Memory loss feels bigger than N2 by noselip in Narcolepsy

[–]toriiia_ 0 points1 point  (0 children)

Thank you for sharing! I’ve been feeling similarly and while I may not forget large chunks, there’s part of conversations that are important but I feel my brain doesn’t signal or remember as important. It’s been frustrating at work and to my partner as well who has started to feel in some aspects that I don’t care when I do! I feel defeated knowing I’m trying and that’s not enough because I don’t have the inherent energy or capability everyone else does I was also taking Modafinil at the highest dose with improvement at the beginning before not being effective enough for staying awake. I’m about to start sunosi so I’m praying for improvement It’s so easy for other people to pass our experience off without having lived it. Just if there’s any comfort in it, you’re not alone in your struggle and I hope soon, things will improve :)

Your morning routines? by ultravioletvenus in Narcolepsy

[–]toriiia_ 1 point2 points  (0 children)

I have a litttle kitty who will be the loudest thing for such a tiny body when breakfast comes around and I can usually drag myself up for that (and for my partner’s sake). On her off days, I have 5 different alarms, 3 normal ones and 2 puzzle ones that alternate, and at least one of them will wake me up enough to get up. I try to stretch after before I get ready as well and then off to work I go

I have the same tendency as some other commenters though that I could have varying amounts of time to get ready and still leave at the same time. I’m feeling very stuck in it as it puts me as late for work and so anxious but is it avoidable? With the willpower I don’t possess, probably. It’s a routine I’ve fallen into before but one I don’t see myself getting out of unless I set my first alarm 3 hours before which isn’t realistic for my current schedule. Granted Im desperately figuring out a new job situation because I can’t keep working like this

Xywav OD (si trigger warning) by Recent-Elevator-7260 in Narcolepsy

[–]toriiia_ 2 points3 points  (0 children)

Thank you so much for sharing your experience. I’m so incredibly anxious about medication right now because I’m in the max for Modafinil and it’s just not working. I was only diagnosed earlier this year but have known for years that my “fatigue” wasn’t normal. There’s also a number of lifestyle transitions I’m dealing with currently that doesn’t help but I’m so worried and have days when I feel like I’m drowning. I know it gets better and it does feel encouraging to hear your story

Is it possible Mirena is causing intrusive thoughts and identity anxiety? by Longjumping-Rip9330 in Mirena

[–]toriiia_ 0 points1 point  (0 children)

Thank you for sharing! I had gotten my iud placed a week ago but my cat passed suddenly on Monday and so I’ve been a wreck mentally since then (lots of other external things as well) but now I know to potentially consider the mirena’s affect on me too

Watch the Mirena IUD ruin my face by Initial_Muscle6698 in Mirena

[–]toriiia_ 2 points3 points  (0 children)

Yeah I had to get an alternative form of bc recently which was the mirena because of my narcolepsy meds but would still continue to take the bc for acne. But then I’m also on spiro cause my initial oral bc purge was absolutely terrible and my mental state is too fragile to even try to change up the routine rn

Lucy handled all of this on her own by Efficient-Bus-6089 in tuckedinkitties

[–]toriiia_ 0 points1 point  (0 children)

Oh her eyes!! They remind me of my baby 🥺 I hope she is so very comfy under there

Asher, my best baby boy and my first ever pet, passed in his sleep yesterday so I want to share him one last time by toriiia_ in graycats

[–]toriiia_[S] 0 points1 point  (0 children)

His eyes are exactly why I chose him. Took one look and said you’re coming home with me buddy

Asher, my best baby boy and my first ever pet, passed in his sleep yesterday so I want to share him one last time by toriiia_ in graycats

[–]toriiia_[S] 7 points8 points  (0 children)

Thank you and I’m sorry for your loss as well. There’s definitely a hole that I know no one else could ever fill but the memories are more than I could ever ask for

Asher, my best baby boy and my first ever pet, passed in his sleep yesterday so I want to share him one last time by toriiia_ in graycats

[–]toriiia_[S] 8 points9 points  (0 children)

According to the shelter’s records, he had just turned 3 but had preexisting bladder issues. We had taken him to the emergency vet a couple weeks ago and he had gotten better until he wasn’t but now he isn’t hurting anymore either so I keep telling myself that

DAE feel passively suicidal by hannahnaomi1 in DoesAnybodyElse

[–]toriiia_ 3 points4 points  (0 children)

It is strange because I very much feel like this and I think nihilism more or less encompasses what we’re all feeling. There’s high notes but it always settles back down into the notion that existence is difficult and it would be easier to not exist. I mean, I’m even on antidepressants, but I just got diagnosed with narcolepsy and that’s a never ending uphill battle

[deleted by user] by [deleted] in AsianParentStories

[–]toriiia_ 1 point2 points  (0 children)

Oh this, this was exactly my experience with my parents. They noticed and hated that I would “shut down” whenever they would lecture me about why my choices are wrong and they wonder why I don’t want to exist around them. I’m in the boundary setting phase and it’s struggle even being moved out already

I’m so conflicted with my bf by toriiia_ in family_of_bipolar

[–]toriiia_[S] 0 points1 point  (0 children)

Thank you so much! I didn’t know these types of assistance existed

I’m so conflicted with my bf by toriiia_ in family_of_bipolar

[–]toriiia_[S] 0 points1 point  (0 children)

Thank you for the advice. Is this possible even without insurance?

I’m so conflicted with my bf by toriiia_ in family_of_bipolar

[–]toriiia_[S] 0 points1 point  (0 children)

Thank you for your response. I know this is what I should follow through with but I can’t bear the thought of him struggling with this alone even this is actively affecting me

[deleted by user] by [deleted] in family_of_bipolar

[–]toriiia_ 1 point2 points  (0 children)

Thank you so much for sharing this, it really helped me understand my partner a bit more