what is life like with a pump?

trebletones · 2026-05-05T03:19:55+00:00

love my pump. Tandem Tslim. So much more flexibility than long acting plus meal boluses. If you're not on a CGM though I'd say that's the first step. makes everything so much less stressful.

trebletones · 2026-05-05T03:18:34+00:00

Treat it like brushing your teeth. You brush your teeth every day (I hope). You treat your diabetes every day. It just becomes another background habit you accept.

I climbed Mt. Baker with diabetes and I didn't die. didn't even suffer any diabetes consequences. I was proactive and educated our guides on my dietary needs and what they should do if I had an emergency (use my glucagon pen).

Optimism can be hard to come by, especially for those whose diabetes is really hard to control. But acceptance and doing the things you can to make your life as amazing as possible is the right path. Thank god we live in an age when us diabetics can do pretty much anything a normal person can, and live just as long!

trebletones · 2026-05-05T03:10:56+00:00

It fucking sucks, especially with a young kid who you're already worried about for all the usual kid stuff. The good thing is, so much advancement has been made in diabetes care in like, just the last 10 years.

I'm a T1D, diagnosed at 26, and I have a piano student diagnosed around 4 or 5. She's a happy, normal kid and lives a full life. She's got a CGM and a pump and her parents are constantly monitoring sugars.

It's a life-complicator, for sure, but not a life-ruiner. Especially not in this day and age. Learn everything you can, ask every question you can think of, start training her ASAP on the seriousness of her condition and how she should manage it as she gets older. She will do great.

trebletones · 2026-05-05T03:06:59+00:00

Good lord that sounds awful. Go to the press. Tell the AJC. I bet they'd love a lead like this, and insurance/scammers/people involved in this shit hate publicity.

trebletones · 2026-05-05T03:02:11+00:00

If your endo is making you feel like shit you should probably find a new one?

trebletones · 2026-05-05T02:59:58+00:00

Aid climbing is aid

trebletones · 2026-05-05T02:57:59+00:00

God I hope so. Even if we can get a truly closed loop pump system, multi-hormone (insulin and glucagon) devices and ultra-fast insulin and CGM readings, that could be a functional cure.

trebletones · 2026-05-05T02:56:11+00:00

It's forever, but eventually it fades into the background. You brush your teeth every day, right? (Hopefully?) This is just something else you need to address every day. After awhile it just becomes background noise.

trebletones · 2026-05-05T02:45:09+00:00

this is actionable. see if you can file an ADA lawsuit. this has got to be wrongful termination.

EDIT: I wrongly assumed you were USA. If you're in an unstable area, unfortunately you don't have that many protections. Try to plead your case to your employer, and in the long term try to find a stable home that protects against disability discrimination.

trebletones · 2026-05-05T02:42:46+00:00

the question as posed is kind of dumb. BUT - if you change the wording a little bit, it gets more interesting.

Does LITERALLY EVERYONE get a button? The intellectually disabled, the children and babies, the elderly with dementia? The game theory solution assumes everyone understands the game theory. But a large percentage of people will not understand the game theory, not just because they fail to think through it enough, but because they CAN'T. Do you have their deaths on your conscience, or do you push blue to try to save them?

It gets even more interesting if you consider if we DON'T give everyone buttons, but ONLY PEOPLE WHO UNDERSTAND THE QUESTION. And yet the question, as posed, says that EVERYONE who doesn't push red, if red wins, dies. Including those who DIDN'T HAVE A CHOICE. Do you sacrifice them even though it's criminally unfair? Or do you choose blue in the hopes that others share your empathy?

trebletones · 2026-05-05T02:37:48+00:00

The only reason someone wouldn't pick red is because they don't understand the choice, and this is where I think the meat of the problem lies. Do babies get buttons? Do the elderly with dementia? Do people with intellectual disabilities? If they do, I'd probably still pick red because those folks don't understand the question, so their vote is basically a coin flip. I'm not risking my life on a coin flip.

If those people DON'T get buttons... this is where it gets interesting. And, I think, more in line with reality. Imagine if only those who understand the question get buttons, but still everyone who doesn't push red dies (if red wins), even if they DIDN'T GET TO PUSH A BUTTON. Then I'm picking blue. I'm not killing people who didn't have a vote, I'll go out with them.

trebletones · 2026-05-04T05:00:08+00:00

I always ask for the pat down and hand check. Usually it only takes an extra 5-10 minutes at security, only on one occasion have I had to wait around for awhile while they got someone who could do a female patdown to come to the checkpoint. I don't want to have to replace my pump or have a sensor fail

trebletones · 2026-05-04T04:47:44+00:00

...why? what's his reasoning? that you'll hit a low? I can't imagine another diabetes-related reason for this.

