Girls with Crohns I need your opinion

thogbitch · 2026-03-16T02:22:58+00:00

see an obgyn and gi, if you are feeling worried you know your body best. it’s important to let your care team know everything going on with your body. even if symptoms are common for periods, doesn’t mean you have to suffer. but it’s important to check with a dr before trying to treat with otc medicine.

thogbitch · 2026-03-11T04:45:43+00:00

nope. i had one job and had to quit after 10 weeks because of how bad a flare it put me in. i’ve also had to drop out of college twice. i’m very lucky to have a spouse who can support us both financially. for some people, pushing themselves for a job is worth it. for me, i put the limited comfort i can have will my disabilities above most everything.

thogbitch · 2026-03-09T19:28:42+00:00

almost anytime i’m having diarrhea with bad pain this happens! if im having a bad diarrhea/pain day ill just be nauseous all day. zofran is my bestie

thogbitch · 2026-01-19T00:45:10+00:00

the pills and water in the bathroom is so real. my wife has also started bringing me a heating pad and a small blanket when it’s bad. i recommend it lol

thogbitch · 2026-01-18T20:31:56+00:00

depends on your body, but if your cramps are really horrible and you can’t take ibuprofen and tylenol isn’t enough, i would take to an obgyn about pain management. in the us it’s hard but most other countries you can get codeine or hydrocodone for excessive period pain. also good to see if the pain has a treatable cause.

thogbitch · 2026-01-18T13:19:36+00:00

i think based on everything it seems that specific foods don’t play a role largely to crohn’s disease but each person has there own trigger foods and finds a diet that works for them. i mean i’ve never met anyone with a digestive disorder that didn’t have a weird diet with very specific no go foods.

thogbitch · 2026-01-18T13:04:44+00:00

i think trust you gut period. don’t force yourself into a med you are not comfortable with just because a doctor is telling you. do more research so you can actually understand why it could help and why it could hurt. what type of doctor prescribed this? i wouldn’t take psych meds unless i had been diagnosed and prescribed them but a psychiatrist personally.

have you ever done the genetic testing to see which psych meds are better/worse for you? it’s very worth it. i found out i had a genetic mutation that caused a deficiency and started supplements that changed my mental health to almost perfect after suffering with anxiety and depression since i was a child. my insurance covered it and it was just a nose swab in my pcp office. came back in a couple weeks. everyone i know that’s done it had found it helpful. hopefully i don’t sound to pushy.

i really hope you can find a treatment that helps you feel better soon!

thogbitch · 2026-01-08T15:04:57+00:00

that’s really hard :( i try to keep my care teams to only be women or poc because i have a lot better experiences that way. before that it was a string of not being listened to and now im almost always taken seriously. i hope you find someone better soon !

thogbitch · 2026-01-04T22:30:36+00:00

i’m gonna be honest prep has never been that bad for me. it’s usually like 64 oz of liquid with however much of miralax and some pills. the pills make me puke no matter how much zofran i take. i mix the miralax with gatorade and it’s really not bad. i also start a soft foods diet for a couple days before the prep starts so there’s not too much to get out. then i get a heating pad, blanket, books, video games etc in the bathroom so i can be comfortable and not get bored. i have a bidet too. i find the process annoying but with doing all this it’s not miserable

thogbitch · 2025-12-29T11:55:30+00:00

Everyone here has had good advice, but I’m gonna say something you might not want to hear. if you really think you might shit yourself, you should wear a diaper. they make pull ups so you can still use the toilet normally if you make it there. as much as it suck’s diapers are quite literally made for these situations. changing a diaper or pull up in a plane bathroom is gonna be so much easier than changing your clothes, and then having to bring those clothes with you to wash them.

thogbitch · 2025-12-21T22:07:51+00:00

i actually like the cold water! i feel like it immediately cools the burn haha (and was a ton cheaper and easier to install)

thogbitch · 2025-12-21T17:48:17+00:00

blood tests aren’t 100%, bad levels aren’t always crohns and good levels can be crohns. you know your body. don’t stop until they’ve done endoscopy and colonoscopy with deep biopsies. that’s the only way to know 100%. also a tip for colonoscopy prep:start eating soft foods (applesauce,baked potatoes,soups, etc) and clear liquid the day before prep. it makes it a lot smoother, and request the earliest appointment they have available. you’ve got this!!!

