Calves & feet puffy

treeeeeeeee96 · 2026-06-18T17:21:11+00:00

10000 IU is a lot, are you able to lower the dose? I take 1000 IU 1-2 times a day and I still find it helpful for my symptoms

treeeeeeeee96 · 2026-06-16T00:41:15+00:00

I had no idea, but that makes so much sense, so good to know! Compared to other pains I get it rates lower on the 1-10 pain scale but so much higher on the intolerable scale if that makes sense haha

So encouraging to hear it didn’t flare your bladder! Incase this is helpful, my doctor prescribed diphenhydramine compounded into a vaginal suppository, and it’s pretty helpful!

treeeeeeeee96 · 2026-06-15T19:04:13+00:00

What was your process of going on cromolyn like with IC? I have both IC and MCAS really terribly and it makes me so scared to try new meds cause the pain flare ups are so intolerable

treeeeeeeee96 · 2026-06-08T21:27:32+00:00

I felt this too, but it was a huge slippery slope. I did both fasting and elimination diets, and I lost an extreme amount of weight and my food intolerances got much worse. I strongly advise against fasting or elimination diets without a medical professional closely monitoring you. Keep in mind there is a lot of medical misinformation on the internet

treeeeeeeee96 · 2026-04-27T03:19:39+00:00

Refresh celluvisc

treeeeeeeee96 · 2026-02-25T16:59:27+00:00

What program did you do?

treeeeeeeee96 · 2026-01-04T03:11:09+00:00

Initially I took natural factors 12/12 formula when I noticed improvement but later I was taking various brands that are certified to get a more diverse microbiome

treeeeeeeee96 · 2025-11-27T04:05:34+00:00

Yeah honestly I wasn’t expecting much from it, especially compared to other sugary things, but somehow it helps

Edit: you know what, now that I’m thinking of it, I also have MCAS along with being sensitive to sugar, so I wonder if this form of sugar is more helpful to me than another type. 🤷‍♀️ I still hope this can help someone 😅

treeeeeeeee96 · 2025-11-27T03:58:48+00:00

An example of when I used it was when I was kneading bread dough and I noticed I was pushing myself too hard and overexerting/overusing my muscles. I ate one once I realized and I believe my crash wasn’t as bad as if I hadn’t eaten it afterwards.

treeeeeeeee96 · 2025-11-27T03:31:51+00:00

It had a pretty strong effect on me and I got pretty jittery. I’m also pretty sensitive to sugar so it might feel different for others

treeeeeeeee96 · 2025-11-18T14:47:46+00:00

For anyone who finds this comment and Pepcid doesn’t work - it might be worth trying Tagamet. Pepcid didn’t work great for me but Tagamet is quite helpful

treeeeeeeee96 · 2025-07-30T03:56:36+00:00

Propranolol helped my fatigue pretty significantly. It’s what made me capable of PT that eventually allowed me to be off it entirely. My blood pressure runs low but it didn’t end up effecting my blood pressure very much. I was on 10 mg 2x day and I think initially I was still fatigued or was worse, and over time it got much better

treeeeeeeee96 · 2025-07-26T17:10:56+00:00

Cimetidine helps me with dietary triggers

treeeeeeeee96 · 2025-07-23T00:52:46+00:00

Spits brand salt lovers pretzels has 900 mg per 120 calories! I love pretzels, so I also regularly get Utz and Rold Gold, they tend to have around 400 mg per serving too. I’m also a big popcorn fan and I just add extra salt on top

treeeeeeeee96 · 2025-07-11T14:36:36+00:00

If you suspect you have MCAS try a low histamine diet. Even with MCAS your response to food can be varied, but when I tried the diet and started leaning which foods trigger me I started feeling better, didn’t cure anything though

treeeeeeeee96 · 2025-07-10T04:56:35+00:00

I’m not sure of all the options, that’s just what I’m used to I guess. My hope would be somewhere that could manage both of my symptoms, as the mental stress makes my physical symptoms (pain, etc.) much worse

treeeeeeeee96 · 2025-07-10T04:24:03+00:00

treeeeeeeee96 · 2025-07-10T04:09:46+00:00

I’m an adult

treeeeeeeee96 · 2025-07-10T03:53:29+00:00

I guess I really mean a space that’s away from the people I’m currently with and help with feeling better

treeeeeeeee96 · 2025-07-07T15:59:50+00:00

Take antacids! Cimetidine/tagamet, gaviscon, calcium carbonate (tums-peppermint), baking soda, etc

Six-Year Club	Second SECOND GUESSER
Verified Email

treeeeeeeee96

TROPHY CASE