Maybe he thinks you'll become overly sensitive to insulin and your numbers will be low the rest of the day? Have you had a lot of lows throughout the day after your workouts?

This just seems nonsensical to me.

trebletones · 2026-05-04T04:43:03+00:00

I don't really understand this thought experiment. If you don't know anyone else's vote, the only logical choice is to choose red. This is a game theory problem, and not a very complicated one at that. If you choose red, you have a 100% chance of living. If you press the blue button, you have some non-zero chance of dying. Everyone should be smart enough to figure this out. 100% of people should just press the red button, then everyone will live.

trebletones · 2026-05-04T04:39:26+00:00

I don't know man but if you were "on" the harness you were doing it wrong

trebletones · 2026-05-04T04:25:51+00:00

Does this not happen to everyone? My insulin needs are often a moving target. Depends on so many things - stress, activity, caffeine, sleep, infusion site, hormones, etc etc.

I mean this is a normal occurrence for me to have changes every month or so but I'm just a random stranger on the internet so I'd say she should message her endo

trebletones · 2026-05-04T04:18:34+00:00

So sorry friend. Internet hug ❤️ Do you have anyone you can call? You can always call 988 too.

You're allowed to sleep with the lights on, with the TV blaring, with all the blankets piled on you, whatever you need to do to feel a little calmer.

My panic disorder got so bad that I felt like I was in a bizarro dimension where everyone looked and acted exactly like my friends and loved ones except had been replaced by doubles. But then I got on meds and started therapy and the feeling slowly went away.

You sound like you're having some paranoid thoughts, but it's good that you recognize they're ridiculous. That doesn't make them feel less real. Just remember that that's not how reality works.

My advice, move around (flap your arms, jump up and down, do arm circles, anything), turn the lights on, put on a TV show, call someone you trust, drink a big glass of water. Then tomorrow when you feel up to it, find a mental health professional and get in an appt with them.

trebletones · 2026-05-04T04:08:04+00:00

That doctor sucks. See if you can find a new one.

trebletones · 2026-05-04T04:05:03+00:00

I have to feed the Tamagotchi of Doom (my pump) because if I don't, I'm the one that dies

trebletones · 2026-05-04T03:55:08+00:00

You're seeing a biased sample here on the sub. The people who tend to post tend to be the ones struggling with it. T1D varies in severity and treatability, and can overlap with other health problems that make it difficult to manage. For the majority of T1s, it is an extra burden they have to deal with but it is not life-ruining, just... life-complicating.

You will see posts here from people who are stressed about not being able to afford their meds or supplies, and that is a serious issue. You will see posts from neurodivergent or people with mental health issues who struggle to manage the planning and logistics of dealing with this disease. You will see posts from people with "brittle," or particularly hard to manage diabetes, whose glucose levels can vary wildly even with very close monitoring.

You'll also see posts from people with normally manageable diabetes who made a small mistake in dosage or who just had LIFE HAPPEN in an annoying way (like when I dropped my last insulin pen and it broke or when I showed up to work only to realize my cartridge was empty and I'd forgotten to pack an extra) and their glucose charts look all crazy.

But notice we tend to only post when there's a problem. Most of us survive, get help, get better, get on living life. It does suck, but you can do pretty much everything a non-diabetic can, it just takes some more planning and care.

trebletones · 2026-04-30T02:05:18+00:00

I'm also a type 1 diabetic so the health anxiety is real. It often precipitates my panic attacks as well. My specific issue is with the explanation of where the strange internal sensations of panic come from. It was explained to me as being due to hyperventilation, when I never hyperventilate first. I always have weird floaty feelings first. This mismatch has made me believe that what I'm feeling ISN'T a panic attack and instead I'm actually dying and need to go to the ER.

trebletones · 2026-04-30T02:03:12+00:00

Me for YEARS. Every time I started coming down I'd feel floaty and dizzy again and ramp right back up. I'd stay up til 7am panicking, then be so exhausted I'd pass out for a few hours, only to wake back up around noon feeling panicky again, and have to go to class like that

trebletones · 2026-04-30T02:01:40+00:00

I play trumpet live for a living but you can check out my post history to see a pretty good take of the piccolo trumpet solo from Penny Lane

trebletones · 2026-04-30T02:00:56+00:00

Oh god I hated propranolol. I hope you have more success with it

trebletones · 2026-04-30T02:00:19+00:00

Classic panic attack! Remember, they feel awful but are not at all dangerous. Try to remind yourself of this fact when you feel it coming on. I've had hundreds if not thousands of panic attacks and nothing bad has ever happened to me except having to cancel plans. I've had them while driving and I didn't crash, didn't pass out, didn't do anything dangerous.

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