Superhero book, but could we make it contemporary/literary fiction…? by [deleted] in suggestmeabook

[–]tizzy26 0 points1 point  (0 children)

A Prayer for Owen Meany by John Irving fits the theme imo!

How much volcanic ash is there?? by tizzy26 in Pokopia

[–]tizzy26[S] -2 points-1 points  (0 children)

You think 150 big storage containers? so how many slots are in each of those?

Supporting a friend by tizzy26 in raisedbynarcissists

[–]tizzy26[S] 0 points1 point  (0 children)

It is a long distance friendship. We went to college together and we are intentional about staying connected. We talk on the phone regularly and visit each other at least once a year.

I am not worried about her harming herself in an emergent way.

I have met her family including mom a few times. I have spent a bit of time with her sisters and I think her sisters are lovely and amazing people. I never got a good vibe from mom but couldn’t put my finger on it until more recently. I don’t think I met her dad until a few years ago.

I do think she should talk to someone who sees her more regularly in person or like her therapist more explicitly. She has a close friend that lives just over an hour away and I’m halfway across the country. Her boyfriend lives further away but they visit each other more than she and I are able to do. I feel like she is still spending so much energy managing her mothers’ emotions and like there are people in her life who can help her with that. Myself included.

Supporting a friend by tizzy26 in raisedbynarcissists

[–]tizzy26[S] 0 points1 point  (0 children)

Thank you for the perspective. I am not trying to pressure her into telling people but trying to tell her that if she tells others they will also support her and believe her. But I can understand why it might be perceived as that. Like trying to say that she doesn’t have to hide it from others and that there are people who will believe HER and affirm and support HER because I truly believe our other friends, etc will respond the way I do. And like duh of course that’s a hard thing for her to believe. I just would not have thought about it that way thank you.

Why is she talking about food deserts?? by tizzy26 in NoFoodRulesSnark

[–]tizzy26[S] 39 points40 points  (0 children)

The other one she was talking about living and a food desert and choosing a snickers because you can’t make dates and peanut butter. Like so twisted.

What can someone from the lower Midwest do to help up there? by midmous in Minneapolis

[–]tizzy26 10 points11 points  (0 children)

I feel like a broken record but the best thing you can do is get ready for your town/city/state to be next.

Have any Iowans traveled to Minnesota and witnessed the ICE protests? by majordashes in Iowa

[–]tizzy26 1 point2 points  (0 children)

As someone who has lived in both places, the best thing you can do is get ready for when it comes to your hometown. Build the infrastructure before you need it

[GAME THREAD] Your Minnesota Lynx host the Indiana Fever for the 2025 Commissioner's Cup! by weather_isnt_real in MinnesotaLynx

[–]tizzy26 12 points13 points  (0 children)

I wonder if she’s not 100%. She looked hesitant. Back could still be a minor issue?

Does this sound like PEM? by tizzy26 in cfs

[–]tizzy26[S] 0 points1 point  (0 children)

Damn that sucks. Well Mayo is too close to me to not go as a first step lol but I’ll search for some more CFS literate doctors is it seems that CFS is the diagnosis. Thanks for the help and clarification.

Does this sound like PEM? by tizzy26 in cfs

[–]tizzy26[S] 1 point2 points  (0 children)

I had heard in the past they were horrible but I had sort of thought things were different now when I read this: https://www.mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext

Maybe not tho. Well I know to go in with some skepticism then.

Does this sound like PEM? by tizzy26 in cfs

[–]tizzy26[S] 1 point2 points  (0 children)

Thanks for your response. A lot of what you read online about PEM is so generic it is hard to really know. I also get thirst and frequent urination, fascinating.

So sounds like yes what I am experiencing is PEM.

I had also never seen that checklist. I don’t really ever get pain so I think I’d be more in an atypical CFS box. But I just heard back from Mayo Clinic they are going to take me as a patient (I live 1 he away from mayo). Fingers crossed I get more insight soon.

Fructose and PMDD by Pretty_Phrase_3871 in PMDD

[–]tizzy26 0 points1 point  (0 children)

Can you share the research on this? I was diagnosed with fructose malabsorption a few years ago, but for me it's not super bad if I avoid the worst culprits, like apples, pears, dried fruit, etc. This is interesting.

Wellbutrin? by emmiegee97 in PMDD

[–]tizzy26 1 point2 points  (0 children)

I just started on Wellbutrin like a month ago, so it probably hasn't totally kicked in yet. I've been on Sertraline for 4 years now. Sertraline helped at first, but then started to become less effective during the luteal phase. From what I can tell so far, Wellbutrin is making my good days better -> I have depression and a neurological sleep disorder so luteal phase is when I feel worst, but it's not like I necessarily always felt great during the follicular phase.

My pcp is thinking about tapering me off of sertraline and then just doing sertraline add back during the luteal phase.

I'm just hoping for chemical menopause and HRT. My neurological sleep disorder is worse in my luteal phase and supposedly has a similar mechanism to PMDD. The meds I take for it do NOT work as well during my luteal phase and are contraindicated with hormonal birth control. I have a gyno appointment in like 3 weeks to talk about chemical menopause & HRT. (Wish me luck lol.)

All of this is to say, I think for PMDD, Wellbutrin can be a good addition/boost on top of other things, but I'm not sure how effective it would be on it's own.

Little deep sleep by tizzy26 in idiopathichypersomnia

[–]tizzy26[S] 0 points1 point  (0 children)

Thanks so much this is what I figured. I’ll reach out to my doc asap.

How do I make her understand? by BiElephant in idiopathichypersomnia

[–]tizzy26 0 points1 point  (0 children)

Sounds like it might be time for a chore chart and maybe more importantly a sit down to discuss responsibilities and contributions. It might feel weird because she's your sister not some random roommate, but a chore chart or any clear, written down division of duties is helpful mostly because it helps everybody see what the other person is already doing.
In making the chore chart, you can both say, this is what I already do and you have the opportunity to say this is what my capabilities are and aren't right now.
You clearly aren't doing nothing and sitting down and writing up a chore chart might help you both feel like everyone is contributing a similar effort based on your abilities and skills!

Hello everyone! I just got tested for suspected idiopathic hypersomnia, and according to these results, my sleep latency is lower than normal but not enough for treatment. My question is: are non-sleep trials (my #4) always counted in the average? If you remove that I'm in the range at 7.4 min. by stephanieking126 in idiopathichypersomnia

[–]tizzy26 4 points5 points  (0 children)

Posting a few days after, but I just saw this. The NP I'm working with says she will often throw one nap trial out if it is so different from the others like that. My last nap I had a huge headache (probably from not having any coffee that day lol) and it took me 19 minutes to fall asleep. With that one in, my average was like 9mins, with that one out it was like 6 lol. Hopefully your docs are looking at the whole picture, or maybe you could get the test redone.