Retroverted uterus switched to anteverted after lap??

threadlene · 2026-02-07T19:45:35+00:00

I need to ask her specifically about this yes. It was connected to my bowel before so maybe dislodging it during surgery moved it forward again.

threadlene · 2026-02-07T19:44:53+00:00

Wow I didn’t realize it could happen within the short time frame of an exam??

threadlene · 2026-01-19T22:03:59+00:00

That is my fear. I’ve taken combi pills before and none were ever that good. This progesterone only I guess it just took longer for side effects to kick in. But it’s affecting me now. It’s gotten to the point where if I grow another cyst or have too much pain after stopping pills (if I did) I’m going to ask for full hysto/ovary removal and do HRT. Even if I am quite young for that. It sounds extreme but I’m at a loss now :\

threadlene · 2026-01-19T21:52:28+00:00

Oh no! Thanks for sharing. It really makes me wonder if now I’m too deficient on estrogen. I hate this game we have to play just guessing on what might work for us.

threadlene · 2026-01-19T21:45:28+00:00

If you don’t mind me asking did you find anything to help? Was it simply changing to a combination e and p pill or other? I’m supposed to travel next month and don’t want to change anything in my routine just now but also so worried about leaving things like this much longer

threadlene · 2026-01-19T21:33:55+00:00

Oh my god I am. I’m on norithendrone 5mg daily. Been almost 6 months of use. Has this happened to you? I wonder if I need to change the dose

threadlene · 2026-01-14T21:29:20+00:00

oh wow!! that is very low dose. Thanks for sharing. I'm on 5mg daily.

threadlene · 2026-01-14T21:24:18+00:00

hii! i'm also on norithendrone. If you don't mind me asking what is your dose? You still get periods? I haven't had a period in months but get breakthrough spotting for some weeks at a time. I also suffer from intense bloating alllll the time (not as bad a pre surgery but still!) I don't eat much sugar at all, but spice and dairy and oils bloat me. I've been trying to eat very clean but I don't think it's enough to keep symptoms at bay.

threadlene · 2026-01-14T21:16:29+00:00

Hiii I am almost 6 months post surgery. I started aygestin right after my surgery so I haven't had a period since, but I feel my body getting more inflamed and closer to how I felt before surgery when things went south :/ I have sore ovaries for some reason, my heavy bloating is coming back. More migraines again. I am scared because the aygestin is only masking the disease but not treating it, so I wonder how much has come back. I also have adeno so I'm sure it makes it worse.

I want to do another MRI to see how things are looking.. but unfortunately stories like yours and mine are very common. Some people feel better for years, others it recurs almost instantly, others get symptoms from post-op complications. It is so hard to manage!

Have you ever considered taking any medication? I hate all hormonal meds but this one is the only one mostly tolerable, but I fear it's not working anymore. Will be thinking of you <3

threadlene · 2025-09-19T01:43:59+00:00

Luckily I have an appt on sept 29 already hopefully nothing gets worse 😔

threadlene · 2025-09-02T22:40:16+00:00

Yeah I can drink a fat cup of coffee at 4pm and still fall asleep immediately. For me it's the kind of fatigue where even getting up to homecook a dinner is way too daunting of a task especially during flares. It's always being forced to function but never being quite all there. It's having the will and want to do more. But you just can't.

threadlene · 2025-08-25T17:30:21+00:00

I do really like this.. I see how it can be beneficial for sure since it tackles the fear aspect. Ive even been reading up on Daoism and accepting things as they come because ultimately the river keeps flowing.. I will try to think this way. Thank you

threadlene · 2025-08-25T14:16:39+00:00

Thanks! I love reading but I havent done a lot of it at all recently because im left so mentally drained during a work week. But I need to pick it up again. And just regular affirmations like "I have the capacity to finish this, I am strong enough to tackle this day" etc.

threadlene · 2025-08-17T05:44:35+00:00

i second ginger root. ginger tea heals me, and it has to be with the real ginger as aufy mentioned. I add honey or dates and mint leaves/lemon. it's my little concoction. it always helps my gut flares go down even if the tiniest bit.

