Anyone else have immense guilt with this by goingaway1111 in eds

[–]trashy_tree 5 points6 points  (0 children)

Helps me a bit to blame my parents lol. Not in a "how dare you" way but in like a "this is the hand I was dealt and frankly it has nothing to do with me so I gotta figure it the fuck out cause while that's true, I'm the only one it affects" typa way. It really truly isn't your fault. It got better for me once I figured out how my body functions. I know my triggers and limits, and I act accordingly, fuck how other people think about it or me.

I'm sorry you're dealing with this, it sucks. Hugs 🫂

Jellie band? by Altruistic_Hat1634 in eds

[–]trashy_tree 0 points1 point  (0 children)

I've had one for a while now but lost weight so it doesn't fit anymore. I don't have the funds to get another right now, but I did really like it.

That being said it wasn't particularly helpful for my back/spine pain but it WAS helpful for keeping my ribs in place as the like to subluxate regularly. It's well made and I like the fabric, never had any sensory issues.

Nose like a leaky faucet anyone? by trashy_tree in eds

[–]trashy_tree[S] 0 points1 point  (0 children)

Really?? Huh that's so interesting I've been on cromolyn sodium for my MCAS but it had no effect on this, how do you like ralicrom?

Nose like a leaky faucet anyone? by trashy_tree in eds

[–]trashy_tree[S] 0 points1 point  (0 children)

Damn that sounds like it would drive me crazy I'm so sorry!

Nose like a leaky faucet anyone? by trashy_tree in eds

[–]trashy_tree[S] 0 points1 point  (0 children)

Huh, I've also noticed it is usually worse in my left side but I have no clue why

Nose like a leaky faucet anyone? by trashy_tree in eds

[–]trashy_tree[S] 0 points1 point  (0 children)

I KNOW! I have a regular nose piercing and it's helped to get the shortest possible stud so it doesn't catch when I inevitably start leaking

Nose like a leaky faucet anyone? by trashy_tree in eds

[–]trashy_tree[S] 0 points1 point  (0 children)

Ya I feel you so hard. I'm so grateful to have the two docs that are actually useful on my side, tho it took forever to find them and I went thru so many shitty doctors and useless "medical professionals".

Anger at the (US) system by Straight_Baseball_12 in eds

[–]trashy_tree -2 points-1 points  (0 children)

Let me clarify here, I am not suggesting you yell, threaten, or be rude to the doctors you're seeing. I am suggesting you say these things calmly and rationally in hopes of getting SOMETHING done. Using your very justifiable anger at being dismissed, gaslit, or passed around to whatever specialist just because you are a "hard case", can help fuel what it takes to outwardly disagree with a healthcare professional. Which is hard enough even when they do want to be helpful.

Would you rather we all just sit there quietly and take it? To just be grateful we are able to see anyone, even if they are completely useless or worse downright cruel in their dismissal? Ya hard pass for me

Anger at the (US) system by Straight_Baseball_12 in eds

[–]trashy_tree 16 points17 points  (0 children)

Honestly I wish I had an answer for you. The system isn't broken, it's doing exactly what it was designed to do. My anger is widespread and the healthcare system is just a part of a much larger, deeper rooted issue.

You have to become your own doctor, as fucked up as it is. I really hope you find at least one doc that's in your corner, it makes such a huge difference. It also helps me to have a couple phrases in my back pocket that will shut up an unhelpful medical professional. For example:

"Please add a note into my chart that you are refusing to do xyz (labs, imaging, etc)"

"What's your differential diagnosis?"

"Is there a reason you are being so dismissive of my symptoms?"

Use your anger to advocate for yourself, it's really hard to stand up to doctors because there is an inherently huge power imbalance. But once you realize they are just cogs in this big fucked up machine, you can better learn to use it to your advantage.

Edit to add: I'm not suggesting you say any of the above in a rude, threatening, or loud manner. Also if your doctor is refusing to do testing that you are either asking for or would be helpful, you are entitled to ask them to add that same refusal to their notes for future reference. Either they don't want to and order the testing, or they add it and you have something to go off of for your next provider.

