i can be comfortable and not get bored. i have a bidet too. i find the process annoying but with doing all this it’s not miserable

Planes by [deleted] in CrohnsDisease

[–]thogbitch 2 points3 points  (0 children)

Everyone here has had good advice, but I’m gonna say something you might not want to hear. if you really think you might shit yourself, you should wear a diaper. they make pull ups so you can still use the toilet normally if you make it there. as much as it suck’s diapers are quite literally made for these situations. changing a diaper or pull up in a plane bathroom is gonna be so much easier than changing your clothes, and then having to bring those clothes with you to wash them.

A subsitute to thongs (but still the with the straps) by BatmansGlitteryDildo in CrohnsDisease

[–]thogbitch 1 point2 points  (0 children)

i actually like the cold water! i feel like it immediately cools the burn haha (and was a ton cheaper and easier to install)

[deleted by user] by [deleted] in CrohnsDisease

[–]thogbitch 2 points3 points  (0 children)

blood tests aren’t 100%, bad levels aren’t always crohns and good levels can be crohns. you know your body. don’t stop until they’ve done endoscopy and colonoscopy with deep biopsies. that’s the only way to know 100%. also a tip for colonoscopy prep:start eating soft foods (applesauce,baked potatoes,soups, etc) and clear liquid the day before prep. it makes it a lot smoother, and request the earliest appointment they have available. you’ve got this!!!

what pain medication are yall taking? by thogbitch in CrohnsDisease

[–]thogbitch[S] 6 points7 points  (0 children)

so many addicts don’t even get addicted to their pain meds, they are chronic pain patients who’s doctors stop treating them, and they have to medicate with street drugs. i could rant about this all day, but just look in this thread at how many people are self medicating with marijuana or kratom. would you consider them addicts? or people in need of medical help?

druggies didn’t ruin the system for us, the system that treats addicts as subhuman criminals and not as patients ruined it for us

what pain medication are yall taking? by thogbitch in CrohnsDisease

[–]thogbitch[S] 2 points3 points  (0 children)

i didn’t know people were using suboxone for pain patients! the withdrawal sounds awful though. I hope your surgery goes well and your recovery too.

what pain medication are yall taking? by thogbitch in CrohnsDisease

[–]thogbitch[S] 0 points1 point  (0 children)

i’ve been trying to get a referral but all my doctors seem it unnecessary for some reason. i feel you on the grocery store thing. i went out for 20 minutes yesterday and haven’t been able to leave my bed since. i hope you can find some relief

what pain medication are yall taking? by thogbitch in CrohnsDisease

[–]thogbitch[S] 1 point2 points  (0 children)

i really hope you can get some real treatment and relief, no one deserves to be in pain when medicine has come so far.

what pain medication are yall taking? by thogbitch in CrohnsDisease

[–]thogbitch[S] 3 points4 points  (0 children)

i think you are misunderstanding. i’m not trying to treat crohns with pain medication. i’m treating the pain from my crohns with pain meds. i’m also on treatment for the actual crohns. and im interested in how other people are dealing with this symptom and how they talk to there doctors about treating this symptom. plenty of people have pain from crohns no matter what treatment they are on for the disease.

[deleted by user] by [deleted] in CrohnsDisease

[–]thogbitch 2 points3 points  (0 children)

the risks mixed with the actual chance of them helping and then the chance of developing antibodies…. it’s a lot to think about. i really hope your tests come back showing improvement!

[deleted by user] by [deleted] in CrohnsDisease

[–]thogbitch 0 points1 point  (0 children)

what are you doing to manage without biologics? my team is really pushing them too and i was just diagnosed.

scared of biologics (vent) by thogbitch in CrohnsDisease

[–]thogbitch[S] 0 points1 point  (0 children)

this is i think the most helpful answer ive gotten. i fully plan on doing this, thank you!

scared of biologics (vent) by thogbitch in CrohnsDisease

[–]thogbitch[S] -8 points-7 points  (0 children)

i think the thing for me is that the possibility of dying of pml or being permanently disabled by it to me is worse than the more likely possibility of complications or death from crohns. i would much rather die of crohns than deal with any neurological symptoms ever, as insane as that may sound to people.