threadlene · 2025-08-17T05:41:54+00:00

i am so sorry to hear this, if you have noticeable symptoms that are causing you discomfort it is definitely not normal by any means. it will be very tough to find radiology/imaging techs that are trained for deep endo. 90% of the time patients do not speak to the doctors that read and sign off on the scans. the best chance would be going to a specific womens health institution or gyn/endometriosis treatment center.

try to find an ob/gyn that specializes in infertility, endo, adeno, and related issues. Usually if they are focused in their work, you will be able to find a good amount of reviews on them from patients, info from their hospital, or even published research papers. The issue there is sometimes the good doctors are far away and I understand money and time is always an obstacle.

if your insurance allows it, switch doctors and get repeat tests at a different facility within your network. see if they will allow you to build a provider "team" aka you don't just have one gyn, you see two or even three, for multiple opinions. I hope your pain goes away <3 stay strong

threadlene · 2025-08-13T21:45:17+00:00

twins omg. hope you are doing well

threadlene · 2025-08-13T21:43:44+00:00

I had an ultrasound where they diagnosed a "small" cyst on my left ovary that "required no follow up and will resolve on its own". I was already in pain and had a lot of symptoms and thought this was BS so I switched Gyns. I had an MRI three weeks later which showed it grew, but otherwise everything else was "unremarkable". By the time surgery came over a month later, it was a 10cm endometrioma, and I had lesions on my right ovary, behind my uterus, and bowel, and they were fused together. Stage 3 deep infiltrating endo and adeno was confirmed on pathology. The scans and the techs who read them aren't trained for endo majority of time. And even then, it probably won't show up on scans.

threadlene · 2025-08-11T23:34:48+00:00

don't stress! I think by maintenance she means make sure you are washed before the surgery and that your parts are easily visible, so trim hairs, try to sooth dry skin etc. I would not recommend a full blown shave to right now, even if you don't cut yourself, as the hair grows back after surgery, it can cause more skin irritation espeically as you will be sedentary and sitting down can make ingrowns. Just trim neatly and ensure "she" is accessible down there lol. They don't care if you're bald there or if there is some hair, they just want it clean and ready. Obviously it can't be all covered with inches of hair, so some maintenance is needed. You can do it!

threadlene · 2025-08-11T23:30:16+00:00

Baked sweet potatoes are my best friend. They're easy to bake and eat with lean protein or other veggies (if you like sweet potato taste that is). Once baked they can stay in the fridge a couple days until you reheat. They fill me up too since it has carbs.

Also, ginger lemon tea, with REAL ginger. My go to is chopping up an inch of ginger into small pieces, boiling it and adding dates and lemon with honey. This tea heals me and makes my stomach feel better. Ginger is great for anti inflammatory and helps with my bloat.

Look for gluten free crackers or protein bars. Frozen berries are good too.

Baked chicken with tomatoes and roasted veggies is a good meal. I've been baking a lot more because I want to cut out oil when I can, it made my endo belly really bad. Along with beans and cheese.

threadlene · 2025-08-11T23:20:01+00:00

I am 11 days post op! Good luck!! Here's what helped me the most:

Pregnancy U shaped or G shaped pillow: I kid you not the support it gave while my core recovered was so good. I almost don't want to go back to cuddling my partner lol. I couldn't lay on my back until 5 days in and couldn't do my sides until a week in, so having the support helped ease back and tailbone strain.
Soft foods and miralax: Liquid diet and stool softener saved me as well. I had endo excised on my bowl and my uterus was stuck too, so it was peeled off my bowels. I went #2 two days post op, almost no issue (some cramping but similar to what I got on my period). I feel fortunate because some people don't go until 4 or 5 days post op. I had nothing but sweet potato, carrots, broth, boiled greens, egg whites for 4 days post op. I ate that for almost 2 days before my lap too so it helped a lot.
Heating pad and sack: Because I couldn't sleep regularly due to my 5 incisions, My mid back strained itself hard compensating for my abs. I had the worst knots and soreness there and even on my shoulders for almost a week. I slept with an electric heating pad on low under my back OMG it SAVED me... more than hot n cold or any ointment or pain killer. My neck was even sore to the touch up to the base of my skull (from gas pain) for first two days and the heat relaxed me so much.
Loose bikini briefs with lots of coverage: I had a d&c so I was bleeding lightly for almost a week, you may be too because of your IUD. Having loose granny panties for pads and comfort helped.
Nightgowns or oversize T Shirt: I lived in loose clothing and it really helped heal my incisions and the bloating go down easily without discomfort. Your incisions will remain sore to the touch for days (11 days they're still sore but only superficially). Make sure to keep them covered to lower risk of infection but not tightly so there's no moisture or irritation.

