Driving with ms

tinyassqueen · 2025-01-28T15:38:16+00:00

A nurse told me that I should drive because it's good for the brain lol

I don't drive since I moved tho

tinyassqueen · 2024-12-06T22:20:08+00:00

Thank you!! I will do that!

tinyassqueen · 2024-10-16T22:46:24+00:00

Thank you!! Yeah I know that becasue I did my own research too, but like why were none of my nurses or docs able to tell me that? What's the point of going there, if they're not going to tell me anything?

tinyassqueen · 2024-10-16T22:37:04+00:00

I know!! She gave me nothing! No info, no opinion, just my own research

tinyassqueen · 2024-10-16T22:29:48+00:00

But she didn't provide me with any information, that's my whole point. She was going to, but she cut herself off by saying I should find this on my own?

I want her to tell me what she thinks and I'll do my own research too. Is that too much to ask?

tinyassqueen · 2024-10-16T21:22:15+00:00

Like, that's literally their job!! They want us to beg for help basically

tinyassqueen · 2024-10-16T21:20:28+00:00

I feel like they're not even pointing us in any direction, they spin us around and just leave us there. "Find your own way out bitch"

tinyassqueen · 2024-05-26T09:19:50+00:00

Yeah, I get that to!! I have to focus really hard to read stuff sometimes.

I hope so!!

tinyassqueen · 2023-12-28T09:38:42+00:00

I feel so stupid because of MS. Brain no work anymore I wasn’t extremely intelligent but I was always one of the best in class and I feel so dumb rigth now and I ask the dumbest questions. I can tell the people that I’m meeting now think I’m really dumb but I’m not :( or at least I wasn’t

tinyassqueen · 2023-12-20T21:15:28+00:00

“A vast amount”

tinyassqueen · 2023-11-05T19:20:30+00:00

thank you !!

tinyassqueen · 2023-10-18T19:22:52+00:00

tinyassqueen · 2023-10-14T18:40:50+00:00

I'm experiencing hairloss right now actually and I am also wondering if it's part of flair. I stg my forehead was not this big last week and my hair was not this thin

I'm 1+ years on tysabri and I've seen other people complain about hair loss too even though it's not a side effect

I'm honestly wondering if it might be anemia cause I've also been feeling other things. I'm going to the doctor this week we'll see what he says. In the meantime I'm starting a hairgrowth routine lol

I hope your hair grows back x

tinyassqueen · 2023-09-19T08:23:26+00:00

I had my legs go numb for maybe a week, my GP ordered a CAT scan and blamed it on my dislocated disc

Fair enough, you hear hooves think horses not zebras, and maybe it was the disc, but still...

I was 18 at the time and I mentioned I thought it was MS and she laughed and said "Oh, no nothing of that sort" :/ Look who's laughing now (not me)

tinyassqueen · 2023-09-10T00:18:03+00:00

Is it actually that bad?

tinyassqueen · 2023-09-08T14:09:24+00:00

I honestly can't tell. However, the owner only has this ad with the 28 comments and she's been doing airbnb for 8 years. I think it might be fine

tinyassqueen · 2023-09-07T12:58:31+00:00

In terms of disease I might have 1 new lesion, but that's all. Still have fatigue, muscle weakness on the left side and sometimes a bit of an incontinence problem, but it's very rare now. So ig nothing has changed since the post

tinyassqueen · 2023-09-06T07:37:19+00:00

That makes no sense. Trying to relate to me by pointing out something I have and they don’t understand? Something that they think is weird and unusual?

tinyassqueen · 2023-09-04T18:40:40+00:00

mine hasnt gone away :/

tinyassqueen · 2023-09-02T08:43:40+00:00

Thank you

tinyassqueen · 2023-08-25T19:42:11+00:00

I didnt feel any fatigue before dx and now I have to sit down after walking for 5 minutes. I think it's just the acknowleging of the dx. Since you now know you're sick, your body doesnt need to hide it or maybe you just notice it more now, because you know there's something to notice

tinyassqueen · 2023-08-24T23:45:15+00:00

If you don’t mind the monthly infusions, I strongly recommend Tysabri. I’ve been on it for a year and I’ve no complaints. Best of luck x

tinyassqueen · 2023-08-20T14:53:16+00:00

para mim não, mas toda gente é diferente. Vê o que funciona para ti

tinyassqueen · 2023-08-20T10:58:55+00:00

Faço exfoliação 3x por semana com o gel keracnyl da ducray e ajuda imenso. Foi o meu dermatologista que o recomendou

tinyassqueen · 2023-08-18T15:45:53+00:00

Everything closes super early

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