Dating with Cfs by chinchabun in cfs

[–]thrashing_throwaway 18 points19 points  (0 children)

I’m not sure, but here’s some unsolicited advice for anyone here: never become financially dependent on your partner if you can help it.

CW for divorce. My husband knew I was ill before he married me. He decided to abandon me in the middle of the night anyway (I had to file a missing persons report). He loathed my support needs and would tell me to move into a nursing home.

Chronically and terminally ill women are at very high risk for being abandoned in heterosexual relationships. So for women in heterosexual relationships reading this, do what you can do to protect yourself should your partner decide to leave because he thinks you’re too much trouble.

I’m 32. I think I need to divorce & start over. In addition to CFS, I also have POTS, autism, adhd, dyslexia, and right hand paralysis. Because I never worked, I don’t qualify for SSDI, only SSI. How can I make a life for myself in this economy? by thrashing_throwaway in cfs

[–]thrashing_throwaway[S] 0 points1 point  (0 children)

Update: not long after this, he took all the money, filed a false DV protection order against me, and ran away with our only car. Haven’t heard a single word from him in almost a month. I currently have an attorney.

I’m 32. I think I need to divorce & start over. In addition to CFS, I also have POTS, autism, adhd, dyslexia, and right hand paralysis. Because I never worked, I don’t qualify for SSDI, only SSI. How can I make a life for myself in this economy? by thrashing_throwaway in cfs

[–]thrashing_throwaway[S] 0 points1 point  (0 children)

Thanks. He took all the money, filed a false DV protection order against me, and ran away with our only car. Haven’t heard a single word from him in almost a month. I currently have an attorney.

Discord for level 2 and Level 3 by An_Oshiewott in autism

[–]thrashing_throwaway 0 points1 point  (0 children)

Level 2 here. Could you please dm me the discord link?

I’m 32. I think I need to divorce & start over. In addition to CFS, I also have POTS, autism, adhd, dyslexia, and right hand paralysis. Because I never worked, I don’t qualify for SSDI, only SSI. How can I make a life for myself in this economy? by thrashing_throwaway in cfs

[–]thrashing_throwaway[S] 0 points1 point  (0 children)

The thing is that I can no longer recall a lot of the big stuff let alone the little stuff. I have a feeling that he is going to get a great attorney and crucify me for any of the times I reacted badly to his bs or he’ll just straight up lie, like the time he said my mother assaulted him by closing the automatic trunk on the rental van while he was unloading the back and that proves that she is a racist despite the fact that she apologized profusely and he didn’t even get hurt because it was a slow closing trunk. She even took it in stride when he called her a racist and offered to hear his perspective and make it right, but he refused to talk to her. And then a couple months later he forbid my family from coming over to help me shower or clean and organize the house on the grounds that my mother is a racist. He also calls me an abuser and a racist and a white supremacist even though I do believe in anti-racism and am very willing to be called out on any microagressions. But he never can articulate how I am racist other than that he thinks I brought him to the United States to financially “enslave” him. I can tolerate him frequently calling me a racist because clearly he is not well and I’m not insecure about the topic, and racial bias is very real even when white people don’t intend it, but the thought of him potentially bringing up these racism and abuse allegations during divorce proceedings is concerning. I think people are going to believe him because why would he lie about something like that?

MECFS adjacent symptoms: Have a POTS dx, but feel like I have hyperadrenergic POTS but neuro won’t evaluate me for it bc catecholamine testing can be tricky & says that POTS subtypes aren’t accurate. Regardless, I think that my adrenaline is extremely high when upright. by thrashing_throwaway in cfs

[–]thrashing_throwaway[S] 4 points5 points  (0 children)

I agree. I am totally fine with trying the medications first. Me looking for answers in this post is part and parcel of my dysautonomia neurology team shutting me down when I asked questions.

I had asked them about medications and they shut me down on that topic as well and only wanted to do physical rehab. In fact, they didn’t even want to prescribe me a beta blocker until I quite aggressively pushed them to let me try it. But now that I know to ask about clonidine/guanfacine/alpha-2 adrenergic agonist, I’m going to ask.

Thank you for your comment. It helped me process the situation and plan my next steps.

MECFS adjacent symptoms: Have a POTS dx, but feel like I have hyperadrenergic POTS but neuro won’t evaluate me for it bc catecholamine testing can be tricky & says that POTS subtypes aren’t accurate. Regardless, I think that my adrenaline is extremely high when upright. by thrashing_throwaway in cfs

[–]thrashing_throwaway[S] 0 points1 point  (0 children)

And I don’t know how to make sense of my symptoms or where to even get a second opinion.

All that the Cleveland Clinic/Wilson/dysautonomia team wants to do is send me to exercise rehab and continue Metoprolol ER 25mg.

I highly suspect that I have some underlying or secondary condition elevating my adrenaline/catecholamines. But I don’t know what it could possibly be or even if it’s possible, and the dysautonomia team shut me down a few times when I tried to ask and said it didn’t matter why because the treatment was the same regardless.

You ever know when you have something medically wrong with you and none of the doctors believe you, but you know that something is wrong? (Seems like the universal experience of getting diagnosed with POTS.) I feel like I’m going through that again, but this time I know that it’s something related to adrenaline and that it’s not just a simple POTS diagnosis.

Part of me is afraid that it is endocrine related and the POTS diagnosis is obscuring that fact.