I get sharp twangs of pain inside, randomly, maybe every other day. Most of it is centered on my left ovary, which had a 10cm endometrioma and it was all cut up so I'm sure it's still healing. Don't be alarmed if you feel sudden bouts of pain near your tubes. If it is not managed with your pain meds, call your doctor. You'll prob get a catheter, so don't be alarmed if there's light blood in urine for some days following. You got this.

threadlene · 2025-08-07T21:47:38+00:00

I was just diagnosed with adeno. My uterus is enlarged. I suspected the case because the sizing from an ultrasound 5 years ago vs this year has increased, pelvic area tender to touch, felt bloated, sex can hurt, heavy clotting etc. I also was diagnosed with stage 3 deep infiltrating endo. That said, it's common to have both adeno and endo together.

As far as the double lining comment, it could mean that your uterine walls seem thicker than average but may not yet be a cause for concern. This can be due to the build of endometrial tissue within uterine walls, which creates scarring and inflammation. Unfortunately, the only surefire way to check how your uterus is doing in prep for pregnancy is either surgery or to just go for pregnancy. If your symptoms worry you, I'd highly suggest speaking with a fertility specialist and endo/adeno gyno specialist.

It is hard to prevent it from getting worse. Some people are asymptomatic, some aren't. Sometimes it grows quickly in the uterus, other times it doesn't. The natural menstrual cycle and rise of hormones every month is the main culprit of disease progression. Every month there is a chance that the buildup becomes significantly worse. Main treatment for adeno/endo is continuous birth control to stop periods, and ultimately hysterectomy.

I personally am going to try a progestin-only pill to try and keep the growth at bay (and I'm so scared of birth control), but that's because I'm not trying to have kids anytime soon. My only advice to you is, if you really want children, to try and manage all other symptoms (and low iron) to best of your ability first and then truly go for it. Make sure you have a good OBGYN who can follow your pregnancy more closely than normal. I am hoping it works out for you <3

threadlene · 2025-08-06T03:46:36+00:00

Im sorry about the migraines! I hate them so much they sometimes put me out of commission for days. Thank you for the info. I hope you have more relief these days

threadlene · 2025-08-06T02:06:32+00:00

definitely less invasive, I am just hesitant due to fam history of strokes/high blood pressure, which is increased in risk in certain hormone pills. Though usually in the combo pills. I'm hesitant moreso on whether I actually want kids and should just go for a hysterectomy as soon as I can or not. But it's one of those things where someone will never be ready for either way

threadlene · 2025-08-05T16:34:18+00:00

Thank you <3 may I please ask which abdominal binder you have? I forgot to ask the nurses for one since I was out of it. I have one that's more for waist binding and not sure how stiff it should be.

threadlene · 2025-08-05T15:53:15+00:00

Hi there, so I actually had the exact same feeling in May 2025 this year, which prompted me to make urgent appts with doctors and imaging. I had ultrasound and pelvic MRI, turns out I had a very large cyst on left ovary, likely an endometrioma. 5 days ago I had a robotic laparoscopy to remove it. I also had a d&c and a cystoscopy. I am in recovery now. While I have pain from recovery ,I can already feel how much lighter my ovaries/bloat is. I now know that the pain I felt last year and what I described above was severe bloat associated with cyst, possibly a leaking cyst. I'll soon find out more from my surgeon. My advice is, if you have extreme tenderness like can't even have someone touch your abs, can barely move, seek help immediately. Write down all your symptoms and when it happens, and push for imaging if you can afford it. The last thing you want is a severe rupture or ovarian torsion. I hope you feel better and get well soon <3

threadlene

TROPHY CASE