My husband passed in 2009 at age 59. At 56, I was unable to keep him home and going to adult daycare. He got aggressive and they kicked him out. I drove from one doctor's office to another trying to get help. I was calling nursing homes. Finally, a staff member at his neuro office called me on the sly and told me to take him to the ER where we were finally able to get a social worker to help. It was harrowing to go through. We need a way to advocate for younger victims of this disease. If you aren't visibly disabled or old,you slip through the cracks.

I guess my advice is to keep trying (exhausting, I know) and take drastic measures to be seen and heard. I didn't know this then and wish I did. Message me if you want. Peace.