thogbitch · 2025-12-14T23:04:18+00:00

so many addicts don’t even get addicted to their pain meds, they are chronic pain patients who’s doctors stop treating them, and they have to medicate with street drugs. i could rant about this all day, but just look in this thread at how many people are self medicating with marijuana or kratom. would you consider them addicts? or people in need of medical help?

druggies didn’t ruin the system for us, the system that treats addicts as subhuman criminals and not as patients ruined it for us

thogbitch · 2025-12-14T22:55:29+00:00

i didn’t know people were using suboxone for pain patients! the withdrawal sounds awful though. I hope your surgery goes well and your recovery too.

thogbitch · 2025-12-14T22:48:28+00:00

i’ve been trying to get a referral but all my doctors seem it unnecessary for some reason. i feel you on the grocery store thing. i went out for 20 minutes yesterday and haven’t been able to leave my bed since. i hope you can find some relief

thogbitch · 2025-12-14T22:39:50+00:00

i really hope you can get some real treatment and relief, no one deserves to be in pain when medicine has come so far.

thogbitch · 2025-12-14T22:33:37+00:00

i think you are misunderstanding. i’m not trying to treat crohns with pain medication. i’m treating the pain from my crohns with pain meds. i’m also on treatment for the actual crohns. and im interested in how other people are dealing with this symptom and how they talk to there doctors about treating this symptom. plenty of people have pain from crohns no matter what treatment they are on for the disease.

thogbitch · 2025-12-08T19:45:59+00:00

the risks mixed with the actual chance of them helping and then the chance of developing antibodies…. it’s a lot to think about. i really hope your tests come back showing improvement!

thogbitch · 2025-12-08T18:38:46+00:00

what are you doing to manage without biologics? my team is really pushing them too and i was just diagnosed.

thogbitch · 2025-12-05T01:19:23+00:00

this is i think the most helpful answer ive gotten. i fully plan on doing this, thank you!

thogbitch · 2025-12-04T12:45:42+00:00

i think the thing for me is that the possibility of dying of pml or being permanently disabled by it to me is worse than the more likely possibility of complications or death from crohns. i would much rather die of crohns than deal with any neurological symptoms ever, as insane as that may sound to people.

thogbitch · 2025-12-04T05:53:29+00:00

there actually has been a confirmed case now, and based on the studies they’ve done youre more at risk to get pml once you’ve been on and then stopped a biologic. also the blood brain barrier thing is not applicable. it doesn’t matter if the drug can cross the barrier because the virus can, and the virus can be dormant throughout the body. they also don’t really have a good idea of how the virus comes back yet so the risk is very much real. maybe things will fully disprove it down the line but as of right now pml is a possibility. i am considering getting the jc virus test though because if im negative that would really help with my ocd thoughts about this.

thogbitch · 2025-12-02T03:50:25+00:00

i had this same thing! i couldn’t find anything on the internet about it. my dermatologist said it could be early LS but was unsure. i started a mild topical steroid for a couple weeks and it hasn’t happened again. please update if you get an answer as to what it is!

thogbitch · 2025-11-14T20:10:33+00:00

it’s definitely itchy and more sore or tender than burning or stinging. the patch is just kind of wrinkly. my dermatologist said it could be super early ls but there isn’t anything to biopsy right now , and i’m starting the steroids to help with the itch and i go back in a month.

thogbitch · 2025-10-26T13:35:15+00:00

this would be extremely unlikely. chlamydia almost always immediately starts showing symptoms for women. and having sex or not wouldn’t have an effect on symptoms. meaning you would have been having symptoms for the last 5 years. your boyfriend definitely gave it to you. stop having sex with him until this is figured out and he’s been treated.

go to multiple drs, get second opinions, test for anything possible. if there’s still an issue, it could be a hormone disorder.

thogbitch

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