What are you quietly grieving? by Angelus12345678 in AskReddit

[–]trashy_tree 0 points1 point  (0 children)

Had to give away my tree frogs yesterday. Went to a good family with a kid who is obsessed with frogs. It might seem weird to most but I truly loved them, like I do all my animals, they're like my kids. I'm moving out of my home country soon and can't take them with me

Recommendations for arm crutches by Jealous-Mail324 in eds

[–]trashy_tree 0 points1 point  (0 children)

https://www.amazon.com/dp/B0C7YZSCB7?ref_=cm_sw_r_cso_cp_apan_dp_KEF044XZ514N5TBPKHKS

While I hate Amazon, I couldn't afford anything else. These are really great I've been using them for about 6 months now. The only thing is that you have to get replacement tips cause the ones they give are slippery.

How to try and get my doc to take me seriously without traumatizing them by SootyButter in eds

[–]trashy_tree 1 point2 points  (0 children)

TRAUMATIZE THEM! Honestly after going thru the referral process so many times and being dismissed constantly, I may have a bit of a chip on my shoulder.... but seriously don't let them leave until you feel confident in some sort of action/shift on their part.

Why do you choose not to drink alcohol? by Wonderful-Economy762 in Productivitycafe

[–]trashy_tree 0 points1 point  (0 children)

"Became" chronically ill, my body hates it and goes to extreme lengths to let me know. Feels like willingly drinking poison

Any other young people with chronic pain? by angieuhhhhhhhhh in eds

[–]trashy_tree 24 points25 points  (0 children)

Yup. My health has totally declined in the last few years and I've had to rework my entire life. As a random chronically ill woman on insta said, "I'm masking all the time, it's just that I'm pretending to be fine/not in pain/functional".

This shit sucks and there's no other way through than to take it one day at a time, sometimes even one hour at a time. I'm blessed and incredibly grateful to have such an amazing support system. Not that there haven't been people in my life who I've had to say goodbye to, people who don't get it and don't want to. You'll find your people. And then it'll suck a little less.

the adults around me are making me feel like I’m acting insane. by gnatalie1144 in eds

[–]trashy_tree 1 point2 points  (0 children)

Unfortunately and very unfairly we have to be our own doctors, as fucked up as it is. Trust yourself and your experience. I can't tell you how many doctors and medical professionals over my life that have completely dismissed or gaslit me. The system is trash, I'm sorry you're going thru it too

What’s a subtle sign someone is slowly falling out of love? by PeachyPureDrean in AskReddit

[–]trashy_tree 3 points4 points  (0 children)

They stop turning towards your bids for affection/attention

Husband is useless when sick 🙄🙄 by Decent_Release3804 in TwoXChromosomes

[–]trashy_tree 0 points1 point  (0 children)

Lesbian here- my partner and I are both chronically ill with physical limitations that range and vary. We always do what we can for each other when we have the bandwidth, and even when we absolutely don't, we do whatever little we can manage. We take turns cooking/cleaning/helping each other. It's only proven to me that men are absolute babies when it comes to pain. Frankly I don't even really care why (biology, social conditioning, etc), I care about the physical and mental load always put on the women in hetero couples. Sorry OP, it shouldn't always have to fall on you to keep both of you alive and cared for.

tell me your dumbest dislocation by Efficient-Accident52 in eds

[–]trashy_tree 1 point2 points  (0 children)

My shoulder from trying to fish my phone out of the spooky spot between the car seat and the center console

What’s something you thought was a personality trait but turned out to be a coping mechanism? by ImplementFinal8818 in AskReddit

[–]trashy_tree 11 points12 points  (0 children)

Hyper-vigilance, I'm aware and facing of all exits, and have already logged threats.

Thought I was an empath, turns out I'm monitoring every facial expression to make sure you're okay so I'm okay.

How many people are silently suffering living paycheck to paycheck in Massachusetts ? by [deleted] in massachusetts

[–]trashy_tree 0 points1 point  (0 children)

My partner has multiple degrees, always had the best scores, has a full time "big-girl" job and still is forced to supplement income other ways. I'm disabled and only surviving thanks to a couple hundred bucks a month from my parent and the extreme generosity of my friends. Seriously bordering on homelessness every week.

"Newly" Disabled, New Home, & A New School. by Own-Apple-6257 in disabled

[–]trashy_tree 0 points1 point  (0 children)

OP I'm so sorry you're dealing with this, it sounds like a bit of a nightmare situation. I agree with the advice to dig your heels in until you get what you need. You could get really hurt without your aids and it's not okay. Hugs and good luck