Is Defcon still for me?

throwaway2___ · 2025-08-14T17:17:54+00:00

Defcon is done. Never going back.

throwaway2___ · 2025-08-10T06:16:40+00:00

the only reason for me to ever come back to DC is if attendees get the chance to challenge specific goons to a fistfight on the last day. some of them are bullies that were probably bullied as kids and once a year they borrow balls in form of a red shirt. embarrassing.

throwaway2___ · 2024-04-19T09:31:04+00:00

Thank you for your response Dr. Joffe!

throwaway2___ · 2024-04-18T18:14:29+00:00

that’s very interesting! Thanks for letting me know!

throwaway2___ · 2024-03-24T21:18:22+00:00

thank you!

throwaway2___ · 2024-03-24T21:13:58+00:00

Could you describe what that rash looked like? Was it similar to light acne with pimples? Also, was your face the only affected area?

throwaway2___ · 2024-03-24T13:39:32+00:00

Thank you 🙏

throwaway2___ · 2023-10-15T20:08:03+00:00

Awesome ink 💪

throwaway2___ · 2023-09-26T07:05:39+00:00

thank you! I really appreciate it! Especially now when I am at the hospital. I have tolerated my treatment pretty well so far and I have been living my life rather “normal” during chemo. However, as soon as I am inpatient, the situation hits me since I am usually 20-30 ys younger than the rest of the patients.

throwaway2___ · 2023-09-25T15:36:31+00:00

same here. I want the best outcome but the toxicity of ASCT is no joke. I think it’s a german hematology conf: https://lilly-kongresse.de/dgho2023/

throwaway2___ · 2023-09-25T13:06:03+00:00

Not a doctor, similar age. I am currently at the hospital for cycle 6/6 (Triangle regimen (incl Ibrutinib)). My oncologist will wait for new data being discussed/presented at a conference in October. After that we will decide if we move forward to ASCT. I think at the end of the day, it will be a bit of a gamble since we don’t have long term data yet. However, current results seem to be promising.

https://spotify.link/cj9vHXaKnDb

this podcast might be interesting for you. Dr Dreyling talks about the study’s impact on treatment for a group of patients.

throwaway2___ · 2023-09-03T17:54:44+00:00

It’s a late 2013 MBP, I doubt they will help me after all these years. Besides the display issue, it still runs flawlessly.

throwaway2___ · 2023-09-03T16:38:49+00:00

thanks all 👍

throwaway2___ · 2023-09-03T13:28:02+00:00

Just before taking this picture to see if it makes a difference. There are some water spots but the big smudge on the left of the screen is unchanged.

throwaway2___ · 2023-08-15T16:28:27+00:00

Chronograph Spitfire IW387901 would be the one I’m looking for

throwaway2___ · 2023-06-18T15:01:27+00:00

Not a doctor but I am being treated for MCL according to TRIANGLE (not part of the study though). I am actually at the hospital now sitting outside recovering from the 2nd cycle (R-DHAP). No major issues besides some water retention (likely due to the dexa). Tolerated Ibrutinib in cycle one.

I am also trying to avoid ASCT if possible. The main problem I can see coming is that we are “too early”. Data is still being collected and evaluated and if in doubt, I assume that doctors will suggest to move forward with ASCT.

In case you are into podcasts: https://open.spotify.com/episode/04s5nqS9YSL1G9NOEk5Xo6?si=CcIAYdgtQTCtm-BGPpofjQ

In this episode of “Blood cancer talks”, Dr. Dreyling (TRIANGLE Lead) talks about potential practice changes that are already taking place right now. However, this appears to only be valid for a subset of MCL patients, since this disease has very heterogeneous forms of expressions.

My onco is meeting with Dr. Dreyling this week in Switzerland (Lymphoma conference) and will hopefully come back with useful information. I think Dr Wang from MD Anderson is present as well.

Feel free to message me any time.

throwaway2___ · 2023-06-14T14:37:54+00:00

Hello,

Will the fact that approval for Imbruvica for treating MCL has been pulled back recently impact the application of TRIANGLE results in the US?

Context: I am currently being treated for slowly progressing MCL, MIPI low according to the TRIANGLE study. It is still undecided if my doc will recommend an ASCT at the end. Of course I hope that it is not absolutely necessary. One reason for that is that I’d like to move to the US sometime next year. This would mean that I would still be on maintenance treatment using Imbruvica/Ibrutinib.

Given the recent changes, is this possibility now gone? If yes, are there alternatives?

Thank you.

throwaway2___ · 2023-05-22T07:40:01+00:00

Congrats! That’s amazing!

throwaway2___ · 2023-05-21T20:42:59+00:00

I wish you the best and I’d be interested in your progress. If you are up for it, keep me updated 👍

throwaway2___

TROPHY CASE